California · Nonprofit
SYSTEMIC JIA FOUNDATION
SYSTEMIC JIA FOUNDATION (California) receives grants from 6 organizations whose IRS filings report $648,394 to it, the largest being Silicon Valley Community Foundation ($615,000). 3 of them have funded it in more than one year, and 99% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $159k
- Funders on record
- 6
- Grants received
- $648k
- Net assets
- $107k
What Systemic Jia Foundation does
Mission
1. To support research relating to treatments and cure of systemic juvenile idiopathic arthritis (sjia); 2. Promote increased awareness, knowledge and understanding of sjia by medical professionals, the general public and families affected by sjia; 3. Promote mutual support through building and maintaining an extensive web-based or other network of information and resources for the general public and families.
As stated on its FY2024 Form 990.
Programs
Systemic Jia Foundation plans several types of fundraising: 1) donations from families with sjia: the Systemic Jia Foundation will reach out to families with sjia to both contribute and raise funds for the benefit of the Systemic Jia Foundation. The Systemic Jia Foundation will raise funds online, using fundraising sites such as crowdrise, stripe, facebook or fundraising functionality on our own website.2) event sponsorships from pharma companies: for any events the Systemic Jia Foundation organize, the Systemic Jia Foundation will reach out to pharma companies who are interested in sjia to give sponsorships at different levels to support the event.3) general: the Systemic Jia Foundation will undertake additional fundraising from a variety of sources including mail, email, personal and phone solicitations. The organization will create proposals and other materials that will be necessary to submit in order for the organization to receive grants and donations.4) grants from other charitable organizations. The Systemic Jia Foundation will raise additional funds from other charitable foundations.
$159,459 earned by the programConferences attended in 2024pres congress 2024 attended from september 11, 2024 to september 14, 2024 at gothenburg sweden.brief description: the pres (pediatric rheumatology european society) conference is an annual international event focused on advancements in pediatric rheumatology. It's a platform for healthcare professionals, researchers, and scientists to network, learn, and share their knowledge on diagnosing, treating, and managing rheumatic diseases in children and young people.
$3,445 spent3% of program spendingNextgen 2024 organized from wednesday november 13, 2024 to friday, november 15, 2024.description: nextgen conference (as with nextgen in previous years) aims to advance therapies for sjia, still's disease and mas. The specific focus in 2024 is on clinical trials and bone marrow transplantation as an option for refractory disease. The foundation invites all stakeholders to the table such as scientists, clinicians, patient and caregiver representatives, the fda / ema, and pharmaceutical companies.topics include:a comprehensive look at il18 (measuring it, role in disease, il18-driven clinical trials), therapeutic options for refractory patients (jak-inhibitors & beyond), upcoming clinical trials in sjia, still's & mas bone marrow transplantation for refractory patients.
$106,367 spent97% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $109,812.
The organization over time
Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $44k to $453k (+927%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of SYSTEMIC JIA FOUNDATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2018 → 2023: the base broadened from 1 funder to 2 funders, grant income rose $3k → $7k.
4 of 6 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 99% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
Left out of every figure on this page: $463k from one payer (the payer's own filing calls it a related party, largest The Sinha-Boutelle Foundation). These are real filings, and they are not money SYSTEMIC JIA FOUNDATION raised.
From the IRS filings of SYSTEMIC JIA FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
SYSTEMIC JIA FOUNDATION leans on a few funders — its largest provides 95% of grant income and the top three 99%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
99% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund SYSTEMIC JIA FOUNDATION.
Largest funder’s share by year: 2018 100% · 2020 100% · 2021 85% · 2022 95% · 2023 84% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
99% of SYSTEMIC JIA FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $5k that is directly attributable, 100% of it comes from funders outside California, across 2 states.
Funder states come from each funder’s own filing. $643k arriving through sponsors registered in 4 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
SYSTEMIC JIA FOUNDATION runs a healthier operating margin than half of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like SYSTEMIC JIA FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
77% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Part of a family of 1 related entity
- The Sinha-Boutelle Foundation · exempt
Screen this organization
A dated, signed PDF of the compliance screen for SYSTEMIC JIA FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds SYSTEMIC JIA FOUNDATION?
- SYSTEMIC JIA FOUNDATION (California) receives grants from 6 organizations whose IRS filings report $648,394 to it, the largest being Silicon Valley Community Foundation ($615,000). 3 of them have funded it in more than one year, and 99% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does SYSTEMIC JIA FOUNDATION have?
- IRS filings report 6 organizations giving $648,394 in grants to SYSTEMIC JIA FOUNDATION, 3 of which have funded it in more than one year.
- Who is the largest funder of SYSTEMIC JIA FOUNDATION?
- Silicon Valley Community Foundation is the largest funder on record, with $615,000 in grants. The full list of funders is on this page.
- How can an organization like SYSTEMIC JIA FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2018–2024), and the filings of 6 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing