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Minnesota · Public charity

The Yaya Foundation for 4h Leukodystophy

Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.

$25k
Granted FY2023
1
Itemized grants FY2023
1
Organizations funded FY2023
100%
First-time grantees FY2023
Read the full brief
Itemized, FY2023
$23k
The rest is grants the schedule does not break out
Median grant, FY2023
$23,488
Largest grant, FY2023
$23,488
Organizations funded a year
1 to 2
FY2021 to FY2023
States reached, FY2023
1
Total assets, FY2023
$323k

How open it is to new grantees

In FY2023, 100% of the organizations The Yaya Foundation for 4h Leukodystophy funded were first-time grantees, receiving 100% of its grant dollars.

New vs renewed · share of each year

In FY2023, 0% of grant dollars renewed an existing relationship; $23k went to new ones.

50%100%’22’23
RenewedFirst-time
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY20231$23k100%
FY20222$200k50%
FY20212$200kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2021 to 2023.

Health$283kScience & Tech$140k

Top grantees

Largest grants in FY2023.

The Childrens Hosp of Phila$23,488

Compare The Yaya Foundation for 4h Leukodystophy with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to The Yaya Foundation for 4h Leukodystophy?

Find your warmest path to The Yaya Foundation for 4h Leukodystophy through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About The Yaya Foundation for 4h Leukodystophy

How much does The Yaya Foundation for 4h Leukodystophy give?
The Yaya Foundation for 4h Leukodystophy reported 1 itemized grants totaling $23,488, out of $24,699 in total grant expense reported on the return in its FY2023 IRS filing. It funded between 1 and 2 organizations a year over FY2021 to FY2023.
What does The Yaya Foundation for 4h Leukodystophy fund?
By grant dollars over FY2021 to FY2023, its largest causes are Health (67%), Science & Tech (33%).
Does The Yaya Foundation for 4h Leukodystophy fund new organizations?
In FY2023, 100% of the organizations it funded were first-time grantees.
Where is The Yaya Foundation for 4h Leukodystophy based?
The Yaya Foundation for 4h Leukodystophy is based in MN.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 4 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2023, released 2023. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Possibly out of date. A more recent filing (FY2024) is on record and reports no grant expense, so the figures above are from FY2023, the most recent year this funder made grants.

Source object · view filing

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