Illinois · Public charity
Dystonia Medical Research Foundation
The foundation has three main purposes: (1)to advance dystonia research by awarding grants to basic, translational, and clinical investigators and to medical/scientific institutions committed to finding the cause and cure for all forms of dystonia; (2)to promote dystonia awareness by sponsoring workshops and symposiums for medical…
- $1.1M
- Granted FY2025(still arriving)
- 9
- Itemized grants FY2025
- 6
- Organizations funded FY2024
- 0%
- First-time grantees FY2024
- Itemized, FY2025
- $795k
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $91,956
- Largest grant, FY2025
- $156,957
- Organizations funded a year
- 6 to 10
- FY2018 to FY2024
- States reached, FY2025
- 9
- Total assets, FY2025
- $7.1M
How open it is to new grantees
In FY2024, 0% of the organizations Dystonia Medical Research Foundation funded were first-time grantees, receiving 0% of its grant dollars.
New vs renewed · share of each year
In FY2024, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 8 | $703k | 25% |
| FY2024 | 6 | $528k | 0% |
| FY2023 | 8 | $519k | 25% |
| FY2022 | 8 | $691k | 38% |
| FY2021 | 9 | $498k | 11% |
| FY2020 | 7 | $374k | 29% |
| FY2019 | 10 | $520k | 40% |
| FY2018 | 9 | $590k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2018 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2018 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| University of California San Francisco | $634,369 | 6 | n/a |
| Duke University | $504,626 | 5 | 0% |
| Baylor College of Medicine | $351,674 | 6 | 0% |
| Vcuvcu Health Campus | $339,217 | 4 | n/a |
| Emory University | $291,627 | 6 | 0% |
| Regents of the University of Michigan | $260,515 | 3 | n/a |
| University of Alabama at Birmingham | $238,679 | 3 | n/a |
| Mass General Brigham Incorporated | $205,158 | 3 | n/a |
| Case Western Reserve University | $187,300 | 2 | 0% |
| Icahn School of Medicine at Mount Sinai | $180,000 | 3 | 0% |
Show all 23 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| University of California San Francisco | $634,369 | 6 | n/a |
| Duke University | $504,626 | 5 | 0% |
| Baylor College of Medicine | $351,674 | 6 | 0% |
| Vcuvcu Health Campus | $339,217 | 4 | n/a |
| Emory University | $291,627 | 6 | 0% |
| Regents of the University of Michigan | $260,515 | 3 | n/a |
| University of Alabama at Birmingham | $238,679 | 3 | n/a |
| Mass General Brigham Incorporated | $205,158 | 3 | n/a |
| Case Western Reserve University | $187,300 | 2 | 0% |
| Icahn School of Medicine at Mount Sinai | $180,000 | 3 | 0% |
| Cornell University | $170,000 | 5 | 0% |
| Washington University | $146,722 | 2 | 0% |
| Cleveland Va Medical Research and Education Foundation | $130,000 | 2 | 1% |
| University of Florida | $130,000 | 2 | n/a |
| The Feinstein Institutes for Medical Research | $116,303 | 2 | 0% |
| The Salk Institute for Biological Studies | $116,099 | 2 | 0% |
| University of Minnesota | $100,000 | 2 | n/a |
| University of Pittsburgh | $91,956 | 1 | 0% |
| Children's Hospital Corporation | $75,000 | 1 | 0% |
| University of Memphis Foundation | $70,000 | 2 | 0% |
| The University of Cincinnati Foundation | $65,000 | 1 | 0% |
| Regents Univ of California | $13,110 | 1 | n/a |
| Rush University Medical Center | $5,752 | 1 | 0% |
Where it is load-bearing
Each grantee by its size and the share of its budget Dystonia Medical Research Foundation supplied at peak.
Tap a dot to name the grantee.
How this is measured
Compare Dystonia Medical Research Foundation with peer funders
About Dystonia Medical Research Foundation
- How much does Dystonia Medical Research Foundation give?
- Dystonia Medical Research Foundation reported 9 itemized grants totaling $794,689, out of $1,130,358 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 6 and 10 organizations a year over FY2018 to FY2024.
- What does Dystonia Medical Research Foundation fund?
- By grant dollars over FY2018 to FY2025, its largest causes are Health (100%).
- Who are Dystonia Medical Research Foundation's largest grantees?
- By total granted over FY2018 to FY2025: University of California San Francisco ($634k), Duke University ($505k), Baylor College of Medicine ($352k).
- Does Dystonia Medical Research Foundation fund new organizations?
- In FY2024, 0% of the organizations it funded were first-time grantees.
- Where is Dystonia Medical Research Foundation based?
- Dystonia Medical Research Foundation is based in IL.
Play a game based on Dystonia Medical Research’s filings →