Nonprofit screen
Screen a listNational Organization for Rare Disorders Inc
Can you give?
Listed with the IRS. Every screen came back clear.
A 501(c)(3) on Publication 78 and the IRS master file.
- IRS nonprofit listing
- No issue
- Revocation
- None
- IRS files
- Agree
- Sanctions
- No match
- IRS bulletin
- No notice
- California
- Registered
- Charity type
- 509(a)(1)
$35Mrevenue
FY2025 · −42% in 3 yrs116staff
8 of 8years filed
’18’19’20’21’22’23’24’25
Revenue and spendingRevenueSpendingDeficit
Where the money goes FY2025 · $40M spent
Programs$33M81%Management and general$3.9M10%Fundraising$3.7M9%990 FY2025 · Part IX line 25
Nothing to check in the filings
In its favor2
Strong governance
15 of 16 board members independent. Conflict-of-interest and whistleblower policies, audited financial statements, board reviews the 990.
990 Part VIA history of government grants
Government grants on 3 of its 3 returns, 3% of revenue in FY2025. $1.9M is traced federal awards from Department of Health and Human Services.
990 Part VIII · USAspending93funders
$2.5Ma year, last 3 years
70%from its largest funder
Funder’17’18’19’20’21’22’23Critical Path InstituteSince FY2020$712k$2.1M$1.6M$1.5MThe Alexion Charitable Foundation IncOn and off$600kNational Tuberous Sclerosis AssociationSince FY2019$50k$65k$225k$75k$125k(Acpmp)Appendix Cancerpseudomyxoma Peritonei Research FoundationOn and off$150k$100k$100kNorthwestern UniversitySince FY2020$48k$94k$42k$83kJose Antonio Grifols Lucas Foundation IncNew in FY2023$112kDonor-advised giftsDonors not disclosed$10k$42k$26k$814k$334k$336k$324k58 other fundersUp to $50k a year each$38k$26k$31k$106k$96k$219k$190k
FundedThrough a donor-advised fund