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Florida · Nonprofit

FAMILIES FOR FRAGILE X INC

FAMILIES FOR FRAGILE X INC (Florida) receives grants from 4 organizations whose IRS filings report $40,960 to it, the largest being The Selma Oritt Foundation Inc ($25,509). 3 of them have funded it in more than one year.

Revenue FY2024
$18k
Funders on record
4
Grants received
$41k
Net assets
$0
3/4 repeat funderspeak grant-dependency 63%
01What it does

What Families for Fragile X Inc does

Mission

To support families with fragile x syndrome.

As stated on its FY2024 Form 990.

Program

  1. To support research and education on fragile x syndrome

    $226,833 spentof which $226,833 as grants
    100% of program spending

The program described on its FY2024 Form 990. Program spending in total: $226,833.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.

100 = 20172017 Revenue 100 ($73k) Expenses 100 ($100k) Net assets 100 ($37k)2018 Revenue 187 ($136k) Expenses 115 ($115k) Net assets 156 ($57k)2019 Revenue 161 ($117k) Expenses 78 ($78k) Net assets 261 ($96k)2020 Revenue 50 ($36k) Expenses 12 ($12k) Net assets 331 ($122k)2021 Revenue 19 ($14k) Expenses 13 ($13k) Net assets 324 ($119k)2022 Revenue 238 ($173k) Expenses 90 ($90k) Net assets 537 ($197k)2023 Revenue 31 ($22k) Expenses 1 ($676) Net assets 594 ($218k)2024 Revenue 24 ($18k) Expenses 228 ($228k) Net assets 0 ($0)
'17'18'19'20'21'22'23'24
Revenue (24)Expenses (228)Net assets (0)

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $218k to $0 (−100%).

$37k
$57k
$96k
$122k
$119k
$202k
$218k
$0
'17'18'19'20'21'22'23'24
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 8 reported years ran a deficit.

−$27k
’17
$21k
’18
$39k
’19
$25k
’20
$754
’21
$82k
’22
$22k
’23
−$210k
’24
677
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

202220232024
Listed666
Joined·+0+0
No longer listed·00
03Who funds it

Who funds it, year by year

2017 → 2023: the base held at 2 funders, grant income fell $2k → $623.

2 of 4 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 26% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of FAMILIES FOR FRAGILE X INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

FAMILIES FOR FRAGILE X INC leans on a few funders — its largest provides 62% of grant income and the top three 98%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

26% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund FAMILIES FOR FRAGILE X INC.

62%
largest funder
98%
top three
~2
effective funders

Largest funder’s share by year: 2017 50% · 2018 100% · 2019 53% · 2020 86% · 2021 97% · 2022 86% · 2023 80% — growing more concentrated.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

100% of FAMILIES FOR FRAGILE X INC's grant income comes from Florida funders.

FL

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
’23
Florida out of state home

Funder states come from each funder’s own filing. $11k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Organizations like FAMILIES FOR FRAGILE X INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Florida

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

100% of spending goes to programs.

Program 100%Management 0%Fundraising 0%

Governance

6
board members
100%
independent
–Conflict-of-interest policy–Whistleblower policy–Document retention–Board reviewed the 990–Audited financials

Public support

59%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Screen this organization

A dated, signed PDF of the compliance screen for FAMILIES FOR FRAGILE X INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds FAMILIES FOR FRAGILE X INC?
FAMILIES FOR FRAGILE X INC (Florida) receives grants from 4 organizations whose IRS filings report $40,960 to it, the largest being The Selma Oritt Foundation Inc ($25,509). 3 of them have funded it in more than one year.
How many funders does FAMILIES FOR FRAGILE X INC have?
IRS filings report 4 organizations giving $40,960 in grants to FAMILIES FOR FRAGILE X INC, 3 of which have funded it in more than one year.
Who is the largest funder of FAMILIES FOR FRAGILE X INC?
The Selma Oritt Foundation Inc is the largest funder on record, with $25,509 in grants. The full list of funders is on this page.
How can an organization like FAMILIES FOR FRAGILE X INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Florida. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 4 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing