New York · Nonprofit
ZTTK SON-SHINE FOUNDATION
ZTTK SON-SHINE FOUNDATION (New York) receives grants from 10 organizations whose IRS filings report $883,800 to it, the largest being Silicon Valley Community Foundation ($800,000). 2 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $524k
- Funders on record
- 10
- Grants received
- $884k
- Net assets
- $489k
What Zttk Son-Shine Foundation does
Mission
The Zttk Son-Shine Foundation is committed to improving the lives of individuals with zttk by accelerating research to develop accessible and effective treatments and, ultimately, a cure. We focus on funding cutting-edge science, building strong support systems for the global zttk community, and raising awareness about zttk syndrome.
As stated on its FY2024 Form 990.
Programs
Admitted to the chan zuckerberg initiative rare as one network to benefit foundations focused on improving the lives of those inflicted with rare diseases.
$25 spent0% of program spendingCollecting patient samples from the zttk community to research drug repurposing with unravel biosciences.
$33,250 spent77% of program spendingAnnual family and research conference
$10,000 spent23% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $43,275.
Who funds it, year by year
Grant support over time, funder by funder — shade shows the grant size each year.
7 of 10 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 100% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of ZTTK SON-SHINE FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
ZTTK SON-SHINE FOUNDATION leans on a few funders — its largest provides 91% of grant income and the top three 96%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ZTTK SON-SHINE FOUNDATION.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
100% of ZTTK SON-SHINE FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $1k that is directly attributable, 100% of it comes from funders outside New York, across 3 states.
Funder states come from each funder’s own filing. $883k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like ZTTK SON-SHINE FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
92% of spending goes to programs.
Governance
Screen this organization
A dated, signed PDF of the compliance screen for ZTTK SON-SHINE FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds ZTTK SON-SHINE FOUNDATION?
- ZTTK SON-SHINE FOUNDATION (New York) receives grants from 10 organizations whose IRS filings report $883,800 to it, the largest being Silicon Valley Community Foundation ($800,000). 2 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does ZTTK SON-SHINE FOUNDATION have?
- IRS filings report 10 organizations giving $883,800 in grants to ZTTK SON-SHINE FOUNDATION, 2 of which have funded it in more than one year.
- Who is the largest funder of ZTTK SON-SHINE FOUNDATION?
- Silicon Valley Community Foundation is the largest funder on record, with $800,000 in grants. The full list of funders is on this page.
- How can an organization like ZTTK SON-SHINE FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Zttk Son-Shine →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2024–2024), and the filings of 10 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing