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Wyoming · Nonprofit

SPINAL MUSCULAR ATROPHY FOUNDATION

SPINAL MUSCULAR ATROPHY FOUNDATION (Wyoming) receives grants from 6 organizations whose IRS filings report $104,000 to it, the largest being FRANK M HALLEY CHARITABLE TRUST ($75,000). 0 of them have funded it in more than one year.

Revenue FY2024
$20M
Funders on record
6
Grants received
$104k
Net assets
$46M
0/6 repeat funderspeak grant-dependency 21%
01What it does

What Spinal Muscular Atrophy Foundation does

Program

  1. See statement 9

    $872,624 spent

The program described on its FY2024 Form 990-PF.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($1.7M) Expenses 100 ($2.2M) Net assets 100 ($1.5M)2018 Revenue 311 ($5.2M) Expenses 190 ($4.1M) Net assets 171 ($2.6M)2019 Revenue 12 ($193k) Expenses 63 ($1.4M) Net assets 94 ($1.4M)2020 Revenue 206 ($3.4M) Expenses 121 ($2.6M) Net assets 147 ($2.2M)2021 Revenue 7 ($123k) Expenses 54 ($1.2M) Net assets 78 ($1.2M)2022 Revenue 1528 ($25M) Expenses 187 ($4.0M) Net assets 1495 ($23M)2023 Revenue 752 ($13M) Expenses 169 ($3.6M) Net assets 2086 ($31M)2024 Revenue 1174 ($20M) Expenses 219 ($4.7M) Net assets 3070 ($46M)
'17'18'19'20'21'22'23'24
Revenue (1174)Expenses (219)Net assets (3070)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $2.0M to $24M (+1084%).

$2.0M
$3.0M
$1.5M
$3.6M
$2.0M
$24M
$34M
$50M
'17'18'19'20'21'22'23'24
Total assetsTotal liabilities

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Board chair

Dinakar Singh

Board chairman

As listed on its FY2024 Form 990-PF.

'17'18'19'20'21'22'23'24
Listed1212111111111111
Joined·+1+0+0+0+0+0+0
No longer listed·1100000
03Who funds it

Who funds it, year by year

2017 → 2022: the base broadened from 1 funder to 3 funders, grant income rose $1k → $77k.

From the IRS filings of SPINAL MUSCULAR ATROPHY FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

SPINAL MUSCULAR ATROPHY FOUNDATION leans on a few funders — its largest provides 72% of grant income and the top three 97%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

72%
largest funder
97%
top three
~2
effective funders

Largest funder’s share by year: 2017 100% · 2021 96% · 2022 97% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

SPINAL MUSCULAR ATROPHY FOUNDATION draws 100% of its grant income from funders outside Wyoming, across 6 states in all.

MN
NY
IA
NJ
CA
OK

In-state vs out-of-state, by year

’17
’21
’22
Wyoming out of state home

Funder states come from each funder’s own filing. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

SPINAL MUSCULAR ATROPHY FOUNDATION holds deeper cash reserves than three-quarters of the 4,064 education nonprofits its size.

Months of reserve126.9mo · top quartile
Revenue growth (annualized)42% · top quartile

this organization peer median middle 50% of peers· 4,064 education nonprofits $10M–$100M, FY2024

Organizations like SPINAL MUSCULAR ATROPHY FOUNDATION

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Wyoming

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Screen this organization

A dated, signed PDF of the compliance screen for SPINAL MUSCULAR ATROPHY FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds SPINAL MUSCULAR ATROPHY FOUNDATION?
SPINAL MUSCULAR ATROPHY FOUNDATION (Wyoming) receives grants from 6 organizations whose IRS filings report $104,000 to it, the largest being FRANK M HALLEY CHARITABLE TRUST ($75,000). 0 of them have funded it in more than one year.
How many funders does SPINAL MUSCULAR ATROPHY FOUNDATION have?
IRS filings report 6 organizations giving $104,000 in grants to SPINAL MUSCULAR ATROPHY FOUNDATION.
Who is the largest funder of SPINAL MUSCULAR ATROPHY FOUNDATION?
FRANK M HALLEY CHARITABLE TRUST is the largest funder on record, with $75,000 in grants. The full list of funders is on this page.
How can an organization like SPINAL MUSCULAR ATROPHY FOUNDATION find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Wyoming. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 6 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing