Texas · Public charity
Rare Village Foundation
To fight for cures for rare diseases and empower individuals with rare diseases to live their best lives through local community education, inspiring advocacy, and timely connection to critical research that leads to cures
- $3.0M
- Granted FY2024(still arriving)
- 26
- Grants FY2024
- 8
- Organizations funded FY2022
- 75%
- First-time grantees FY2022
- Median grant, FY2024
- $38,000
- Largest grant, FY2024
- $842,626
- Organizations funded a year
- 4 to 8
- FY2021 to FY2022
- States reached, FY2024
- 11
- Total assets, FY2024
- $3.3M
How open it is to new grantees
In FY2022, 75% of the organizations Rare Village Foundation funded were first-time grantees, receiving 87% of its grant dollars.
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2024still arriving | 26 | $3.1M | 96% |
| FY2022 | 8 | $855k | 75% |
| FY2021 | 4 | $1.3M | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2021 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2021 to FY2024, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Riaan Research Initiative Inc | $1,010,936 | 3 | n/a |
| Andelyn Biosciences Inc | $599,152 | 2 | n/a |
| Finding Hope for FRRS1L | $422,467 | 2 | n/a |
| Rarebase PBC | $213,400 | 3 | n/a |
| Northwestern University | $192,591 | 5 | 0% |
| Raiden Science Foundation | $179,021 | 2 | 51% |
| Perlara Pbc | $130,727 | 2 | n/a |
| Seattle Children's Hospital | $50,000 | 2 | 0% |
| Icahn School of Medicine at Mount Sinai | $38,000 | 2 | 0% |
| Drexel University | $28,000 | 2 | 0% |
Show all 13 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Riaan Research Initiative Inc | $1,010,936 | 3 | n/a |
| Andelyn Biosciences Inc | $599,152 | 2 | n/a |
| Finding Hope for FRRS1L | $422,467 | 2 | n/a |
| Rarebase PBC | $213,400 | 3 | n/a |
| Northwestern University | $192,591 | 5 | 0% |
| Raiden Science Foundation | $179,021 | 2 | 51% |
| Perlara Pbc | $130,727 | 2 | n/a |
| Seattle Children's Hospital | $50,000 | 2 | 0% |
| Icahn School of Medicine at Mount Sinai | $38,000 | 2 | 0% |
| Drexel University | $28,000 | 2 | 0% |
| Monoamine Oxidase Deficiency Foundation | $27,750 | 2 | 7% |
| Children's Hospital Corporation | $10,000 | 2 | 0% |
| Atxpc Foundation Inc | $3,400 | 2 | n/a |
Plus 22 recipients with no EIN on record ($2.3M), not named here.
Warm introductions · Powered by PlinthPlus
How do I get to Rare Village Foundation?
Find your warmest path to Rare Village Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
About Rare Village Foundation
- How much does Rare Village Foundation give?
- Rare Village Foundation reported 26 grants totaling $3,015,227 in its FY2024 IRS filing. It funded between 4 and 8 organizations a year over FY2021 to FY2022.
- What does Rare Village Foundation fund?
- By grant dollars over FY2021 to FY2024, its largest causes are Health (49%), Science & Tech (41%), Arts & Culture (4%).
- Who are Rare Village Foundation's largest grantees?
- By total granted over FY2021 to FY2024: Riaan Research Initiative Inc ($1.0M), Andelyn Biosciences Inc ($599k), Finding Hope for FRRS1L ($422k).
- Does Rare Village Foundation fund new organizations?
- In FY2022, 75% of the organizations it funded were first-time grantees.
- Where is Rare Village Foundation based?
- Rare Village Foundation is based in TX.
Play a game based on Rare Village’s filings →