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Maryland · Public charity

The Myositis Association

The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists…

$331k
Granted FY2024(still arriving)
3
Itemized grants FY2024
3
Organizations funded FY2023
0%
First-time grantees FY2023
Read the full brief
Itemized, FY2024
$81k
The rest is grants the schedule does not break out
Median grant, FY2024
$25,000
Largest grant, FY2024
$50,000
Organizations funded a year
1 to 8
FY2017 to FY2023
States reached, FY2024
2
Total assets, FY2024
$2.0M

How open it is to new grantees

In FY2023, 0% of the organizations The Myositis Association funded were first-time grantees, receiving 0% of its grant dollars.

New vs renewed · share of each year

In FY2023, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’18’19’20’21’22’23
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23
HealthEducationScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2024still arriving2$75k50%
FY20233$150k0%
FY20225$292k0%
FY20214$144k75%
FY20201$50k0%
FY20195$158k20%
FY20186$216k67%
FY20178$296kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Science & Tech$761kHealth$552kEducation$250k

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

NY
MA
PA
CA
MD
KS
TN
DC
FL

Top grantees

Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.

Show all 15 grantees
All grantees of The Myositis Association by total granted
GranteeTotal grantedYearsShare of their budget
Johns Hopkins University$275,00070%
University of Kansas Center for Research Inc$210,00030%
Foundation of the State University of New York at Binghamton Inc$175,00030%
The Research Foundation for The State University of New York$175,00030%
New York University$76,14210%
Philadelphia Research & Education Founda$75,000210%
The Johns Hopkins Hospital$54,24730%
Vanderbilt University Medical Center$50,00020%
University of Pittsburgh$50,00010%
Foundation for the National Institutes of Health Inc$50,00010%
Global Conference on Myositis Inc$30,0001n/a
Regents of the University of California$26,4331n/a
Johns Hopkins Bayview Medical Center Inc$26,07120%
University of California Irvine Foundation$24,93310%
Mass General Brigham Incorporated$9,3501n/a

Plus 2 recipients with no EIN on record ($75k), not named here.

Where it is load-bearing

Each grantee by its size and the share of its budget The Myositis Association supplied at peak.

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetJohns Hopkins University: $275,000 over 7y, 0.0% of budgetUniversity of Kansas Center for Research Inc: $210,000 over 3y, 0.1% of budgetFoundation of the State University of New York at Binghamton Inc: $175,000 over 3y, 0.3% of budgetThe Research Foundation for The State University of New York: $175,000 over 3y, 0.0% of budgetNew York University: $76,142 over 1y, 0.0% of budgetPhiladelphia Research & Education Founda: $75,000 over 2y, 9.6% of budgetThe Johns Hopkins Hospital: $54,247 over 3y, 0.0% of budgetVanderbilt University Medical Center: $50,000 over 2y, 0.0% of budgetUniversity of Pittsburgh: $50,000 over 1y, 0.0% of budgetFoundation for the National Institutes of Health Inc: $50,000 over 1y, 0.1% of budgetJohns Hopkins Bayview Medical Center Inc: $26,071 over 2y, 0.0% of budgetUniversity of California Irvine Foundation: $24,933 over 1y, 0.0% of budget

Tap a dot to name the grantee.

How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 12.

Compare The Myositis Association with peer funders

About The Myositis Association

How much does The Myositis Association give?
The Myositis Association reported 3 itemized grants totaling $81,268, out of $331,216 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 1 and 8 organizations a year over FY2017 to FY2023.
What does The Myositis Association fund?
By grant dollars over FY2017 to FY2024, its largest causes are Science & Tech (49%), Health (35%), Education (16%).
Who are The Myositis Association's largest grantees?
By total granted over FY2017 to FY2024: Johns Hopkins University ($275k), University of Kansas Center for Research Inc ($210k), Foundation of the State University of New York at Binghamton Inc ($175k).
Does The Myositis Association fund new organizations?
In FY2023, 0% of the organizations it funded were first-time grantees.
Where is The Myositis Association based?
The Myositis Association is based in MD.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 18 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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