· Private foundation
CHDI Foundation Inc Attn Ken Slutsky Tax Exempt Inst Grp
Its FY2024 filing reports that it funds preselected organizations and did not take unsolicited requests; check the foundation's own site before ruling it out.
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2021 to 2024.
Where the money goes
Grants by size, and the largest recipients.
By grant size · FY2024
- Under $10k3 grants · $18k
- $10k–50k1 grant · $30k
- $50k–250k3 grants · $405k
- $250k+1 grant · $337k
| Recipient | Amount |
|---|---|
| Huntington's Disease Society of America | $337,020 |
| Johns Hopkins University | $195,000 |
| University of Kentucky Research Foundation | $135,175 |
| National Institute of Diabetes and Digestive and Kidney Diseases | $75,000 |
| Huntington Study Group Ltd | $30,000 |
| Help 4 HD International Incorporated | $7,800 |
| Federation of American Societies for Experimental Biology | $5,000 |
| Hereditary Disease Foundation | $5,000 |
Does the money reach high-need areas?
Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.
Dollar for dollar, its grants (FY21–24) land where the poverty rate runs at 17%, against an area that typically sits at 11%. 96% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.
How this is measured
How this is measured
Who it funds again
Organizations funded in more than one year, against those funded once.
Grantees it renews have grown median revenue +34% since the first grant, against -3% for those funded once.
4 repeat relationships: 4 still active in FY2024, 0 since wound down; 4 grantees were first funded in FY2024 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2024, 88% of grant dollars renewed an existing relationship; $93k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
Backed again, and grew
- UOUniversity of Kentucky Research Foundation4× · 2021–2024 · $676k · revenue +34%
JOHNS HOPKINS UNIVERSITY3× · 2021–2024 · $670k · revenue +40%- HDHUNTINGTON'S DISEASE SOCIETY OF AMERICA INC4× · 2021–2024 · $657k · revenue -8%
Funded once
- HDHUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA INCone grant, 2023 · $10k · revenue -3%
How this is measured
Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.
Closest unfunded matches
The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.
To improve the lives of everyone impacted by huntington's disease by providing support, driving advocacy, and accelerating research.
The mission of the institute has remained constant since its founding in 1953. as its restated articles of incorporation state the primary purpose and objective of the howard hughes medical institute shall be the promotion of human…
Hmri advances scientific discovery through innovative biomedical research to improve health outcomes and inspire the next generation of scientists.
The health and environmental sciences institute (hesi) is a nonprofit institution whose mission is to engage scientists from academia, government, industry, nonprofit, and other research institutions to identify and resolve global health…
Provide diagnostic care and disease management to patients and their families dealing with huntingtons disease - no cost to patient or family
The hugo w. moser research institute at kennedy krieger, inc. (the "research institute") is an internationally recognized research facility finding answers to problems and injuries that affect a child's developing brain. researchers have…
Undergraduate, graduate, and professional education and research across a broad array of academic domains.
Sanford burnham prebys medical discovery institute's mission is to advance the biomedical sciences by cultivating the next generation of scientific leaders, providing meaningful opportunities for researchers of all backgrounds to learn,…
Hht foundation international, inc. is a not-for-profit organization dedicated to serving individuals affected by hereditary hemorrhagic telangiectasia (hht). the organization provides information to patients, family members, and healthcare…
Raise awareness and provide financial support to organizations dedicated to finding treatments, and ultimately, a cure for huntington's disease.
How this is measured
8 grantees tracked through their own filings, 2017–2025.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 8 of the 9 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Where the money sits, by cause and then by grantee
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
- Who funds University of Kentucky Research Foundation ↗
- Who funds JOHNS HOPKINS UNIVERSITY ↗
- Who funds HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC ↗
- Who funds HUNTINGTON STUDY GROUP LTD ↗
- Who funds HUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA INC ↗
- Who funds Help 4 HD International Inc ↗
- Who funds HUNTINGTON'S DISEASE FOUNDATION ↗
- Who funds FEDERATION OF AMERICAN SOCIETIES FOR EXPERIMENTAL BIOLOGY ↗
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.
Open a dossier: Fidelity Investments Charitable Gift Fund · Amazonsmile Foundation
How this is measured
How much its grantees rely on government
Each dot is one organization CHDI Foundation Inc Attn Ken Slutsky Tax Exempt Inst Grp funds: left to right is the share of its income from government, bottom to top the share from CHDI Foundation Inc Attn Ken Slutsky Tax Exempt Inst Grp. Bigger dots raise more.
- Federation of American Societies for Experimental Biology: 14% of income from government
- Johns Hopkins University: 12% of income from government
How this is measured
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