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Foundation for Angelman Syndrome Therapeutics at a glanceAlso receives grants: funding profile →

· Public charity

Foundation for Angelman Syndrome Therapeutics

Angelman syndrome (as) is a neurodevelopmental disorder characterized by global development delays and severe speech impairment.

$4.1M
Granted FY2019
7
Grants FY2019
6
States reached
$1.7M
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead

Read this first · the figures below need context

77% of Foundation for Angelman Syndrome Therapeutics’s FY2024 grant dollars went to Trustees Of The University Of Pennsylvania, not to grantees.

Its money now reaches organizations through that sponsor, which does not report who recommended each grant. FY2024 names 7 organizations directly, so a portfolio cannot be read from it. Everything below is therefore FY2019, the last year Foundation for Angelman Syndrome Therapeutics named its own grantees at scale: 6 organizations, $4M. It is dated, not current.

Organizations named directly on the return

6
’17
6
’18
6
’19
4
’20
5
’21
2
’22
9
’23
7
’24

Amber years are those where most dollars went to a sponsor.

01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$20MEducation$8.2MAnimals$2.1MYouth Development$449kScience & Tech$152k
02FY2019 · 7 grants

Where the money goes

Grants by size, and the largest recipients.

By grant size · FY2019

  • Under $10k1 grant · $10k
  • $50k–250k3 grants · $421k
  • $250k+3 grants · $3.6M
$163,700
Median grant
6
States reached
$45M
Total assets
Largest grants
RecipientAmount
UNIVERSITY OF CALIFORNIA DAVIS$1,696,897
TEXAS A&M UNIVERSITY$1,061,516
UNIVERSITY OF PENNSYLVANIA$838,866
BAYLOR COLLEGE OF MEDICINE$163,700
NEW YORK UNIVERSITY$145,125
UNIVERSITY OF SOUTH FLORIDA$112,041
DUKE UNIVERSITY CENTER FOR HEALTH MANAGEMENT$9,935
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–24) land where the poverty rate runs at 16%, against an area that typically sits at 12%. 91% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 12%BOSTON CHILDREN'S HOSPITAL: $471k → 16%UNIVERSITY OF PENNSYLVANIA: $1.5M → 22%KECK GRADUATE INSTITUTE OF APPLIED LIFE SCIENCES: $250k → 14%UNIVERSITY OF CALIFORNIA DAVIS: $1.7M → 16%NEW YORK UNIVERSITY: $145k → 17%BAYLOR COLLEGE OF MEDICINE: $213k → 16%TEXAS AGRILIFE RESEARCH: $1.3M → 22%CHILDREN'S RESEARCH INSTITUTE: $247k → 14%UNIVERSITY OF SOUTH FLORIDA: $2.0M → 13%VANDERBILT UNIVERSITY MEDICAL CENTER: $397k → 14%NORTH CAROLINA STATE UNIVERSITY: $179k → 8%DUKE UNIVERSITY CENTER FOR HEALTH MANAGEMENT: $356k → 11%NORTH CAROLINA STATE UNIVERSITY: $299k → 15%BROWN UNIVERSITY: $194k → 14%UNIVERSITY OF COLORADO DENVER: $383k → 10%RUSH UNIVERSITY MEDICAL CENTER: $1.3M → 14%BOSTON CHILDREN'S HOSPITAL: $458k → 16%KECK GRADUATE INSTITUTE OF APPLIED LIFE SCIENCES: $125k → 14%UNIVERSITY OF CALIFORNIA DAVIS: $1.1M → 16%NEW YORK UNIVERSITY: $95k → 17%BAYLOR COLLEGE OF MEDICINE: $164k → 16%TEXAS A&M UNIVERSITY: $1.1M → 22%CHILDREN'S RESEARCH INSTITUTE: $141k → 14%UNIVERSITY OF SOUTH FLORIDA: $165k → 13%NORTH CAROLINA STATE UNIVERSITY: $174k → 8%DUKE UNIVERSITY CENTER FOR HEALTH MANAGEMENT: $78k → 11%NORTH CAROLINA STATE UNIVERSITY: $150k → 15%BROWN UNIVERSITY: $150k → 14%RUSH UNIVERSITY MEDICAL CENTER: $321k → 14%BOSTON CHILDREN'S HOSPITAL: $21k → 16%UNIVERSITY OF CALIFORNIA DAVIS: $320k → 16%BAYLOR COLLEGE OF MEDICINE: $10k → 16%TEXAS AGRILIFE RESEARCH: $810k → 22%UNIVERSITY OF SOUTH FLORIDA: $112k → 13%NORTH CAROLINA STATE UNIVERSITY: $173k → 8%DUKE UNIVERSITY CENTER FOR HEALTH MANAGEMENT: $10k → 11%BROWN UNIVERSITY: $51k → 14%UNIVERSITY OF CALIFORNIA DAVIS: $297k → 16%TEXAS A&M UNIVERSITY: $278k → 22%NORTH CAROLINA STATE UNIVERSITY: $162k → 8%BROWN UNIVERSITY: $51k → 14%UNIVERSITY OF CALIFORNIA DAVIS: $297k → 16%TEXAS A&M UNIVERSITY: $267k → 22%NORTH CAROLINA STATE UNIVERSITY: $43k → 8%REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS: $274k → 16%TEXAS A&M UNIVERSITY: $38k → 22%NORTH CAROLINA STATE UNIVERSITY: $29k → 8%REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS: $75k → 16%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

IL
NY
MA
PA
CT
RI
CA
CO
TN
NC
DC
TX
FL
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
04

Where the work is directed

The same grants placed two ways: where each recipient sits, and where its stated purpose sends the money.

About 11% of Foundation for Angelman Syndrome Therapeutics’s grant dollars are earmarked for a different county than the recipient’s own address.

Foundation for Angelman Syndrome Therapeuticslessmore of its giving
Placed by recipient address · 12% directed abroad (not shown)
How this is measured
Recipient view: each grant at its grantee’s ZIP, mapped to a county. Directed view: each grant at the county its stated purpose names, falling back to the recipient’s county when the purpose names no place; US grants only. A county shows only if it carries the top 95% of that view’s dollars. Purposes are read from the funder’s own 990 grant descriptions.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

95%of every dollar goes to organizations it has funded before.
$16M · 13 repeat orgs$780k to everyone else

13 repeat relationships: 6 still active in FY2019, 7 since wound down; 1 grantees were first funded in FY2019 (too recent to call). Read against FY2019, the last year this funder named its own grantees directly; its giving has since run through a sponsor, which reports no donor behind each grant.

How the two cohorts compare

Re-uppedFunded once

Organizations

13
1

Total granted

$16M
$397k

Median revenue growth · since first grant

+41%
+110%

Still filing today

54%
100%

New vs renewed · share of each year

In FY2024, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • RU
    Rush University Medical Center
    2× · 2023–2024 · $1.6M · revenue +4%
  • CH
    Children's Hospital Corporation
    3× · 2017–2024 · $950k · revenue +91%
  • DUKE UNIVERSITY
    6× · 2018–2024 · $846k · revenue +41%

Funded once

  • VU
    Vanderbilt University Medical Centergraduated
    one grant, 2018 · $397k · revenue +110%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
2
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
3
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
4
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
5
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
6
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
7
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
8
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
9
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
10
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
11
Washington University

The washington university is a co-educational, nondenominational university with a long and distinguished history of teaching, research and (cont'd on schedule o)

Education
12
Wake Forest University

Wake Forest University, a 501(c)(3) institution of higher education, is dedicated to the pursuit of excellence in the liberal arts and in graduate and professional education. The organization is comprised of seven constituent parts: Wake…

Education
How this is measured
The grantee most central to the portfolio’s shape is Yale University; the most unlike its peers is Keck Graduate Institute of Applied Life Sciences. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
05the grantee network

11 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 11 of the 18 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
11/11
Grantees still filing
10/11
Grew since first funded

Where the money sits, by cause and then by grantee

TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $10,619,183 · EducationTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIAYale University: $2,847,476 · EducationYale UniversityDUKE UNIVERSITY: $845,813 · EducationDUKE UNIVERSITY+3 more: $1,001,155 · Education+3 moreUNIVERSITY OF CALIFORNIA DAVIS: $4,054,010 · OtherUNIVERSITY OF CALIFORNIA DAVISTEXAS A&M AGRILIFE RESEARCH: $3,715,607 · OtherTEXAS A&M AGRILIFE RESEARCHUNIVERSITY OF SOUTH FLORIDA: $2,318,994 · OtherUNIVERSITY OF SOUTH FLORIDANC STATE UNIVERSITY: $759,948 · OtherNC STATE UNIVERSITYNORTH CAROLINA STATE UNIVERSITY: $448,982 · Other+2 more: $687,576 · Other+2 moreRush University Medical Center: $1,608,100 · HealthRush Univers…Children's Hospital Corporation: $949,964 · HealthChildren's H…Vanderbilt University Medical Center: $397,040 · HealthVanderbilt U…CHILDREN'S RESEARCH INSTITUTE: $387,446 · HealthCHILDREN'S R…BROWN UNIVERSITY: $445,000 · Community Improvement
Education$15,313,627Other$11,985,117Health$3,342,550Community Improvement$445,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $10,619,183 over 6y, 0.1% of budgetYale University: $2,847,476 over 4y, 0.0% of budgetRush University Medical Center: $1,608,100 over 2y, 0.1% of budgetChildren's Hospital Corporation: $949,964 over 3y, 0.0% of budgetDUKE UNIVERSITY: $845,813 over 6y, 0.0% of budgetBROWN UNIVERSITY: $445,000 over 2y, 0.0% of budgetVanderbilt University Medical Center: $397,040 over 1y, 0.0% of budgetCHILDREN'S RESEARCH INSTITUTE: $387,446 over 2y, 0.3% of budgetBaylor College of Medicine: $386,430 over 3y, 0.0% of budgetKeck Graduate Institute of Applied Life Sciences: $375,000 over 2y, 0.6% of budgetNew York University: $239,725 over 2y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
  • Who funds Yale University ↗
  • Who funds Rush University Medical Center ↗
  • Who funds Children's Hospital Corporation ↗
  • Who funds DUKE UNIVERSITY ↗
  • Who funds BROWN UNIVERSITY ↗
  • Who funds Vanderbilt University Medical Center ↗
  • Who funds CHILDREN'S RESEARCH INSTITUTE ↗
  • Who funds Baylor College of Medicine ↗
  • Who funds Keck Graduate Institute of Applied Life Sciences ↗
  • Who funds New York University ↗

How much its grantees rely on government

Each dot is one organization Foundation for Angelman Syndrome Therapeutics funds: left to right is the share of its income from government, bottom to top the share from Foundation for Angelman Syndrome Therapeutics. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%23%45%68%90%share of the org’s income from government →median 12%
  • Yale University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–90%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Foundation for Angelman Syndrome Therapeutics?

Find your warmest path to Foundation for Angelman Syndrome Therapeutics through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 18 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2019, released 2019. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Foundation for Angelman Syndrome Therapeutics’ filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home