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Foundation for Prader-Willi Research Inc at a glanceAlso receives grants: funding profile →

· Public charity

Foundation for Prader-Willi Research Inc

To eliminate the challenges of prader willi syndrome through the advancement of research and therapeutic development.

$3.4M
Granted FY2024still arriving
20
Grants FY2024still arriving
13
States reached
$300k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Science & Tech$5.8MHealth$4.9MEducation$2.4MFood & Nutrition$158k
02FY2024 · 20 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 20 grants below total $2,597,062, the rows itemized in this filing. The $3,413,154 headline is the total grant expense on the return; the other $816,092 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2024

  • Under $10k1 grant · $5k
  • $10k–50k1 grant · $27k
  • $50k–250k17 grants · $2.3M
  • $250k+1 grant · $300k
$161,998
Median grant
13
States reached
$8.9M
Total assets
Largest grants
RecipientAmount
EMORY UNIVERSITY$300,000
SAINT LOUIS UNIVERSITY SCHOOL OF MEDICINE$222,156
UNIVERSITY OF NEBRASKA$162,000
YALE UNIVERSITY$162,000
SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE$162,000
ALBERT EINSTEIN COLLEGE OF MEDICINE$162,000
ROCKEFELLER UNIVERSITY$162,000
DUKE UNIVERSITY$162,000
UNIVERSITY OF PITTSBURGH$161,999
CARNEGIE MELLON UNIVERSITY$161,998
UNIVERSITY OF CONNECTICUT HEALTH CENTER$137,700
DUKE UNIVERSITY$108,000
TULANE UNIVERSITY$95,591
MEDICAL UNIVERSITY OF SOUTH CAROLINA$86,400
JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE$86,400
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–24) land where the poverty rate runs at 15%, against an area that typically sits at 11%. 77% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%PRINCETON UNIVERSITY: $108k → 11%HARVARD COLLEGE: $162k → 8%BRIGHAM AND WOMEN'S HOSPITAL: $162k → 16%THE SALK INSTITUTE FOR BIOLOGICAL STUDIES: $200k → 11%NYU WINTHROP HOSPITAL: $108k → 6%MAIMONIDES MEDICAL CENTER: $165k → 20%ALBERT EINSTEIN COLLEGE OF MEDICINE: $162k → 28%BAYLOR COLLEGE OF MEDICINE: $108k → 16%FLORIDA STATE UNIVERSITY RESEARCH FOUNDATION: $108k → 19%UNIVERSITY OF MICHIGAN: $108k → 14%UNIVERSITY OF ALABAMA: $141k → 17%SAINT LOUIS UNIVERSITY SCHOOL OF MEDICINE: $162k → 21%ST JUDE CHILDREN'S RESEARCH HOSPITAL: $108k → 17%DUKE UNIVERSITY: $162k → 11%EMORY UNIVERSITY: $300k → 14%THE OHIO STATE UNIVERSITY: $216k → 15%CASE WESTERN RESERVE UNIVERSITY: $133k → 17%FOUNDATION OF ANGELMAN SYNDROME: $154k → 7%UNIVERSITY OF CHICAGO: $162k → 14%THE UNIVERSITY OF ILLINOIS AT URBANA-CHAMPAIGN: $108k → 19%PRINCETON UNIVERSITY: $108k → 11%VIRGINIA POLYTECHNIC AND STATE UNIVERSITY: $108k → 21%MASSACHUSETTS GENERAL HOSPITAL: $473k → 16%UNIVERSITY OF PITTSBURGH: $162k → 11%STANFORD UNIVERSITY SCHOOL OF MEDICINE: $162k → 8%SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE: $162k → 11%ROCKEFELLER UNIVERSITY: $162k → 17%MAIMONIDES MEDICAL CENTER: $108k → 20%ALBERT EINSTEIN COLLEGE OF MEDICINE: $108k → 28%SAINT LOUIS UNIVERSITY: $108k → 21%ST JUDE CHILDREN'S RESEARCH HOSPITAL: $108k → 17%DUKE UNIVERSITY: $108k → 11%OHIO STATE UNIVERSITY: $108k → 15%CHICAGO SCHOOL OF PROFESSIONAL PSYCHOLOGY: $153k → 14%VIRGINIA POLYTECHNIC INSTITUTE AND STATE UNIVERSITY: $108k → 21%MASSACHUSETTS GENERAL HOSPITAL: $146k → 16%STANFORD UNIVERSITY SCHOOL OF MEDICINE: $108k → 8%THE SALK INSTITUTE FOR BIOLOGICAL STUDIES: $108k → 11%ROCKEFELLER UNIVERSITY: $162k → 17%ALBERT EINSTEIN COLLEGE OF MEDICINE AND MONTEFIORE MEDICAL CENTER: $108k → 28%SAINT LOUIS UNIVERSITY SCHOOL OF MEDICINE: $222k → 21%DUKE UNIVERSITY: $108k → 11%MASSACHUSETTS GENERAL HOSPITAL: $108k → 16%CARNEGIE MELLON UNIVERSITY: $162k → 11%COLUMBIA UNIVERSITY: $362k → 17%GENERAL ELECTRIC: $108k → 11%THE SCINTILLON INSTITUTE: $162k → 11%ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $108k → 17%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
IL
MI
NY
MA
IA
IN
OH
PA
NJ
CT
CA
UT
CO
NE
MO
VA
MD
AZ
KS
TN
NC
SC
LA
AL
GA
TX
FL

Grants abroad, by region: $816k on the FY2024 return

Schedule F, as filed: 3 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$610k · 75% · 5 grants

Stated purpose: RESEARCH

North America (Canada and Mexico)$127k · 16% · 1 grant

Stated purpose: RESEARCH

East Asia and the Pacific$79k · 10% · 1 grant

Stated purpose: RESEARCH

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

65%of every dollar goes to organizations it has funded before.
$7.9M · 28 repeat orgs$4.2M to everyone else

Grantees it renews have grown median revenue +41% since the first grant, against +27% for those funded once.

28 repeat relationships: 7 still active in FY2024, 21 since wound down; 9 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

28
30

Total granted

$7.9M
$3.0M

Median revenue growth · since first grant

+41%
+27%

Still filing today

64%
57%

New vs renewed · share of each year

In FY2024, 47% of grant dollars renewed an existing relationship; $1.3M went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24
EducationHealthScience & TechFood & NutritionOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • DUKE UNIVERSITY
    3× · 2020–2024 · $540k · revenue +49%
  • SL
    ST LOUIS UNIVERSITY
    3× · 2021–2024 · $492k · revenue +6%
  • TS
    The Salk Institute for Biological Studies
    3× · 2018–2021 · $408k · revenue +27%

Funded once

  • OH
    Oregon Health & Science University
    one grant, 2022 · $486k
  • University of Chicago
    one grant, 2023 · $162k · revenue +21%
  • TS
    THE SCINTILLON INSTITUTEgraduated
    one grant, 2022 · $162k · revenue +27%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
3
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
4
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
5
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
6
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
7
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
8
The Board of Trustees of the Leland Stanford Junior University

Stanford university is one of a select group of american universities that have achieved eminence in both undergraduate and graduate education and research - cont'd sch o.

Education
9
Stony Brook Internists University Faculty Practice Corporation

Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.

Health
10
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
11
Trustees of the University of Pennsylvania

The trustees of the university of pennsylvania (the "university") sees itself as having a public service mission. in such regard, the university aims to provide a rich and diverse educational environment for its students; to pioneer…

Education
12
Stony Brook Urology University Faculty Practice Corporation

Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.

