· Public charity
Rare Village Foundation
To fight for cures for rare diseases and empower individuals with rare diseases to live their best lives through local community education, inspiring advocacy, and timely connection to critical research that leads to cures
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2021 to 2024.
Where the money goes
Grants by size, and the largest recipients.
By grant size · FY2024
- Under $10k6 grants · $24k
- $10k–50k8 grants · $162k
- $50k–250k8 grants · $845k
- $250k+4 grants · $2.0M
| Recipient | Amount |
|---|---|
| Individual grant recipient | $842,626 |
| ANDELYN BIOSCIENCES | $599,152 |
| CHARLES RIVER DISCOVERY RESEARCH | $304,722 |
| Individual grant recipient | $291,521 |
| SONSHINE FOUNDATION | $161,526 |
| PERLARA PBC | $130,727 |
| Individual grant recipient | $120,550 |
| NORTHWESTERN UNIVERSITY | $109,091 |
| Individual grant recipient | $105,288 |
| UNIVERSITY OF MISSOURI | $91,488 |
| Individual grant recipient | $75,831 |
| SEATTLE CHILDRENS HOSPITAL | $50,000 |
| ICHAN SCHOOL OF MEDICINE | $38,000 |
| UNIVERSIT OF PENN | $35,027 |
| IXCELLS | $27,621 |
Does the money reach high-need areas?
Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.
Dollar for dollar, its grants (FY21–24) land where the poverty rate runs at 12%, against an area that typically sits at 10%. 75% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.
How this is measured
Which US states its grants reach
How this is measured
Closest unfunded matches
The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.
The hugo w. moser research institute at kennedy krieger, inc. (the "research institute") is an internationally recognized research facility finding answers to problems and injuries that affect a child's developing brain. researchers have…
Sanford burnham prebys medical discovery institute's mission is to advance the biomedical sciences by cultivating the next generation of scientific leaders, providing meaningful opportunities for researchers of all backgrounds to learn,…
To provide the highest quality care to improve the lives of children with orthopedic and related conditions and specific learning disabilities. texas scottish rite hospital for children focuses on patient care, research and education.
Pediatric healthcare, education & research
The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other life-threatening neurological disorders. families in this community have been pivotal in raising the necessary funds and awareness. together,…
Children's research institute dba children's national research institute conducts and promotes translational and clinical medical research and education programs that lead to improved understanding, prevention, treatment, and care of…
The mission of children's hospital & research center at oakland is to protect and advance the health and well-being of children through clinical care, teaching and research.
As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
To further the conservation, improvement and restoration of human eyesight" (mrs. doheny - 1947).
Operate a state-of-the-art, world-class genomic research center that creates and uses advanced genomics to understand the genetic basis of disease. for more information, see schedule o.
How this is measured
9 grantees tracked through their own filings, 2017–2026.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2017 to 2026, not grant rows in a single year, so this will not match the grant count on the cover. 9 of the 35 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Where the money sits, by cause and then by grantee
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
- Who funds RIAAN RESEARCH INITIATIVE INC ↗
- Who funds Finding Hope for FRRS1L ↗
- Who funds Northwestern University ↗
- Who funds Raiden Science Foundation ↗
- Who funds SEATTLE CHILDREN'S HOSPITAL ↗
- Who funds ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ↗
- Who funds DREXEL UNIVERSITY ↗
- Who funds MONOAMINE OXIDASE DEFICIENCY FOUNDATION ↗
- Who funds Children's Hospital Corporation ↗
How much its grantees rely on government
Each dot is one organization Rare Village Foundation funds: left to right is the share of its income from government, bottom to top the share from Rare Village Foundation. Bigger dots raise more.
- Children's Hospital Corporation: 10% of income from government
How this is measured
Warm introductions · Powered by PlinthPlus
How do I get to Rare Village Foundation?
Find your warmest path to Rare Village Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
Play a game based on Rare Village’s filings →