New York · Nonprofit
CYSTIC FIBROSIS FAMILY CONNECTION INC
CYSTIC FIBROSIS FAMILY CONNECTION INC (New York) receives grants from 1 organization whose IRS filings report $1,078 to it, the largest being AMAZONSMILE FOUNDATION ($1,078). 1 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $5k
- Funders on record
- 1
- Grants received
- $1k
- Net assets
- $79k
What Cystic Fibrosis Family Connection Inc does
Mission
Provide support to people living with cystic fibrosis.
As stated on its FY2025 Form 990-EZ.
Programs
Financial support to offset personal expenses during hospitalizations (e.g., parking and food). Support packets are delivered to, and distributed by, hospital staff. Due to HIPAA requirements, we are not provided with recipient names. Estimated admissions of 30.
$0 spentof which $1,736 as grants0% of program spendingSponsoring events to promote the exchange of information relating to cystic fibrosis and coping with the challenges of living with the disease. The target audience are people living with cystic fibrosis, their families and their caregivers. Approximately 50 attendees.
$3,313 spent100% of program spendingProviding payments to individuals to cover emergency expenses where no other resources are available. Seven grants were made in this fiscal year.
$0 spentof which $3,500 as grants0% of program spending
The 3 programs described on its FY2025 Form 990-EZ. Program spending in total: $3,313.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $83k to $73k (−12%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
97% of CYSTIC FIBROSIS FAMILY CONNECTION INC’s revenue is contributions — more donation-reliant than the typical peer (52% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.
Who funds it, year by year
2020 → 2023: the base held at 1 funder, grant income rose $226 → $238.
1 of 1 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 100% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CYSTIC FIBROSIS FAMILY CONNECTION INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
100% of CYSTIC FIBROSIS FAMILY CONNECTION INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Too little is directly attributable to place on a map.
Funder states come from each funder’s own filing. $1k arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CYSTIC FIBROSIS FAMILY CONNECTION INC's revenue fell 74% between 2017 and 2025.
this organization peer median middle 50% of peers· 2,318 housing & shelter nonprofits under $100k, FY2025
Organizations like CYSTIC FIBROSIS FAMILY CONNECTION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
99%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for CYSTIC FIBROSIS FAMILY CONNECTION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CYSTIC FIBROSIS FAMILY CONNECTION INC?
- CYSTIC FIBROSIS FAMILY CONNECTION INC (New York) receives grants from 1 organization whose IRS filings report $1,078 to it, the largest being AMAZONSMILE FOUNDATION ($1,078). 1 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does CYSTIC FIBROSIS FAMILY CONNECTION INC have?
- IRS filings report 1 organization giving $1,078 in grants to CYSTIC FIBROSIS FAMILY CONNECTION INC, 1 of which have funded it in more than one year.
- Who is the largest funder of CYSTIC FIBROSIS FAMILY CONNECTION INC?
- AMAZONSMILE FOUNDATION is the largest funder on record, with $1,078 in grants. The full list of funders is on this page.
- How can an organization like CYSTIC FIBROSIS FAMILY CONNECTION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Cystic Fibrosis Family Connection →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 1 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing