· Public charity
Prader-Willi Syndrome Association (Usa)
To enhance the quality of life and empower those affected by prader-willi syndrome.
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.
Where the money goes
Grants by size, and the largest recipients.
How this is measured
| Recipient | Amount |
|---|---|
| THE CHICAGO SCHOOL | $45,000 |
Does the money reach high-need areas?
Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.
Dollar for dollar, its grants (FY17–22) land where the poverty rate runs at 13%, against an area that typically sits at 12%. 51% of its dollars go to grantees based in above-average-need neighborhoods. Its grants spread fairly evenly across need levels.
How this is measured
How this is measured
Who it funds again
Organizations funded in more than one year, against those funded once.
Grantees it renews have grown median revenue +92% since the first grant, against +20% for those funded once.
5 repeat relationships: 1 still active in FY2025, 4 since wound down.
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
Backed again, and grew
- UOUNIVERSITY OF FLORIDA5× · 2017–2023 · $458k
- CHCHILDREN'S HOSPITAL OF PITTSBURGH2× · 2017–2018 · $240k
- TCThe Chicago School of Professional Psychology3× · 2020–2025 · $190k · revenue -1%
Funded once
- UOUNIVERSITY OF WESTERN AUSTRALIAone grant, 2017 · $78k
CASE WESTERN RESERVE UNIVERSITYgraduatedone grant, 2019 · $30k · revenue +43%- TGTHE GOVERNORS OF THE UNIVERSITY OF ALBERTAone grant, 2019 · $23k · revenue +20%
How this is measured
Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.
5 grantees tracked through their own filings, 2017–2026.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2017 to 2026, not grant rows in a single year, so this will not match the grant count on the cover. 5 of the 12 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Where the money sits, by cause and then by grantee
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
How much its grantees rely on government
Each dot is one organization Prader-Willi Syndrome Association (Usa) funds: left to right is the share of its income from government, bottom to top the share from Prader-Willi Syndrome Association (Usa). Bigger dots raise more.
How this is measured
Play a game based on Prader-Willi Syndrome Association (Usa)’s filings →