Health
How this is measured
The grantee most central to the portfolio’s shape is The Trustees of Princeton University; the most unlike its peers is Plainfield Area Interfaith Food Pantry. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

46 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 46 of the 70 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

1
Load-bearing (≥25% of a budget)
2
Early backer (in before they grew)
44/46
Grantees still filing
37/46
Grew since first funded

Where the money sits, by cause and then by grantee

MASS GENERAL BRIGHAM INCORPORATED: $888,230 · OtherMASS GENERAL BRIGHAM INCORPORATEDTHE UNIVERSITY OF TENNESSEE: $564,709 · OtherTHE UNIVERSITY OF TENNESSEEOregon Health & Science University: $486,000 · OtherOregon Health & Science UniversityTHE OHIO STATE UNIVERSITY: $431,387 · OtherTHE OHIO STATE UNIVERSITYUNIVERSITY OF FLORIDA: $338,090 · OtherUNIVERSITY OF FLORIDASTANFORD UNIVERSITY SCHOOL OF MEDICINE: $270,000 · OtherUNIVERSITY OF CONNECTICUT HEALTH CENTER: $227,899 · OtherVIRGINIA POLYTECHNIC INSTITUTE & STATE UNIVERSITY: $216,000 · OtherREGENTS OF THE UNIVERSITY OF MICHIGAN: $213,300 · Other+19 more: $1,834,873 · Other+19 moreDUKE UNIVERSITY: $540,000 · EducationDUKE UNIVERSITYTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $495,761 · EducationTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE C…ST LOUIS UNIVERSITY: $492,156 · EducationST LOUIS UNIVERSITYYale University: $377,999 · EducationYale UniversityTHE ROCKEFELLER UNIVERSITY: $324,000 · EducationTHE ROCKEFELLER UNIVERSITYEmory University: $300,000 · EducationEmory UniversityCASE WESTERN RESERVE UNIVERSITY: $281,038 · EducationCASE WESTERN RESERVE UNIVERSITYBaylor College of Medicine: $280,675 · EducationBaylor College of MedicinePresident and Fellows of Harvard College: $248,399 · EducationThe Trustees of Princeton University: $216,000 · EducationVanderbilt University: $211,228 · EducationICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $208,000 · EducationUNIVERSITY OF PITTSBURGH: $189,874 · Education+10 more: $1,061,042 · Education+10 moreMAIMONIDES MEDICAL CENTER: $273,148 · HealthMAIMONIDES MEDI…SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE: $243,037 · HealthSANFORD BURNHAM…ST JUDE CHILDREN'S RESEARCH HOSPITAL INC: $216,000 · HealthST JUDE CHILDRE…Vanderbilt University Medical Center: $203,278 · HealthVanderbilt Univ…MONTEFIORE MEDICAL CENTER: $172,800 · HealthMONTEFIORE MEDI…CHILDREN'S HOSPITAL OF PITTSBURGH FOUNDATION: $161,999 · HealthCHILDREN'S HOSP…ANGELMAN SYNDROME FOUNDATION INC: $154,000 · HealthANGELMAN SYNDRO…UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE: $106,177 · HealthUNIVERSITY OF K…Children's Hospital Los Angeles: $86,400 · HealthSHRINERS HOSPITALS FOR CHILDREN: $71,820 · Health+6 more: $116,585 · Health+6 moreThe Salk Institute for Biological Studies: $408,000 · Science & TechTHE SCINTILLON INSTITUTE: $162,000 · Science & TechPlainfield Area Interfaith Food Pantry: $157,948 · Food & Nutrition
Other$5,470,488Education$5,226,172Health$1,805,244Science & Tech$570,000Food & Nutrition$157,948

