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California · Nonprofit

COALITION FOR HEADACHE AND MIGRAINE PATIENTS

COALITION FOR HEADACHE AND MIGRAINE PATIENTS (California) receives grants from 2 organizations whose IRS filings report $25,050 to it, the largest being LUNDBECK US CHARITABLE FUND ($25,000). 0 of them have funded it in more than one year.

Revenue FY2024
$413k
Funders on record
2
Grants received
$25k
Net assets
$428k
0/2 repeat funderspeak grant-dependency 2%
01What it does

What Coalition for Headache and Migraine Patients does

Mission

CHAMP mission is to improve the lives of people with migraine, cluster, and other headache diseases by aligning coalition participants and empowering patient voices.

As stated on its FY2024 Form 990.

Programs

On its FY2024 return the organization reported starting a significant new program.

CHAMP stopped incubation of Migraine at School programming and delivered all program materials to the Danielle Byron Henry Foundation, resulting in a reduction in CHAMP staffing. CHAMP also opted to change the annual in-person Retreat Migraine event to a virtual webinar in an effort to 1) re-evaluate the program for ROI and impact on patient community and 2) recognize shift in funding support for Retreat Migraine programming.

Its own explanation, from Schedule O of that return (Part III, line 2).

  1. Migraine at School collects and creates the best resources to ensure every student has the opportunity to flourish in school. This program as active in 126 schools in 36 states. It currently has 100+ volunteer ambassadors in the U.S.

    $134,870 spent$6,215 earned by the program
    47% of program spending
  2. In 2024, CHAMP connected more than 80 patients, doctors, advocacy organizations, industry partners and national nonprofit leaders to strategize and partner on headache disease challenges, including diagnosis timeline, barriers to treatment and care, and disease education efforts for patients and healthcare providers. Action items developed out of the 2024 Elevate meetings include plans for headache language into medical exam processes, expanded provider community engagement, and enhanced research engagement and headache representation.

    $70,281 spent
    25% of program spending
  3. In 2024, Retreat Migraine was produced in a virtual format and continued to be the only conference in the U.S. created by and designed for people living with migraine disease. With a focus on education, advocacy and community-building from the patient-perspective, this experiential event brings together patients and care-givers with leading migraine stakeholders. The event hosted 427 attendees and included 4 patient stories and 5 education sessions.

    $48,208 spent
    17% of program spending
  4. The Coalition for Headache and Migraine Patients (CHAMP) engages its 22 coalition leaders in meetings throughout the year to communicate, educate and advocate on behalf of people living with headache diseases. In 2024, we reached an estimated 1.4 million individuals through our collective social media efforts. In addition, the Coalition leveraged Migraine and Headache Awareness Month to continue unified messaging across the headache disease community. The theme, Myth Truth Action, was used to help end myths about headache disease and illuminate the truth of the debilitating symptoms. Outcomes of the campaign included 546 media pickups, 170.3 million audience reach and 45,000 website views.

    $32,710 spent
    11% of program spending

The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $286,069.

02The organization over time

The organization over time

Each line starts at 100 in 2021, so what you read is the shape rather than the size: 150 means half as much again as 2021, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20212021 Revenue 100 ($2.1M) Expenses 100 ($1.7M) Net assets 100 ($1.2M)2022 Revenue 64 ($1.3M) Expenses 108 ($1.8M) Net assets 59 ($679k)2023 Revenue 64 ($1.3M) Expenses 90 ($1.5M) Net assets 45 ($519k)2024 Revenue 20 ($413k) Expenses 30 ($504k) Net assets 37 ($428k)
2021202220232024
Revenue (20)Expenses (30)Net assets (37)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $1.6M to $716k (−55%).

$1.2M
$1.6M
$716k
$473k
2021202220232024
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

97% of COALITION FOR HEADACHE AND MIGRAINE PATIENTS’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).

This organization
Typical peer · 14,893 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 4 reported years ran a deficit.

$441k
’21
−$462k
’22
−$136k
’23
−$91k
’24
8.2
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Susan Doughty

Executive Director

Board chair

William Young

Board President

As listed on its FY2024 Form 990.

The chief executive listed changed between the FY2023 and FY2024 filings.

2021202220232024
Listed5454
Joined·+1+3+0
No longer listed·221
03Who funds it

Who funds it, year by year

2022 → 2023: the base held at 1 funder, grant income fell $25k → $50.

Funder
'22
'23
total
funders
1
1

1 of 2 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 0% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of COALITION FOR HEADACHE AND MIGRAINE PATIENTS’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

COALITION FOR HEADACHE AND MIGRAINE PATIENTS leans on a few funders — its largest provides 100% of grant income and the top three 100%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

100%
largest funder
100%
top three
~1
effective funders

Largest funder’s share by year: 2022 100% · 2023 100% — broadly stable.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

COALITION FOR HEADACHE AND MIGRAINE PATIENTS draws 100% of its grant income from funders outside California, across 1 state in all.

IL

Funder states come from each funder’s own filing. $50 arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

COALITION FOR HEADACHE AND MIGRAINE PATIENTS is better cushioned than half of the 13,754 health nonprofits its size.

Operating margin−22% · bottom quartile
Months of reserve8.2mo · above the median
Revenue growth (annualized)−42% · bottom quartile

this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024

Organizations like COALITION FOR HEADACHE AND MIGRAINE PATIENTS

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In California

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

57% of spending goes to programs.

Program 57%Management 34%Fundraising 9%

Governance

3
board members
100%
independent
✓Conflict-of-interest policy–Whistleblower policy✓Document retention✓Board reviewed the 990–Audited financials

Footprint & structure

Files a return copy in 1 state

CA

Screen this organization

A dated, signed PDF of the compliance screen for COALITION FOR HEADACHE AND MIGRAINE PATIENTS: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds COALITION FOR HEADACHE AND MIGRAINE PATIENTS?
COALITION FOR HEADACHE AND MIGRAINE PATIENTS (California) receives grants from 2 organizations whose IRS filings report $25,050 to it, the largest being LUNDBECK US CHARITABLE FUND ($25,000). 0 of them have funded it in more than one year.
How many funders does COALITION FOR HEADACHE AND MIGRAINE PATIENTS have?
IRS filings report 2 organizations giving $25,050 in grants to COALITION FOR HEADACHE AND MIGRAINE PATIENTS.
Who is the largest funder of COALITION FOR HEADACHE AND MIGRAINE PATIENTS?
LUNDBECK US CHARITABLE FUND is the largest funder on record, with $25,000 in grants. The full list of funders is on this page.
How can an organization like COALITION FOR HEADACHE AND MIGRAINE PATIENTS find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Coalition for Headache and Migraine Patients →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2021–2024), and the filings of 2 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing