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· Private foundation

Spinal Muscular Atrophy Foundation

Its FY2024 filing reports that it funds preselected organizations and did not take unsolicited requests; check the foundation's own site before ruling it out.

$1.5M
Granted FY2024still arriving
11
Grants FY2024still arriving
5
States reached
$239k
Largest
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Education$6.0MHealth$2.2M
02FY2024 · 11 grants

Where the money goes

Grants by size, and the largest recipients.

By grant size · FY2024

  • Under $10k1 grant · $3k
  • $10k–50k1 grant · $33k
  • $50k–250k9 grants · $1.5M
$141,212
Median grant
5
States reached
$50M
Total assets
Largest grants
RecipientAmount
JOHN HOPKINS UNIVERSITY$238,814
SWISS FEDERAL TECHNOLOGY INSTITUTE OF LAUSANNE$218,006
STANFORD UNIVERSITY$207,000
UNIVERSITY OF FLORIDA$197,907
STANFORD UNIVERSITY$167,825
UNIVERSITY OF EDINBURGH$141,212
STANFORD UNIVERSITY$117,494
BOSTON CHILDREN'S HOSPITAL$98,571
STANFORD UNIVERSITY$69,000
STANFORD UNIVERSITY$33,460
MUSCULAR DISTROPHY ASSOCIATION$2,500
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–24) land where the poverty rate runs at 13%, against an area that typically sits at 12%. 60% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 12%CHILDREN'S HOSPITAL OF BOSTON: $246k → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA: $107k → 22%STANFORD UNIVERSITY: $654k → 8%UNIVERSITY OF SOUTHERN CALIFORNIA: $336k → 14%UNIVERSITY OF ROCHESTER: $129k → 14%THE TRUSTEES OF COLUMBIA UNIVERSITY: $887k → 17%UNIVERSITY OF FLORIDA: $198k → 19%MUSCULAR DISTROPHY ASSOCIATION: $3k → 14%JOHN HOPKINS UNIVERSITY: $239k → 19%CHILDREN'S HOSPITAL OF BOSTON: $217k → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA: $72k → 22%STANFORD UNIVERSITY: $413k → 8%UNIVERSITY OF SOUTHERN CALIFORNIA: $283k → 14%UNIVERSITY OF ROCHESTER: $101k → 14%THE TRUSTEES OF COLUMBIA UNIVERSITY: $277k → 17%UNIVERSITY OF FLORIDA: $99k → 19%JOHN HOPKINS UNIVERSITY: $230k → 19%CHILDREN'S HOSPITAL OF BOSTON: $134k → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA: $13k → 22%STANFORD UNIVERSITY: $225k → 8%UNIVERSITY OF SOUTHERN CALIFORNIA: $168k → 14%UNIVERSITY OF ROCHESTER: $98k → 14%COLUMBIA UNIVERSITY: $150k → 17%BOSTON CHILDREN'S HOSPITAL: $99k → 16%STANFORD UNIVERSITY: $207k → 8%UNIVERSITY OF ROCHESTER: $53k → 14%COLUMBIA UNIVERSITY: $79k → 17%CHILDREN'S HOSPITAL OF BOSTON: $89k → 16%STANFORD UNIVERSITY: $207k → 8%THE TRUSTEES OF COLUMBIA UNIVERSITY: $312k → 17%CHILDREN'S HOSPITAL OF BOSTON: $53k → 16%STANFORD UNIVERSITY: $168k → 8%BETH ISRAEL DEACONESS MEDICAL CENTER: $33k → 16%STANFORD UNIVERSITY: $163k → 8%BETH ISRAEL DEACONESS MEDICAL CENTER: $17k → 16%STANFORD UNIVERSITY: $138k → 8%STANFORD UNIVERSITY: $138k → 8%STANFORD UNIVERSITY: $138k → 8%STANFORD UNIVERSITY: $117k → 8%STANFORD UNIVERSITY: $117k → 8%STANFORD UNIVERSITY: $113k → 8%STANFORD UNIVERSITY: $86k → 8%STANFORD UNIVERSITY: $75k → 8%STANFORD UNIVERSITY: $69k → 8%STANFORD UNIVERSITY: $69k → 8%STANFORD UNIVERSITY: $33k → 8%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
04

Where the work is directed

The same grants placed two ways: where each recipient sits, and where its stated purpose sends the money.

About 72% of Spinal Muscular Atrophy Foundation’s grant dollars are earmarked for a different county than the recipient’s own address.

Spinal Muscular Atrophy Foundationlessmore of its giving
Placed by recipient address · 4.4% directed abroad (not shown)
How this is measured
Recipient view: each grant at its grantee’s ZIP, mapped to a county. Directed view: each grant at the county its stated purpose names, falling back to the recipient’s county when the purpose names no place; US grants only. A county shows only if it carries the top 95% of that view’s dollars. Purposes are read from the funder’s own 990 grant descriptions.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

86%of every dollar goes to organizations it has funded before.
$2.2M · 6 repeat orgs$362k to everyone else

Grantees it renews have grown median revenue +91% since the first grant, against +6% for those funded once.

