· Public charity
Scleroderma Research Foundation
The mission of the Scleroderma Research Foundation is to fund and facilitate the most promising, highest quality research aimed at new treatments and, ultimately, a cure for scleroderma.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2025.
Where the money goes
Your grants by size, and where they go.
By grant size · FY2025
- $10k–50k7 grants · $146k
- $50k–250k15 grants · $2.0M
- $250k+4 grants · $1.6M
| Recipient | Amount |
|---|---|
| Regents of Univ of CA-UCSF | $466,635 |
| Stanford School of Medicine | $459,985 |
| University of Utah | $365,618 |
| Univ of TX Health Science Ctr | $314,255 |
| Regents of Univ of Michigan | $218,440 |
| John Hopkins University | $212,416 |
| Hospital for Special Surgery | $191,356 |
| University of Pittsburgh | $176,500 |
| NYU Grossman School Medicine | $150,000 |
| Boston Childrens Hospital Co | $147,103 |
| Trustees of Dartmouth College | $132,338 |
| Yale University | $125,000 |
| Regents of UCLA | $114,950 |
| The Feinstein Institute | $110,000 |
| Duke University | $103,057 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY17–25) land where the poverty rate runs at 14%, against an area that typically sits at 10%. 73% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +41% since the first grant, against +23% for the ones you funded once.
22 repeat relationships — 17 still active in FY2025, 5 since wound down; 2 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 95% of grant dollars renewed an existing relationship; $142k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
JOHNS HOPKINS UNIVERSITY9× · 2017–2025 · $4.1M · revenue +64%- NYNEW YORK SOCIETY FOR THE RELIEF OF THE RUPTURED AND CRIPPLED MAINTAINING THE7× · 2019–2025 · $1.1M · revenue +28%
UNIVERSITY OF PITTSBURGH6× · 2020–2025 · $805k · revenue +26%
Funded once
- WMWeill Medical College of Cornell Universone grant, 2018 · $125k
- TGThe George Washington Universityone grant, 2019 · $21k · revenue +23%
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…
See Form 990, Part I, Line 1, Description of Organization Mission.
The washington university is a co-educational, nondenominational university with a long and distinguished history of teaching, research and (cont'd on schedule o)
Education, research, medical services and other public services.
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
Case Western Reserve University is an independent, research-oriented university with broadly based strengths in health, including medicine, nursing and dentistry; in engineering; in the arts and sciences; and in law, management and social…
Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…
As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…
The mission of mit is to advance knowledge and educate students in science, technology, and other areas of scholarship that will best serve the nation and the world in the 21st century.
Education and Research
For reference, the grantee most central to the portfolio’s shape is Johns Hopkins University and the most unlike its peers is New York Society for the Relief of the Ruptured and Crippled Maintaining the. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
Your grantees are a median of 52 years old; the field is 16. You back the established end — and your money leans older still.
The field is 22% startups (under 5 years old) — 4% of your grantees by number, and just 0% of your money.
The orgs you fund almost never close — 0.0% lost their exemption, against 13% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
20 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 20 of the 33 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
- Who funds JOHNS HOPKINS UNIVERSITY ↗
- Who funds Yale University ↗
- Who funds NEW YORK SOCIETY FOR THE RELIEF OF THE RUPTURED AND CRIPPLED MAINTAINING THE ↗
- Who funds UNIVERSITY OF PITTSBURGH ↗
- Who funds Trustees of Dartmouth College ↗
- Who funds Vanderbilt University Medical Center ↗
- Who funds Children's Hospital Corporation ↗
- Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
- Who funds Northwestern University ↗
- Who funds UNIVERSITY OF ROCHESTER ↗
- Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
- Who funds THE MEDSTAR-GEORGETOWN MEDICAL CENTER INC ↗
- Who funds DUKE UNIVERSITY ↗
- Who funds UNIVERSITY OF SOUTHERN CALIFORNIA ↗
- Who funds THE FEINSTEIN INSTITUTES FOR MEDICAL RESEARCH ↗
- Who funds MAYO CLINIC ↗
- Who funds MEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATION ↗
- Who funds SEATTLE CHILDREN'S HOSPITAL ↗
- Who funds The George Washington University ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a set of overlaps that mostly run through you, not between each other.
Open a dossier: Donor Advised Charitable Giving Inc
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization Scleroderma Research Foundation funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- Johns Hopkins University — 12% of income from government
- Yale University — 12% of income from government
- Children's Hospital Corporation — 10% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.