· Public charity
Dystonia Medical Research Foundation
The foundation has three main purposes: (1)to advance dystonia research by awarding grants to basic, translational, and clinical investigators and to medical/scientific institutions committed to finding the cause and cure for all forms of dystonia; (2)to promote dystonia awareness by sponsoring workshops and symposiums for medical…
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2018–2024.
Where the money goes
Your grants by size, and where they go.
The 7 grants below total $709,392 — the rows itemised in this filing. The $973,113 headline is the total grant expense reported on the return, so the remaining $263,721 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
| Recipient | Amount |
|---|---|
| Yale University | $181,091 |
| Duke University Medical Ctr | $155,545 |
| University of California SF | $99,978 |
| VIRGINIA POLYTECHNIC | $90,545 |
| Baylor College of Medicine | $66,718 |
| Icahn Schl of Med at Mt Sinai | $65,000 |
| Emory University | $50,515 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY18–24) land where the poverty rate runs at 15%, against an area that typically sits at 12%. 75% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $264k on the FY2024 return
Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: MEDICAL RESEARCH
Stated purpose: MEDICAL RESEARCH
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +41% since the first grant, against +27% for the ones you funded once.
18 repeat relationships — 6 still active in FY2024, 12 since wound down.
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2024, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- BCBaylor College of Medicine6× · 2019–2024 · $352k · revenue +47%
DUKE UNIVERSITY4× · 2018–2024 · $348k · revenue +41%- EUEmory University5× · 2018–2024 · $244k · revenue +61%
Funded once
- TUTHE UNIVERSITY OF CINCINNATI FOUNDATIONgraduatedone grant, 2019 · $65k · revenue +27%
- RUREGENTS UNIV OF CALIFORNIAone grant, 2023 · $13k
- RURush University Medical Centerone grant, 2023 · $6k · revenue +4%
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
See Form 990, Part I, Line 1, Description of Organization Mission.
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…
Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…
The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…
The trustees of the university of pennsylvania (the "university") sees itself as having a public service mission. in such regard, the university aims to provide a rich and diverse educational environment for its students; to pioneer…
Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…
Stanford university is one of a select group of american universities that have achieved eminence in both undergraduate and graduate education and research - cont'd sch o.
The university's goal in the coming decade is to advance learning through the integration of teaching, research and service to others. the core of this goal is to prepare graduates to engage with the world and lead lives of meaning. to do…
Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…
Wake Forest University, a 501(c)(3) institution of higher education, is dedicated to the pursuit of excellence in the liberal arts and in graduate and professional education. The organization is comprised of seven constituent parts: Wake…
For reference, the grantee most central to the portfolio’s shape is Cornell University and the most unlike its peers is Cleveland Va Medical Research and Education Foundation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
14 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 14 of the 22 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds Yale University ↗
- Who funds Baylor College of Medicine ↗
- Who funds DUKE UNIVERSITY ↗
- Who funds Emory University ↗
- Who funds CASE WESTERN RESERVE UNIVERSITY ↗
- Who funds ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ↗
- Who funds Cornell University ↗
- Who funds WASHINGTON UNIVERSITY ↗
- Who funds CLEVELAND VA MEDICAL RESEARCH AND EDUCATION FOUNDATION ↗
- Who funds THE FEINSTEIN INSTITUTES FOR MEDICAL RESEARCH ↗
- Who funds The Salk Institute for Biological Studies ↗
- Who funds UNIVERSITY OF MEMPHIS FOUNDATION ↗
- Who funds THE UNIVERSITY OF CINCINNATI FOUNDATION ↗
- Who funds Rush University Medical Center ↗
Government reliance of your grantees
Every dot is one organization Dystonia Medical Research Foundation funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- Yale University — 12% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.