New Jersey · Nonprofit
Alliance for Headache Disorders Advocacy
Alliance for Headache Disorders Advocacy (New Jersey) receives grants from 3 organizations whose IRS filings report $206,000 to it, the largest being HEADACHE COOP OF THE PACIFIC INC ($137,000). 2 of them have funded it in more than one year.
- Revenue FY2025
- $267k
- Funders on record
- 3
- Grants received
- $206k
- Net assets
- $265k
What Alliance for Headache Disorders Advocacy does
Mission
Advocate for equitable policies for people with headache disorders.
As stated on its FY2025 Form 990.
Programs
On its FY2024 return the organization reported starting a significant new program.
AHDA implemented Flags for Headache, a large-scale public awareness installation in Washington, DC designed to visually represent the prevalence and burden of migraine and other headache disorders in the United States. The installation educated policymakers, Congressional staff, advocates, and the public, and helped raise awareness of headache disorders as serious neurological conditions that are often invisible, and misunderstood.
Its own explanation, from Schedule O of that return (Part III, line 2).
AHDA implemented Flags for Headache, a large-scale public awareness installation in Washington, DC designed to visually represent the prevalence and burden of migraine and other headache disorders in the United States. The installation educated policymakers, Congressional staff, advocates, and the public, and helped raise awareness of headache disorders as serious neurological conditions that are often invisible and misunderstood.
$197,709 spent$165,000 earned by the program79% of program spendingAHDA conducted its annual Headache on the Hill (HOH) advocacy and education program, training more than 400 advocates living with migraine and other headache disorders, as well as caregivers and clinicians. The program focused on educating participants on federal health policy, access to care issues, and effective patient advocacy. As part of this work, AHDA drafted and circulated a national sign-on letter to the Make America Healthy Again Commission highlighting migraine and headache disorders as chronic health conditions impacting children and families.
$49,063 spent$1,215 earned by the program20% of program spendingAHDA participated in and helped organize three Congressional briefings to educate Members of Congress and Congressional staff on issues impacting people living with migraine and other headache disorders, including access to care, insurance barriers, and the need for continued research investment.
$3,128 spent1% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $249,900.
The organization over time
Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $70k to $196k (+180%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
98% of Alliance for Headache Disorders Advocacy’s revenue is contributions — more reliant on donations than three-quarters of its peers (62% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 7 reported years ran a deficit.
reserve
Who funds it, year by year
2018 → 2023: the base held at 2 funders, grant income rose $20k → $34k.
From the IRS filings of Alliance for Headache Disorders Advocacy’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Alliance for Headache Disorders Advocacy leans on a few funders — its largest provides 67% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Alliance for Headache Disorders Advocacy.
Largest funder’s share by year: 2018 50% · 2019 100% · 2020 100% · 2021 67% · 2022 63% · 2023 61% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
Alliance for Headache Disorders Advocacy draws 100% of its grant income from funders outside New Jersey, across 3 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Alliance for Headache Disorders Advocacy has grown faster than three-quarters of the 7,175 community improvement nonprofits its size.
this organization peer median middle 50% of peers· 7,175 community improvement nonprofits $100k–$1M, FY2025
Organizations like Alliance for Headache Disorders Advocacy
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New Jersey
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
95% of spending goes to programs.
Governance
Footprint & structure
Part of a family of 1 related entity
- The Headache Alliance · exempt
Screen this organization
A dated, signed PDF of the compliance screen for Alliance for Headache Disorders Advocacy: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Alliance for Headache Disorders Advocacy?
- Alliance for Headache Disorders Advocacy (New Jersey) receives grants from 3 organizations whose IRS filings report $206,000 to it, the largest being HEADACHE COOP OF THE PACIFIC INC ($137,000). 2 of them have funded it in more than one year.
- How many funders does Alliance for Headache Disorders Advocacy have?
- IRS filings report 3 organizations giving $206,000 in grants to Alliance for Headache Disorders Advocacy, 2 of which have funded it in more than one year.
- Who is the largest funder of Alliance for Headache Disorders Advocacy?
- HEADACHE COOP OF THE PACIFIC INC is the largest funder on record, with $137,000 in grants. The full list of funders is on this page.
- How can an organization like Alliance for Headache Disorders Advocacy find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New Jersey. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Alliance for Headache Disorders Advocacy →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2019–2025), and the filings of 3 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing