Georgia · Nonprofit
PHACE SYNDROME COMMUNITY INC
PHACE SYNDROME COMMUNITY INC (Georgia) receives grants from 6 organizations whose IRS filings report $20,461 to it, the largest being AMERICAN ONLINE GIVING FOUNDATION INC ($6,000). 2 of them have funded it in more than one year, and 66% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2023
- $56k
- Funders on record
- 6
- Grants received
- $20k
- Net assets
- $132k
What Phace Syndrome Community Inc does
Mission
Research and awareness for phace syndrome.
As stated on its FY2023 Form 990-EZ.
Programs
The phace syndrome community hosted a two-day hybrid meeting for individuals and families affected by phace syndrome. The meeting consisted of in-person medical talks by clinicians and other professionals, on topics most related to the concerns and challenges those with phace syndrome encounter. The meeting was offered in-person and through zoom, with opportunities for attendees to interact with the medical professionals and other meeting attendees to discuss treatment, diagnosis, and other concerns they have living with phace syndrome.
$54,924 spent68% of program spendingThe phace syndrome community has an emphasis on research, and finding the cause of phace syndrome. Through support of the phace syndrome registry at stanford, both fiscally and through promotion of the registry on various communication platforms, the phace syndrome community continues to be in the forefront of research. The phace syndrome registry serves to provide investigators with invaluable data, as well as research opportunities and training of the next generation of physician scientists.
$6,892 spent9% of program spendingThe phace syndrome community hosts monthly zoom meetings for those affected with phace syndrome, families and caregivers, in addition to supporting families through online social media groups. The active social media presence provides affected individuals, families and caregivers, with unbiased information on the current research, diagnosis criteria, and treatment of phace syndrome.
$18,842 spent23% of program spending
The 3 programs described on its FY2023 Form 990-EZ. Program spending in total: $80,658.
The organization over time
Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $175k to $132k (−25%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
95% of PHACE SYNDROME COMMUNITY INC’s revenue is contributions — about as donation-reliant as the typical peer (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 5 reported years ran a deficit.
Who funds it, year by year
2020 → 2023: the base narrowed from 4 funders to 1 funder, grant income fell $7k → $559.
3 of 6 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 66% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of PHACE SYNDROME COMMUNITY INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
PHACE SYNDROME COMMUNITY INC leans on a few funders — its largest provides 29% of grant income and the top three 78%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
66% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund PHACE SYNDROME COMMUNITY INC.
Largest funder’s share by year: 2020 71% · 2021 72% · 2022 51% · 2023 100% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
66% of PHACE SYNDROME COMMUNITY INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $7k that is directly attributable, 72% of it comes from Georgia funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $14k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
PHACE SYNDROME COMMUNITY INC has grown faster than half of the 9,774 health nonprofits its size.
this organization peer median middle 50% of peers· 9,774 health nonprofits under $100k, FY2023
Organizations like PHACE SYNDROME COMMUNITY INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Georgia
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
98%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for PHACE SYNDROME COMMUNITY INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds PHACE SYNDROME COMMUNITY INC?
- PHACE SYNDROME COMMUNITY INC (Georgia) receives grants from 6 organizations whose IRS filings report $20,461 to it, the largest being AMERICAN ONLINE GIVING FOUNDATION INC ($6,000). 2 of them have funded it in more than one year, and 66% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does PHACE SYNDROME COMMUNITY INC have?
- IRS filings report 6 organizations giving $20,461 in grants to PHACE SYNDROME COMMUNITY INC, 2 of which have funded it in more than one year.
- Who is the largest funder of PHACE SYNDROME COMMUNITY INC?
- AMERICAN ONLINE GIVING FOUNDATION INC is the largest funder on record, with $6,000 in grants. The full list of funders is on this page.
- How can an organization like PHACE SYNDROME COMMUNITY INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Georgia. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Phace Syndrome →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2023 (financials across 2019–2023), and the filings of 6 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing