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The Amyloidosis Foundation at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

The Amyloidosis Foundation

The organizations mission is to increase education and awareness of amyloidosis, to assist patients in finding qualified medical care and to support research.

$167k
Granted FY2024still arriving
2
Grants FY2024still arriving
2
States reached
$75k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2020 to 2024.

Health$620kEducation$313kScience & Tech$50k
02FY2024 · 2 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 2 grants below total $112,500, the rows itemized in this filing. The $166,725 headline is the total grant expense on the return; the other $54,225 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2024

  • $10k–50k1 grant · $38k
  • $50k–250k1 grant · $75k
$75,000
Median grant
2
States reached
$1.1M
Total assets
Largest grants
RecipientAmount
BRIGHAM & WOMENS HOSPITAL$75,000
COLUMBIA UNIVERSITY MEDICAL CENTER$37,500
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY20–24) land where the poverty rate runs at 17%, against an area that typically sits at 15%. 84% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 15%BRIGHAM & WOMENS HOSPITAL: $75k → 8%BRIGHAM & WOMENS HOSPITAL: $25k → 16%MAYO CLINIC: $50k → 9%UNIVERSITY OF PENNSYLVANIA: $25k → 22%COLUMBIA UNIVERSITY: $125k → 17%KARMANOS CANCER INSTITUTE: $20k → 21%WASHINGTON UNIVERSITY: $200k → 21%JOHNS HOPKINS: $38k → 19%BRIGHAM & WOMENS HOSPITAL: $25k → 16%MAYO CLINIC: $25k → 9%UNIVERSITY OF PENNSYLVANIA: $25k → 22%COLUMBIA UNIVERSITY: $100k → 17%JOHNS HOPKINS: $25k → 19%BOSTON UNIVERSITY: $50k → 16%COLUMBIA UNIVERSITY MEDICAL CENTER: $38k → 17%HARVARD MEDICAL: $63k → 16%COLUMBIA UNIVERSITY MEDICAL CENTER: $25k → 17%HARVARD MEDICAL CENTER (B&W): $25k → 16%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

MN
MI
NY
MA
PA
CT
MO
MD

Grants abroad, by region: $34k on the FY2024 return

Schedule F, as filed: 7 regions, all to individuals. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Italy$12k · 36% · 4 people

Stated purpose: TRAVEL

Australia$6k · 18% · 2 people

Stated purpose: TRAVEL

North America (Canada and Mexico)$3k · 9% · 1 person

Stated purpose: TRAVEL

Brazil$3k · 9% · 1 person

Stated purpose: TRAVEL

Japan$3k · 9% · 1 person

Stated purpose: TRAVEL

Spain$3k · 9% · 1 person

Stated purpose: TRAVEL

Argentina$3k · 9% · 1 person

Stated purpose: TRAVEL

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

55%of every dollar goes to organizations it has funded before.
$488k · 4 repeat orgs$395k to everyone else

Grantees it renews have grown median revenue +42% since the first grant, against +21% for those funded once.

4 repeat relationships: 1 still active in FY2024, 3 since wound down; 1 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

4
5

Total granted

$488k
$320k

Median revenue growth · since first grant

+42%
+21%

Still filing today

100%
80%

New vs renewed · share of each year

In FY2024, 33% of grant dollars renewed an existing relationship; $75k went to new ones.

50%100%’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’20’21’22’23’24
HealthEducationMembership BenefitOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • NP
    NY PRESBYTERIAN HOSPITAL COLUMBIA UNIVERSITY MEDICAL CTRNYSNA RETIREE MEDIC AL PLAN TRUST
    4× · 2020–2024 · $288k · revenue +9% · 31% of their budget
  • HM
    HARVARD MEDICAL CENTER
    2× · 2022–2023 · $88k · revenue ×24
  • JOHNS HOPKINS UNIVERSITY
    2× · 2020–2023 · $63k · revenue +42%

Funded once

  • WASHINGTON UNIVERSITY
    one grant, 2021 · $200k · revenue +21%
  • TRUSTEES OF BOSTON UNIVERSITY
    one grant, 2022 · $50k · revenue +12%
  • MC
    MAYO CLINIC
    one grant, 2021 · $25k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
2
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
3
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
4
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
5
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
6
Truman Medical Center Incorporated

University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.

Health
7
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
8
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
9
Cornell University

Education, research, medical services and other public services.

Education
10
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
11
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
12
Trustees of Boston College

Mission strengthened by more than a century and a half of dedication to academic excellence, boston college commits itself to the highest standards of teaching and research in undergraduate, graduate and professional programs and to the…

Education
How this is measured
The grantee most central to the portfolio’s shape is Johns Hopkins University; the most unlike its peers is Harvard Medical Center. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

10 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 10 of the 12 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

1
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
10/10
Grantees still filing
10/10
Grew since first funded

Where the money sits, by cause and then by grantee

WASHINGTON UNIVERSITY: $200,000 · EducationWASHINGTON UNIVERSITYJOHNS HOPKINS UNIVERSITY: $62,500 · EducationJOHNS HOPKINS UNIVERSITYTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $50,000 · EducationTRUSTEES OF THE UNIVERSITY OF PENNSY…NY PRESBYTERIAN HOSPITAL COLUMBIA UNIVERSITY MEDICAL CTRNYSNA RETIREE MEDIC AL PLAN TRUST: $287,500 · Membership BenefitNY PRESBYTERIAN HOSPITAL COLUMBIA…HARVARD MEDICAL CENTER: $87,500 · HealthHARVARD MEDICAL CENTERMASS GENERAL BRIGHAM INCORPORATED: $50,000 · HealthMASS GENERAL BRIGHAM INCOR…MAYO CLINIC: $50,000 · HealthMAYO CLINICYALE UNIVERSITY ELIZABETHAN CLUB CORP: $25,000 · HealthYALE UNIVERSITY ELIZABETHA…BARBARA ANN KARMANOS CANCER INSTITUTE: $20,000 · HealthBARBARA ANN KARMANOS CANCE…MASS GENERAL BRIGHAM INCORPORATED: $75,000 · OtherMASS GENERAL BRIG…TRUSTEES OF BOSTON UNIVERSITY: $50,000 · OtherTRUSTEES OF BOSTO…MAYO CLINIC: $25,000 · OtherMAYO CLINIC
Education$312,500Membership Benefit$287,500Health$232,500Other$150,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetNY PRESBYTERIAN HOSPITAL COLUMBIA UNIVERSITY MEDICAL CTRNYSNA RETIREE MEDIC AL PLAN TRUST: $287,500 over 4y, 31% of budgetWASHINGTON UNIVERSITY: $200,000 over 1y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $62,500 over 2y, 0.0% of budgetTRUSTEES OF BOSTON UNIVERSITY: $50,000 over 1y, 0.0% of budgetMASS GENERAL BRIGHAM INCORPORATED: $50,000 over 2y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $50,000 over 2y, 0.0% of budgetMAYO CLINIC: $50,000 over 1y, 0.0% of budgetBARBARA ANN KARMANOS CANCER INSTITUTE: $20,000 over 1y, 0.1% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization The Amyloidosis Foundation funds: left to right is the share of its income from government, bottom to top the share from The Amyloidosis Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 30%6%25%56%100%funder's share of their income ↑0%5%10%15%20%share of the org’s income from government →median 12%
  • Trustees of Boston University: 12% of income from government
  • Johns Hopkins University: 12% of income from government
no gov moneyreceives it· size = income
3get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–20%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to The Amyloidosis Foundation?

Find your warmest path to The Amyloidosis Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 12 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home