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The Myositis Association at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

The Myositis Association

The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy.

$331k
Granted FY2024still arriving
3
Grants FY2024still arriving
2
States reached
$50k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Science & Tech$761kHealth$552kEducation$250k
02FY2024 · 3 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 3 grants below total $81,268, the rows itemized in this filing. The $331,216 headline is the total grant expense on the return; the other $249,948 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2024

  • Under $10k1 grant · $6k
  • $10k–50k1 grant · $25k
  • $50k–250k1 grant · $50k
$25,000
Median grant
2
States reached
$2.0M
Total assets
Largest grants
RecipientAmount
National Institutes of Health$50,000
Johns Hopkins University$25,000
University of Pennsylvania$6,268
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–24) land where the poverty rate runs at 16%, against an area that typically sits at 11%. 90% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%Brigham & Womens Hospital: $9k → 16%Philadelphia Research & Educ: $50k → 22%University of CA Irvine: $25k → 10%Research Foundation for SUNY: $100k → 14%Binghamton University: $75k → 20%Regents of the Univof CA: $26k → 14%Global Conference on Myositis: $30k → 14%University of Kansas: $80k → 15%Vanderbilt Univ Medical Ctr: $25k → 14%NIAMS: $50k → 8%Johns Hopkins University: $75k → 19%Philadelphia Research & Educ: $25k → 22%Research Foundation for SUNY: $50k → 14%Binghamton University: $50k → 20%University of Kansas: $80k → 15%Vanderbilt Univ Medical Ctr: $25k → 14%National Institutes of Health: $50k → 8%Johns Hopkins University: $50k → 19%Philadelphia Research & Educ: $25k → 22%Binghamton University: $50k → 20%University of Kansas: $50k → 15%Johns Hopkins University: $50k → 19%University of Pennsylvania: $6k → 22%Johns Hopkins University: $25k → 19%Johns Hopkins University: $25k → 19%Johns Hopkins University: $25k → 19%Johns Hopkins University: $25k → 19%Johns Hopkins Medical Center: $24k → 19%Johns Hopkins Medical Center: $15k → 19%Johns Hopkins Medical Center: $15k → 19%Johns Hopkins Myositis Center: $14k → 19%Johns Hopkins Myositis Center: $12k → 19%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

NY
MA
PA
CA
MD
KS
TN
DC
FL

Grants abroad, by region: $236k on the FY2024 return

Schedule F, as filed: 3 regions, $235k to organizations and $838 to individuals. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$135k · 57% · 1 grant

Stated purpose: Research Grant

East Asia and the Pacific$100k · 42% · 1 grant

Stated purpose: Research Grant

North America (Canada and Mexico)$838 · 0% · 1 person

Stated purpose: Conference Attendance

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

75%of every dollar goes to organizations it has funded before.
$1.0M · 8 repeat orgs$342k to everyone else

Grantees it renews have grown median revenue +62% since the first grant, against +55% for those funded once.

8 repeat relationships: 1 still active in FY2024, 7 since wound down; 1 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

8
8

Total granted

$1.0M
$292k

Median revenue growth · since first grant

+62%
+55%

Still filing today

100%
38%

New vs renewed · share of each year

In FY2024, 33% of grant dollars renewed an existing relationship; $50k went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24
EducationHealthScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • JOHNS HOPKINS UNIVERSITY
    7× · 2017–2024 · $275k · revenue +64%
  • UO
    University of Kansas Center for Research Inc
    3× · 2021–2023 · $210k · revenue +34%
  • FO
    FOUNDATION OF THE STATE UNIVERSITY OF NEW YORK AT BINGHAMTON INC
    3× · 2018–2020 · $175k · revenue +139%

Funded once

  • NY
    New York Universitygraduated
    one grant, 2017 · $76k · revenue +76%
  • N
    NIAMS
    one grant, 2017 · $50k
  • UNIVERSITY OF PITTSBURGHgraduated
    one grant, 2017 · $50k · revenue +44%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
2
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
3
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
4
Sanford Burnham Prebys Medical Discovery Institute

Sanford burnham prebys medical discovery institute's mission is to advance the biomedical sciences by cultivating the next generation of scientific leaders, providing meaningful opportunities for researchers of all backgrounds to learn,…

Health
5
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
6
Howard Hughes Medical Institute

The mission of the institute has remained constant since its founding in 1953. as its restated articles of incorporation state the primary purpose and objective of the howard hughes medical institute shall be the promotion of human…

Health
7
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
8
New York Genome Center Inc

Operate a state-of-the-art, world-class genomic research center that creates and uses advanced genomics to understand the genetic basis of disease. for more information, see schedule o.