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetDUKE UNIVERSITY: $540,000 over 3y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $495,761 over 3y, 0.0% of budgetST LOUIS UNIVERSITY: $492,156 over 3y, 0.0% of budgetThe Salk Institute for Biological Studies: $408,000 over 3y, 0.1% of budgetYale University: $377,999 over 3y, 0.0% of budgetTHE ROCKEFELLER UNIVERSITY: $324,000 over 2y, 0.0% of budgetEmory University: $300,000 over 1y, 0.0% of budgetCASE WESTERN RESERVE UNIVERSITY: $281,038 over 3y, 0.0% of budgetBaylor College of Medicine: $280,675 over 3y, 0.0% of budgetMAIMONIDES MEDICAL CENTER: $273,148 over 2y, 0.0% of budgetPresident and Fellows of Harvard College: $248,399 over 1y, 0.0% of budgetSANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE: $243,037 over 2y, 0.1% of budgetThe Trustees of Princeton University: $216,000 over 2y, 0.0% of budgetST JUDE CHILDREN'S RESEARCH HOSPITAL INC: $216,000 over 2y, 0.0% of budgetVanderbilt University: $211,228 over 2y, 0.0% of budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $208,000 over 2y, 0.0% of budgetVanderbilt University Medical Center: $203,278 over 2y, 0.0% of budgetUNIVERSITY OF PITTSBURGH: $189,874 over 4y, 0.0% of budgetMONTEFIORE MEDICAL CENTER: $172,800 over 3y, 0.0% of budgetAlbert Einstein College of Medicine: $162,000 over 1y, 0.0% of budgetUniversity of Chicago: $162,000 over 1y, 0.0% of budgetTHE SCINTILLON INSTITUTE: $162,000 over 1y, 4.0% of budgetCHILDREN'S HOSPITAL OF PITTSBURGH FOUNDATION: $161,999 over 1y, 0.3% of budgetCarnegie Mellon University: $161,998 over 1y, 0.0% of budgetPlainfield Area Interfaith Food Pantry: $157,948 over 2y, 73% of budgetANGELMAN SYNDROME FOUNDATION INC: $154,000 over 1y, 6.5% of budgetThe Chicago School of Professional Psychology: $152,667 over 1y, 0.4% of budgetThe Florida State University Foundation Inc: $108,000 over 1y, 0.2% of budgetNYU WINTHROP HOSPITAL: $108,000 over 1y, 0.0% of budgetUNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE: $106,177 over 1y, 0.1% of budgetThe Research Foundation for The State University of New York: $102,600 over 1y, 0.0% of budgetTHE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND: $95,591 over 1y, 0.0% of budgetUniversity of Kentucky Research Foundation: $86,400 over 1y, 0.0% of budgetChildren's Hospital Los Angeles: $86,400 over 1y, 0.0% of budgetBucknell University: $72,984 over 1y, 0.0% of budgetSHRINERS HOSPITALS FOR CHILDREN: $71,820 over 1y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $64,800 over 1y, 0.0% of budgetCornell University: $54,000 over 1y, 0.0% of budgetPLEA: $34,290 over 1y, 1.4% of budgetSeattle Children's Foundation: $32,360 over 2y, 0.0% of budgetCook Children's Health Care System: $22,680 over 1y, 0.0% of budgetThe Children's Mercy Hospital: $22,140 over 1y, 0.0% of budgetChildren's Hospital Colorado: $20,000 over 2y, 0.0% of budgetLUCILE SALTER PACKARD CHILDREN'S HOSPITAL AT STANFORD: $10,000 over 1y, 0.0% of budgetUNIVERSITY AT BUFFALO PEDIATRIC ASSOCIATES INC: $7,475 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Alzheimer's Disease &…Mayo ClinicThe Trustees of Colum…American Heart Associ…National Alliance for…Cystic Fibrosis Found…Muscular Dystrophy As…The George Washington…Brown UniversityThe Children's Hospit…University of Souther…Cornell University
Alzheimer's Disease & Related Disorders Association IncIL15.7× affinity5 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: Alzheimer's Disease & Related Disorders Association Inc · Mayo Clinic · The Trustees of Columbia University in the City of New York · American Heart Association Inc · National Alliance for Research on Schizophrenia and Depression · Cystic Fibrosis Foundation · Muscular Dystrophy Association Inc · The George Washington University · Brown University · The Children's Hospital of Philadelphia · University of Southern California · Cornell University

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Foundation for Prader-Willi Research Inc funds: left to right is the share of its income from government, bottom to top the share from Foundation for Prader-Willi Research Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%5%19%42%75%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 11%
  • Johns Hopkins University: 12% of income from government
  • Yale University: 12% of income from government
  • The Trustees of Princeton University: 11% of income from government
  • President and Fellows of Harvard College: 7% of income from government
  • Shriners Hospitals for Children: 0% of income from government
no gov moneyreceives it· size = income
0get no government money at all
6report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 70 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Foundation for Prader-Willi Research’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home