Illinois · Public charity
United Leukodystrophy Foundation Inc
The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and assisting family members, professionals and support services that serve them. The ULF is committed to the identification, treatment and cure of all leukodystrophies through programs of education, advocacy, research and service.
- $33k
- Granted FY2025(still arriving)
- 1
- Grants FY2025
- 2
- Organizations funded FY2024
- 50%
- First-time grantees FY2024
- Median grant, FY2025
- $33,000
- Largest grant, FY2025
- $33,000
- Organizations funded a year
- 1 to 4
- FY2017 to FY2024
- States reached, FY2025
- 1
- Total assets, FY2025
- $1.7M
How open it is to new grantees
In FY2024, 50% of the organizations United Leukodystrophy Foundation Inc funded were first-time grantees, receiving 50% of its grant dollars.
New vs renewed · share of each year
In FY2024, 50% of grant dollars renewed an existing relationship; $20k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 1 | $33k | 100% |
| FY2024 | 2 | $40k | 50% |
| FY2023 | 1 | $20k | 0% |
| FY2022 | 1 | $20k | 0% |
| FY2020 | 1 | $33k | 0% |
| FY2019 | 4 | $90k | 75% |
| FY2018 | 2 | $66k | 100% |
| FY2017 | 4 | $114k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Hugo W Moser Research Institute at Kennedy Krieger Inc | $68,671 | 4 | 0% |
| The Children's Hospital of Philadelphia | $66,000 | 2 | 0% |
| University of Minnesota | $50,000 | 2 | n/a |
| University of North Carolina at Chapel Hill | $33,000 | 1 | n/a |
| Washington University | $33,000 | 1 | 0% |
| The Board of Trustees of the University of Illinois | $33,000 | 1 | n/a |
| University of Massachusetts | $33,000 | 1 | n/a |
| Children's Research Institute | $20,000 | 1 | 0% |
| University of Utah | $13,000 | 1 | n/a |
Plus 2 recipients with no EIN on record ($66k), not named here.
Compare United Leukodystrophy Foundation Inc with peer funders
Warm introductions · Powered by PlinthPlus
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About United Leukodystrophy Foundation Inc
- How much does United Leukodystrophy Foundation Inc give?
- United Leukodystrophy Foundation Inc reported 1 grants totaling $33,000 in its FY2025 IRS filing. It funded between 1 and 4 organizations a year over FY2017 to FY2024.
- What does United Leukodystrophy Foundation Inc fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Health (48%), Science & Tech (45%), Education (8%).
- Who are United Leukodystrophy Foundation Inc's largest grantees?
- By total granted over FY2017 to FY2025: Hugo W Moser Research Institute at Kennedy Krieger Inc ($69k), The Children's Hospital of Philadelphia ($66k), University of Minnesota ($50k).
- Does United Leukodystrophy Foundation Inc fund new organizations?
- In FY2024, 50% of the organizations it funded were first-time grantees.
- Where is United Leukodystrophy Foundation Inc based?
- United Leukodystrophy Foundation Inc is based in IL.
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