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Dystonia Medical Research Foundation at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Dystonia Medical Research Foundation

The foundation has three main purposes: (1)to advance dystonia research by awarding grants to basic, translational, and clinical investigators and to medical/scientific institutions committed to finding the cause and cure for all forms of dystonia; (2)to promote dystonia awareness by sponsoring workshops and symposiums for medical…

$1.1M
Granted FY2025still arriving
9
Grants FY2025still arriving
9
States reached
$157k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2018 to 2024.

Health$4.2M
02FY2025 · 9 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 9 grants below total $794,689, the rows itemized in this filing. The $1,130,358 headline is the total grant expense on the return; the other $335,669 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • $10k–50k1 grant · $47k
  • $50k–250k8 grants · $747k
$91,956
Median grant
9
States reached
$7.1M
Total assets
Largest grants
RecipientAmount
Duke University Medical Ctr$156,957
UNIV OF ALABAMA BIRMINGHAM$91,957
Yale University$91,957
University of Pittsburgh$91,956
VIRGINIA POLYTECHNIC$91,956
University of California SF$75,000
Childrens Hospital Corp$75,000
UNIVERSITY OF MICHIGAN$72,597
Emory University$47,309
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY18–25) land where the poverty rate runs at 15%, against an area that typically sits at 12%. 74% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 12%Mass General Hospital: $78k → 16%Baylor College of Medicine: $65k → 11%Salk Inst for Biological Stud: $64k → 11%Icahn Schl of Med at Mt Sinai: $65k → 17%Baylor College of Medicine: $67k → 16%UNIVERSITY OF MICHIGAN: $96k → 14%UNIV OF ALABAMA BIRMINGHAM: $92k → 16%WASHINGTON UNIV SCHOOL OF MED: $78k → 21%Duke University Medical Ctr: $157k → 11%Emory University: $65k → 14%University of Cincinnati: $65k → 16%CASE WESTERN RESERVE: $96k → 17%Rush Univ Medical Center: $6k → 14%VIRGINIA POLYTECHNIC: $92k → 21%VIRGINIA COMMONWEALTH: $80k → 22%Mass General Hospital: $78k → 16%Regents of the Univ of Minn: $50k → 11%Salk Inst for Biological Stud: $52k → 11%Icahn Schl of Med at Mt Sinai: $65k → 17%Baylor College of Medicine: $67k → 16%UNIVERSITY OF MICHIGAN: $92k → 14%WASHINGTON UNIV SCHOOL OF MED: $69k → 21%Duke University Medical Ctr: $156k → 11%Emory University: $65k → 14%CASE WESTERN RESERVE: $92k → 17%VIRGINIA POLYTECHNIC: $91k → 21%VIRGINIA COMMONWEALTH: $77k → 22%Mass General Hospital: $50k → 16%Regents of the Univ of Minn: $50k → 11%Icahn Schl of Med at Mt Sinai: $50k → 17%Baylor College of Medicine: $62k → 16%UNIVERSITY OF MICHIGAN: $73k → 14%Duke University Medical Ctr: $130k → 11%Emory University: $51k → 14%Cleveland VA Med Res & Educ F: $65k → 17%Baylor College of Medicine: $53k → 16%Duke University Medical Ctr: $50k → 11%Emory University: $51k → 14%CLEVELAND VA MED RES & ED FD: $65k → 17%Baylor College of Medicine: $38k → 16%Duke University Medical Ctr: $12k → 11%Emory University: $47k → 14%Emory University: $13k → 14%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

MN
IL
MI
NY
MA
OH
PA
CT
CA
MO
VA
TN
NC
AL
GA
TX
FL

Grants abroad, by region: $344k on the FY2025 return

Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$253k · 73% · 1 grant

Stated purpose: MEDICAL RESEARCH

Australia$92k · 27% · 1 grant

Stated purpose: MEDICAL RESEARCH

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

94%of every dollar goes to organizations it has funded before.
$4.2M · 18 repeat orgs$251k to everyone else

Grantees it renews have grown median revenue +41% since the first grant, against +27% for those funded once.

18 repeat relationships: 6 still active in FY2025, 12 since wound down; 2 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

18
3

Total granted

$4.2M
$84k

Median revenue growth · since first grant

+41%
+27%

Still filing today

61%
67%

New vs renewed · share of each year

In FY2025, 76% of grant dollars renewed an existing relationship; $167k went to new ones.

50%100%’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23’24’25
EducationHealthScience & TechPhilanthropyOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • DUKE UNIVERSITY
    5× · 2018–2025 · $505k · revenue +41%
  • BC
    Baylor College of Medicine
    6× · 2019–2024 · $352k · revenue +47%
  • EU
    Emory University
    6× · 2018–2025 · $292k · revenue +61%

Funded once

  • TU
    THE UNIVERSITY OF CINCINNATI FOUNDATIONgraduated
    one grant, 2019 · $65k · revenue +27%
  • RU
    REGENTS UNIV OF CALIFORNIA
    one grant, 2023 · $13k
  • RU
    Rush University Medical Center
    one grant, 2023 · $6k · revenue +4%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
3
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
4
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
5
Trustees of the University of Pennsylvania

The trustees of the university of pennsylvania (the "university") sees itself as having a public service mission. in such regard, the university aims to provide a rich and diverse educational environment for its students; to pioneer…

Education
6
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
7
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
8
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
9
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
10
University of Chicago Medical Center

Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…

Health
11
The Board of Trustees of the Leland Stanford Junior University

Stanford university is one of a select group of american universities that have achieved eminence in both undergraduate and graduate education and research - cont'd sch o.

Education
12
Massachusetts Eye & Ear Infirmary

THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…

Health
How this is measured
The grantee most central to the portfolio’s shape is Cornell University; the most unlike its peers is Children's Hospital Corporation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

16 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 16 of the 24 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
16/16
Grantees still filing
13/16
Grew since first funded

Where the money sits, by cause and then by grantee

Yale University: $535,635 · EducationYale UniversityDUKE UNIVERSITY: $504,626 · EducationDUKE UNIVERSITYBaylor College of Medicine: $351,674 · EducationBaylor College of MedicineEmory University: $291,627 · EducationEmory UniversityCASE WESTERN RESERVE UNIVERSITY: $187,300 · EducationCASE WESTERN RESERVE UNIVERSITYICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $180,000 · EducationICAHN SCHOOL OF MEDICINE AT MOUNT SINAICornell University: $170,000 · EducationCornell UniversityWASHINGTON UNIVERSITY: $146,722 · EducationWASHINGTON UNIVERSITYUNIVERSITY OF PITTSBURGH: $91,956 · Education+1 more: $70,000 · EducationUNIVERSITY OF CALIFORNIA SAN FRANCISCO: $634,369 · OtherUNIVERSITY OF CALIFORNIA SAN FRANCISCOVCUVCU HEALTH CAMPUS: $339,217 · OtherVCUVCU HEALTH CAMPUSREGENTS OF THE UNIVERSITY OF MICHIGAN: $260,515 · OtherREGENTS OF THE UNIVERSITY OF MICHIGANUNIVERSITY OF ALABAMA AT BIRMINGHAM: $238,679 · OtherUNIVERSITY OF ALABAMA AT BIRMINGHAMMASS GENERAL BRIGHAM INCORPORATED: $205,158 · OtherMASS GENERAL BRIGHAM INCORPORATEDUNIVERSITY OF FLORIDA: $130,000 · OtherUNIVERSITY OF FLORIDAUNIVERSITY OF MINNESOTA: $100,000 · Other+1 more: $13,110 · OtherCLEVELAND VA MEDICAL RESEARCH AND EDUCATION FOUNDATION: $130,000 · HealthTHE FEINSTEIN INSTITUTES FOR MEDICAL RESEARCH: $116,303 · HealthChildren's Hospital Corporation: $75,000 · Health+1 more: $5,752 · HealthThe Salk Institute for Biological Studies: $116,099 · Science & TechTHE UNIVERSITY OF CINCINNATI FOUNDATION: $65,000 · Philanthropy
Education$2,529,540Other$1,921,048Health$327,055Science & Tech$116,099Philanthropy$65,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetYale University: $535,635 over 6y, 0.0% of budgetDUKE UNIVERSITY: $504,626 over 5y, 0.0% of budgetBaylor College of Medicine: $351,674 over 6y, 0.0% of budgetEmory University: $291,627 over 6y, 0.0% of budgetCASE WESTERN RESERVE UNIVERSITY: $187,300 over 2y, 0.0% of budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $180,000 over 3y, 0.0% of budgetCornell University: $170,000 over 5y, 0.0% of budgetWASHINGTON UNIVERSITY: $146,722 over 2y, 0.0% of budgetCLEVELAND VA MEDICAL RESEARCH AND EDUCATION FOUNDATION: $130,000 over 2y, 1.4% of budgetTHE FEINSTEIN INSTITUTES FOR MEDICAL RESEARCH: $116,303 over 2y, 0.1% of budgetThe Salk Institute for Biological Studies: $116,099 over 2y, 0.0% of budgetUNIVERSITY OF PITTSBURGH: $91,956 over 1y, 0.0% of budgetChildren's Hospital Corporation: $75,000 over 1y, 0.0% of budgetUNIVERSITY OF MEMPHIS FOUNDATION: $70,000 over 2y, 0.1% of budgetTHE UNIVERSITY OF CINCINNATI FOUNDATION: $65,000 over 1y, 0.1% of budgetRush University Medical Center: $5,752 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds Yale University ↗
  • Who funds DUKE UNIVERSITY ↗
  • Who funds Baylor College of Medicine ↗
  • Who funds Emory University ↗
  • Who funds CASE WESTERN RESERVE UNIVERSITY ↗
  • Who funds ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ↗
  • Who funds Cornell University ↗
  • Who funds WASHINGTON UNIVERSITY ↗
  • Who funds CLEVELAND VA MEDICAL RESEARCH AND EDUCATION FOUNDATION ↗
  • Who funds THE FEINSTEIN INSTITUTES FOR MEDICAL RESEARCH ↗
  • Who funds The Salk Institute for Biological Studies ↗
  • Who funds UNIVERSITY OF PITTSBURGH ↗
  • Who funds Children's Hospital Corporation ↗
  • Who funds UNIVERSITY OF MEMPHIS FOUNDATION ↗
  • Who funds THE UNIVERSITY OF CINCINNATI FOUNDATION ↗
  • Who funds Rush University Medical Center ↗

How much its grantees rely on government

Each dot is one organization Dystonia Medical Research Foundation funds: left to right is the share of its income from government, bottom to top the share from Dystonia Medical Research Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%13%25%38%50%share of the org’s income from government →median 12%
  • Yale University: 12% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–50%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 24 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Dystonia Medical Research’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home