· Public charity
The Desmoid Tumor Research Foundation
THE DESMOID TUMOR RESEARCH FOUNDATION (dtrf) empowers and unites everyone committed to finding answers for the desmoid tumor community.
Read this first · the figures below need context
51% of The Desmoid Tumor Research Foundation’s FY2023 grant dollars went to The Board Of Trustees Of The Leland Stanford Junior University, not to grantees.
Its money now reaches organizations through that sponsor, which does not report who recommended each grant. FY2023 names 1 organization directly, so a portfolio cannot be read from it.
Organizations named directly on the return
Amber years are those where most dollars went to a sponsor.
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2023.
Where the money goes
Grants by size, and the largest recipients.
How this is measured
| Recipient | Amount |
|---|---|
| STANFORD UNIVERSITY | $30,000 |
| CHILDREN'S HOSPITAL LOS ANGELES | $29,000 |
Does the money reach high-need areas?
Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.
US giving: 71% of grant dollars ($1.1M). The need read here covers only this US portion; the 29% that went abroad ($439k) is mapped below.
Dollar for dollar, its grants (FY17–23) land where the poverty rate runs at 10%, against an area that typically sits at 10%. 29% of its dollars go to grantees based in above-average-need neighborhoods. Its grants skew toward lower-need ZIPs.
How this is measured
Beyond the US: 29% of all-years giving ($439k)
6 countries, by the recipient’s country on the filing.
Grants abroad, by region: $41k on the FY2024 return
Schedule F, as filed: 1 region. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: THREE-YEAR RESEARCH GRANT TO SEE THE EARLY EFFECT OF SORAFENIB ON COGNITION, CARDIOVASCULAR AND REPRODUCTIVE FUNCTIONS IN PATIENTS WITH FIBROMATOSIS
How this is measured
Where the work is directed
The same grants placed two ways: where each recipient sits, and where its stated purpose sends the money.
About 34% of The Desmoid Tumor Research Foundation’s grant dollars are earmarked for a different county than the recipient’s own address.
How this is measured
Who it funds again
Organizations funded in more than one year, against those funded once.
6 repeat relationships: 1 still active in FY2023, 5 since wound down.
How the two cohorts compare
Organizations
Total granted
Still filing today
New vs renewed · share of each year
In FY2023, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
Backed again, and grew
- TBThe Broad Institute Inc3× · 2019–2021 · $308k · revenue +58%
DUKE UNIVERSITY2× · 2017–2018 · $237k · revenue +51%- CHChildren's Hospital Los Angeles2× · 2020–2023 · $87k · revenue +27%
Funded once
- MCMayo Clinicone grant, 2018 · $30k
- UHUniverstat Heidelbergone grant, 2018 · $30k
- IFInstitute for Cancer Researchone grant, 2019 · $30k
How this is measured
Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.
5 grantees tracked through their own filings, 2017–2025.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 5 of the 14 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Where the money sits, by cause and then by grantee
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
How much its grantees rely on government
Each dot is one organization The Desmoid Tumor Research Foundation funds: left to right is the share of its income from government, bottom to top the share from The Desmoid Tumor Research Foundation. Bigger dots raise more.
- The Broad Institute Inc: 19% of income from government
How this is measured
Warm introductions · Powered by PlinthPlus
How do I get to The Desmoid Tumor Research Foundation?
Find your warmest path to The Desmoid Tumor Research Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
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