Virginia · Nonprofit
SCA27B ATAXIA FOUNDATION
SCA27B ATAXIA FOUNDATION (Virginia) receives grants from 2 organizations whose IRS filings report $7,700 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($6,700). 0 of them have funded it in more than one year, and 87% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $51k
- Funders on record
- 2
- Grants received
- $8k
- Net assets
- $74k
What Sca27b Ataxia Foundation does
Mission
Our mission is to improve the quality of life of individuals and families affected by SCA27b while promoting research and treatments for Ataxia. We bring awareness, education, and resources to individuals and families affected by SCA27b. The foundation actively connects patients to Ataxia experts and researchers to accelerate solutions for SCA27b.
As stated on its FY2025 Form 990-EZ.
Program
Year 2025: 1) Attended and presented at patient & researcher conferences - Annual Ataxia Conference (Las Vegas), Ataxia Clinical Training (Las Vegas), International Congress of Ataxia Research (ICAR)(Amsterdam), EuroAtaxia (Amsterdam), National Ataxia Foundation's Face to Face meeting (Minneapolis), National Organization of Rare Diseases, TN chapter (Nashville). 2) Maintained & updated educational website sca27b.org, 3) Hosted monthly Zoom meetings for patients with invited guest speakers, 4) Collaborated with many other ataxia organizations: NAF, EuroAtaxia, FARA, Ataxie Canada, Ataxia UK, Ataxia Global Initiative (AGI). 5) Active member of AGI's SCA27B study group. 6) Raised funds to provide research grants in 2026. 7) Maintained private & public Facebook SCA27B Facebook groups. 7) Hosted webinars for genetic testing to members. 8) Distributed surveys for research data and will be published in 2026 with UChicago for paper on lifestyle/environmental factors that influence disease onset and progression. 9) Foundation membership is now over 1400 patients and researchers
$7,670 spent100% of program spending
The program described on its FY2025 Form 990-EZ. Program spending in total: $7,670.
The organization over time
Each line starts at 100 in 2023, so what you read is the shape rather than the size: 150 means half as much again as 2023, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $31k to $74k (+141%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of SCA27B ATAXIA FOUNDATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (24% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 3 reported years ran a deficit.
Leadership and staff
Chief executive
Mary Hogan
Executive Director
Board chair
Jennifer Austin
President of the Board of Directors
As listed on its FY2025 Form 990-EZ.
Who funds it, year by year
Grant support over time, funder by funder — shade shows the grant size each year.
1 of 2 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 87% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of SCA27B ATAXIA FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
SCA27B ATAXIA FOUNDATION leans on a few funders — its largest provides 87% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
87% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund SCA27B ATAXIA FOUNDATION.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
87% of SCA27B ATAXIA FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $1k that is directly attributable, 100% of it comes from funders outside Virginia, across 1 state.
Funder states come from each funder’s own filing. $7k arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
SCA27B ATAXIA FOUNDATION runs a healthier operating margin than three-quarters of the 1,330 membership benefit nonprofits its size.
this organization peer median middle 50% of peers· 1,330 membership benefit nonprofits under $100k, FY2025
Organizations like SCA27B ATAXIA FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Virginia
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for SCA27B ATAXIA FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds SCA27B ATAXIA FOUNDATION?
- SCA27B ATAXIA FOUNDATION (Virginia) receives grants from 2 organizations whose IRS filings report $7,700 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($6,700). 0 of them have funded it in more than one year, and 87% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does SCA27B ATAXIA FOUNDATION have?
- IRS filings report 2 organizations giving $7,700 in grants to SCA27B ATAXIA FOUNDATION.
- Who is the largest funder of SCA27B ATAXIA FOUNDATION?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $6,700 in grants. The full list of funders is on this page.
- How can an organization like SCA27B ATAXIA FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Virginia. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2023–2025), and the filings of 2 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing