Skip to content

· Public charity

Rohhad Fight Inc

To expand knowledge of the rare syndrome called rohhad, advance treatment, discover a cure, enhance the quality of life of children with rohhad, and ease the financial burden of families who have children suffering from rohhad.

$57k
Granted FY2021
2
Grants FY2021
2
States reached
$38k
Largest
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2021.

Health$234kPhilanthropy$60kScience & Tech$19kRecreation & Sports$10k
02FY2021 · 2 grants

Where the money goes

Grants by size, and the largest recipients.

$37,659
Median grant
2
States reached
$207k
Total assets
Largest grants
RecipientAmount
BOSTON CHILDREN'S HOSPITAL$37,659
THE TRUSTEES OF COLUMBIA UNIVERSITY$19,455
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–21) land where the poverty rate runs at 15%, against an area that typically sits at 12%. 100% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 12%BOSTON CHILDRENS HOSPITAL: $70k → 16%THE TRUSTEES OF COLUMBIA UNIVERSITY: $19k → 17%LURIE CHILDRENS HOSPITAL: $100k → 14%BOSTON CHILDREN'S HOSPITAL: $38k → 16%THE CHICAGO COMMUNITY FOUNDA: $50k → 14%BOSTON CHILDRENS HOSPITAL: $26k → 16%THE CHICAGO COMMUNITY FOUNDA: $10k → 14%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its field
04the grantee network

4 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 4 of the 5 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
4/4
Grantees still filing
4/4
Grew since first funded

Where the money sits, by cause and then by grantee

Children's Hospital Corporation: $133,659 · HealthChildren's Hospital CorporationAnn & Robert H Lurie Children's Hospital of Chicago: $100,000 · HealthAnn & Robert H Lurie Children's Hospital of ChicagoCHICAGO COMMUNITY FOUNDATION: $60,000 · OtherCHICAGO COMMUNITY FOU…THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $19,455 · EducationNorthwestern University: $10,000 · Recreation & Sports
Health$233,659Other$60,000Education$19,455Recreation & Sports$10,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%grantee revenue →↑ funder's share of their budgetChildren's Hospital Corporation: $133,659 over 3y, 0.0% of budgetAnn & Robert H Lurie Children's Hospital of Chicago: $100,000 over 1y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $19,455 over 1y, 0.0% of budgetNorthwestern University: $10,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization Rohhad Fight Inc funds: left to right is the share of its income from government, bottom to top the share from Rohhad Fight Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%5%10%15%20%share of the org’s income from government →median 10%
  • Children's Hospital Corporation: 10% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–20%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
04Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Rohhad Fight Inc?

Find your warmest path to Rohhad Fight Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 5 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2021, released 2021. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Possibly out of date. A more recent filing (FY2025) is on record and reports $14k of grant expense, but none of it to a named recipient. On a Form 990 that can mean grants abroad, filed by region only (Schedule F), grants under $5,000, which are not itemized, or a schedule referenced as an attachment the e-file does not carry. The figures above are therefore from FY2021, the most recent year this funder named its grantees.

Source object · view filing

Play a game based on Rohhad Fight’s filings →

More from the funding graph