6 repeat relationships: 3 still active in FY2024, 3 since wound down; 3 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

6
3

Total granted

$2.2M
$362k

Median revenue growth · since first grant

+91%
+6%

Still filing today

67%
33%

New vs renewed · share of each year

In FY2024, 60% of grant dollars renewed an existing relationship; $362k went to new ones.

50%100%’17’18’19’20’21’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’23’24
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • CH
    CHILDREN'S HOSPITAL OF BOSTON
    6× · 2017–2024 · $837k · revenue +91%
  • UNIVERSITY OF ROCHESTER
    4× · 2017–2021 · $382k · revenue +81%
  • CH
    CHILDREN'S HOSPITAL OF PHILADELPHIA
    3× · 2017–2020 · $191k · revenue +88%

Funded once

  • SF
    SWISS FEDERAL TECHNOLOGY INSTITUTE OF LAUSANNE
    one grant, 2024 · $218k
  • UO
    UNIVERSITY OF EDINBURGH
    one grant, 2024 · $141k
  • MUSCULAR DISTROPHY ASSOCIATION
    one grant, 2024 · $3k · revenue +6%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
3
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
4
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
5
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
6
Cedars-Sinai Medical Center

As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…

Health
7
Southern California University of Health Sciences

The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…

Education
8
Memorial Sloan-Kettering Cancer Center

Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.

Health
9
Truman Medical Center Incorporated

University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.

Health
10
University of Chicago Medical Center

Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…

Health
11
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
12
Methodist Healthcare-Memphis Hospitals

Methodist le bonheur healthcare, in partnership with its medical staffs, will collaborate with patients and their families to be the leader in providing high quality, cost-effective patient-and family-centered care. services will be…

Health
How this is measured
The grantee most central to the portfolio’s shape is The Board of Trustees of the Leland Stanford Junior University; the most unlike its peers is Muscular Dystrophy Association Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
05the grantee network

8 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 8 of the 12 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
8/8
Grantees still filing
8/8
Grew since first funded

Where the money sits, by cause and then by grantee

STANFORD UNIVERSITY: $3,130,074 · EducationSTANFORD UNIVERSITYTHE TRUSTEES OF COLUMBIA UNIVERSITY: $1,704,448 · EducationTHE TRUSTEES OF COLUMBIA UNIVERSITYUNIVERSITY OF SOUTHERN CALIFORNIA: $787,189 · EducationUNIVERSITY OF SOUTHERN CALIFORNIAUNIVERSITY OF ROCHESTER: $381,577 · EducationUNIVERSITY OF ROCHESTERJOHN HOPKINS UNIVERSITY: $468,591 · OtherJOHN HOPKINS UN…UNIVERSITY OF FLORIDA: $296,860 · OtherUNIVERSITY OF F…SWISS FEDERAL TECHNOLOGY INSTITUTE OF LAUSANNE: $218,006 · OtherSWISS FEDERAL T…UNIVERSITY OF EDINBURGH: $141,212 · OtherUNIVERSITY OF E…CHILDREN'S HOSPITAL OF BOSTON: $836,896 · HealthCHILDREN'S HOS…CHILDREN'S HOSPITAL OF PHILADELPHIA: $191,392 · HealthCHILDREN'S HOS…BETH ISRAEL DEACONESS MEDICAL CENTER: $49,658 · Health+1 more: $2,500 · Health
Education$6,003,288Other$1,124,669Health$1,080,446

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%grantee revenue →↑ funder's share of their budgetSTANFORD UNIVERSITY: $3,130,074 over 7y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY: $1,704,448 over 4y, 0.0% of budgetCHILDREN'S HOSPITAL OF BOSTON: $836,896 over 6y, 0.0% of budgetUNIVERSITY OF SOUTHERN CALIFORNIA: $787,189 over 3y, 0.0% of budgetUNIVERSITY OF ROCHESTER: $381,577 over 4y, 0.0% of budgetCHILDREN'S HOSPITAL OF PHILADELPHIA: $191,392 over 3y, 0.0% of budgetBETH ISRAEL DEACONESS MEDICAL CENTER: $49,658 over 2y, 0.0% of budgetMUSCULAR DISTROPHY ASSOCIATION: $2,500 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds STANFORD UNIVERSITY ↗
  • Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY ↗
  • Who funds CHILDREN'S HOSPITAL OF BOSTON ↗
  • Who funds UNIVERSITY OF SOUTHERN CALIFORNIA ↗
  • Who funds UNIVERSITY OF ROCHESTER ↗
  • Who funds CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
  • Who funds BETH ISRAEL DEACONESS MEDICAL CENTER ↗
  • Who funds MUSCULAR DISTROPHY ASSOCIATION ↗

How much its grantees rely on government

Each dot is one organization Spinal Muscular Atrophy Foundation funds: left to right is the share of its income from government, bottom to top the share from Spinal Muscular Atrophy Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%5%10%15%20%share of the org’s income from government →median 10%
  • Children's Hospital Corporation: 10% of income from government
  • Beth Israel Deaconess Medical Center Inc: 6% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–20%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Spinal Muscular Atrophy Foundation?

Find your warmest path to Spinal Muscular Atrophy Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 12 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990-PF e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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