· Public charity
Rare Village Foundation
To fight for cures for rare diseases and empower individuals with rare diseases to live their best lives through local community education, inspiring advocacy, and timely connection to critical research that leads to cures
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2021–2024.
Where the money goes
Your grants by size, and where they go.
By grant size · FY2024
- Under $10k6 grants · $24k
- $10k–50k8 grants · $162k
- $50k–250k8 grants · $845k
- $250k+4 grants · $2.0M
| Recipient | Amount |
|---|---|
| Individual grant recipient | $842,626 |
| ANDELYN BIOSCIENCES | $599,152 |
| CHARLES RIVER DISCOVERY RESEARCH | $304,722 |
| Individual grant recipient | $291,521 |
| SONSHINE FOUNDATION | $161,526 |
| PERLARA PBC | $130,727 |
| Individual grant recipient | $120,550 |
| NORTHWESTERN UNIVERSITY | $109,091 |
| Individual grant recipient | $105,288 |
| UNIVERSITY OF MISSOURI | $91,488 |
| Individual grant recipient | $75,831 |
| SEATTLE CHILDRENS HOSPITAL | $50,000 |
| ICHAN SCHOOL OF MEDICINE | $38,000 |
| UNIVERSIT OF PENN | $35,027 |
| IXCELLS | $27,621 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY21–24) land where the poverty rate runs at 12%, against an area that typically sits at 10%. 75% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
The hugo w. moser research institute at kennedy krieger, inc. (the "research institute") is an internationally recognized research facility finding answers to problems and injuries that affect a child's developing brain. researchers have…
Sanford burnham prebys medical discovery institute's mission is to advance the biomedical sciences by cultivating the next generation of scientific leaders, providing meaningful opportunities for researchers of all backgrounds to learn,…
Pediatric healthcare, education & research
THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…
Operate a state-of-the-art, world-class genomic research center that creates and uses advanced genomics to understand the genetic basis of disease. for more information, see schedule o.
The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other life-threatening neurological disorders. families in this community have been pivotal in raising the necessary funds and awareness. together,…
The mission of dfci is to provide expert, compassionate, and equitable care to children, adults, and their families, while advancing the understanding, diagnosis, treatment, cure, and prevention of cancer and related diseases. we train new…
Please see schedule o
Stanley manne children's research institute strives to generate new knowledge and advance the prevention, diagnosis, and treatment of pediatric diseases.
Children's research institute dba children's national research institute conducts and promotes translational and clinical medical research and education programs that lead to improved understanding, prevention, treatment, and care of…
To further the conservation, improvement and restoration of human eyesight" (mrs. doheny - 1947).
For reference, the grantee most central to the portfolio’s shape is Icahn School of Medicine At Mount Sinai and the most unlike its peers is Drexel University. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
9 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 9 of the 35 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds RIAAN RESEARCH INITIATIVE INC ↗
- Who funds Finding Hope for FRRS1L ↗
- Who funds Northwestern University ↗
- Who funds Raiden Science Foundation ↗
- Who funds SEATTLE CHILDREN'S HOSPITAL ↗
- Who funds ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ↗
- Who funds DREXEL UNIVERSITY ↗
- Who funds MONOAMINE OXIDASE DEFICIENCY FOUNDATION ↗
- Who funds Children's Hospital Corporation ↗
Government reliance of your grantees
Every dot is one organization Rare Village Foundation funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.
- Children's Hospital Corporation — 10% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.
Warm introductions · Powered by PlinthPlus
How do I get to Rare Village Foundation?
Find your warmest path to Rare Village Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.