Health
9
Washington University

The washington university is a co-educational, nondenominational university with a long and distinguished history of teaching, research and (cont'd on schedule o)

Education
10
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
11
Memorial Sloan-Kettering Cancer Center

Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.

Health
12
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
How this is measured
The grantee most central to the portfolio’s shape is Johns Hopkins University; the most unlike its peers is Foundation for the National Institutes of Health Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

13 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 13 of the 18 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
13/13
Grantees still filing
12/13
Grew since first funded

Where the money sits, by cause and then by grantee

JOHNS HOPKINS UNIVERSITY: $275,000 · EducationJOHNS HOPKINS UNIVERSITYTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $181,268 · EducationTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIAFOUNDATION OF THE STATE UNIVERSITY OF NEW YORK AT BINGHAMTON INC: $175,000 · EducationFOUNDATION OF THE STATE UNIVERSITY OF NEW YORK AT BINGHAMTON INCThe Research Foundation for The State University of New York: $175,000 · EducationThe Research Foundation for The State University of New YorkNew York University: $76,142 · EducationNew York UniversityUNIVERSITY OF PITTSBURGH: $50,000 · Education+1 more: $24,933 · EducationPHILADELPHIA RESEARCH & EDUCATION FOUNDA: $75,000 · HealthPHILADELPHIA RESEA…THE JOHNS HOPKINS HOSPITAL: $54,247 · HealthTHE JOHNS HOPKINS …Vanderbilt University Medical Center: $50,000 · HealthVanderbilt Univers…Foundation for the National Institutes of Health Inc: $50,000 · HealthFoundation for the…JOHNS HOPKINS BAYVIEW MEDICAL CENTER INC: $26,071 · HealthJOHNS HOPKINS BAYV…University of Kansas Center for Research Inc: $210,000 · Science & TechUniversity of K…NIAMS: $50,000 · OtherNIAMSGLOBAL CONFERENCE ON MYOSITIS INC: $30,000 · OtherGLOBAL CON…REGENTS OF THE UNIVERSITY OF CALIFORNIA: $26,433 · OtherREGENTS OF…Individual grant recipient: $25,000 · OtherIndividual…MASS GENERAL BRIGHAM INCORPORATED: $9,350 · OtherMASS GENER…
Education$957,343Health$255,318Science & Tech$210,000Other$140,783

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetJOHNS HOPKINS UNIVERSITY: $275,000 over 7y, 0.0% of budgetUniversity of Kansas Center for Research Inc: $210,000 over 3y, 0.1% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $181,268 over 3y, 0.0% of budgetFOUNDATION OF THE STATE UNIVERSITY OF NEW YORK AT BINGHAMTON INC: $175,000 over 3y, 0.3% of budgetThe Research Foundation for The State University of New York: $175,000 over 3y, 0.0% of budgetNew York University: $76,142 over 1y, 0.0% of budgetPHILADELPHIA RESEARCH & EDUCATION FOUNDA: $75,000 over 2y, 9.6% of budgetTHE JOHNS HOPKINS HOSPITAL: $54,247 over 3y, 0.0% of budgetVanderbilt University Medical Center: $50,000 over 2y, 0.0% of budgetUNIVERSITY OF PITTSBURGH: $50,000 over 1y, 0.0% of budgetFoundation for the National Institutes of Health Inc: $50,000 over 1y, 0.1% of budgetJOHNS HOPKINS BAYVIEW MEDICAL CENTER INC: $26,071 over 2y, 0.0% of budgetUNIVERSITY OF CALIFORNIA IRVINE FOUNDATION: $24,933 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization The Myositis Association funds: left to right is the share of its income from government, bottom to top the share from The Myositis Association. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 0%
  • Johns Hopkins University: 12% of income from government
  • The Johns Hopkins Hospital: 0% of income from government
  • Johns Hopkins Bayview Medical Center Inc: 0% of income from government
no gov moneyreceives it· size = income
0get no government money at all
2report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 18 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home