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Florida · Public charity

Prader-Willi Syndrome Association (Usa)

To enhance the quality of life and empower those affected by prader-willi syndrome.

$50k
Granted FY2025(still arriving)
1
Itemized grants FY2025
1
Organizations funded FY2023
0%
First-time grantees FY2023
Read the full brief
Itemized, FY2025
$45k
The rest is grants the schedule does not break out
Median grant, FY2025
$45,000
Largest grant, FY2025
$45,000
Organizations funded a year
1 to 8
FY2017 to FY2023
States reached, FY2025
1
Total assets, FY2025
$3.6M

How open it is to new grantees

In FY2023, 0% of the organizations Prader-Willi Syndrome Association (Usa) funded were first-time grantees, receiving 0% of its grant dollars.

New vs renewed · share of each year

In FY2023, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’18’19’20’21’22’23
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23
EducationInternationalHealth
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2025still arriving1$45k0%
FY20231$44k0%
FY20222$120k0%
FY20212$69k0%
FY20205$149k40%
FY20195$262k40%
FY20183$143k0%
FY20178$427kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$653kEducation$357kRecreation & Sports$138kFood & Nutrition$89kInternational$23kHuman Services$455

Top grantees

Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.

Plus 6 recipients with no EIN on record ($500k), not named here.

Compare Prader-Willi Syndrome Association (Usa) with peer funders

About Prader-Willi Syndrome Association (Usa)

How much does Prader-Willi Syndrome Association (Usa) give?
Prader-Willi Syndrome Association (Usa) reported 1 itemized grants totaling $45,000, out of $50,000 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 1 and 8 organizations a year over FY2017 to FY2023.
What does Prader-Willi Syndrome Association (Usa) fund?
By grant dollars over FY2017 to FY2025, its largest causes are Health (52%), Education (28%), Recreation & Sports (11%).
Who are Prader-Willi Syndrome Association (Usa)'s largest grantees?
By total granted over FY2017 to FY2025: University of Florida ($458k), The Chicago School of Professional Psychology ($190k), Foundation for Prader-Willi Research Inc ($50k).
Does Prader-Willi Syndrome Association (Usa) fund new organizations?
In FY2023, 0% of the organizations it funded were first-time grantees.
Where is Prader-Willi Syndrome Association (Usa) based?
Prader-Willi Syndrome Association (Usa) is based in FL.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 12 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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