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Phelan McDermid Syndrome Foundation at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Phelan McDermid Syndrome Foundation

The mission of the Phelan-McDermid Syndrome Foundation is to make today better and the future brighter for everyone living with Phelan-McDermid syndrome - from the moment of diagnosis to the delivery of treatments and cures.

$105k
Granted FY2025still arriving
1
Grants FY2025still arriving
1
States reached
$100k
Largest
01What it fundsRead
02The needRead
03Its fieldRead
04Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$705kEducation$27k
02FY2025 · 1 grant

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 1 grants below total $100,000, the rows itemized in this filing. The $105,000 headline is the total grant expense on the return; the other $5,000 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.
$100,000
Median grant
1
States reached
$2.2M
Total assets
Largest grants
RecipientAmount
Children's Hospital of Los Angeles$100,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 15%, against an area that typically sits at 11%. 89% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%Boston Children's Hospital: $116k → 16%STANFORD UNIVERSITY: $27k → 8%Children's Hospital of Los Angeles: $100k → 14%Autism Science Foundation: $10k → 9%Seaver Autism Center: $100k → 17%Univ of Texas SW Medical Cent: $27k → 14%Clemson University Foundation: $55k → 16%University of Miami: $55k → 15%Kyle's Angels: $12k → 12%Caring Voice Coalition Inc: $40k → 5%Children's Hospital Corporation: $100k → 16%Icahn School of Medicine at Mount Sinai: $21k → 17%Northeastern University: $55k → 16%Boston Childrens Hospital: $14k → 16%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

NY
MA
CA
MO
VA
SC
TX
FL
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
2
Massachusetts Institute of Technology

The mission of mit is to advance knowledge and educate students in science, technology, and other areas of scholarship that will best serve the nation and the world in the 21st century.

Education
3
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
4
Cornell University

Education, research, medical services and other public services.

Education
5
Southern California University of Health Sciences

The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…

Education
6
Case Western Reserve University

Case Western Reserve University is an independent, research-oriented university with broadly based strengths in health, including medicine, nursing and dentistry; in engineering; in the arts and sciences; and in law, management and social…

Education
7
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
8
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
9
Massachusetts Eye & Ear Infirmary

THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…

Health
10
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
11
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
12
Lehigh University

The university's goal in the coming decade is to advance learning through the integration of teaching, research and service to others. the core of this goal is to prepare graduates to engage with the world and lead lives of meaning. to do…

Education
How this is measured
The grantee most central to the portfolio’s shape is Northeastern University; the most unlike its peers is Children's Hospital Corporation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

9 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 9 of the 12 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
8/9
Grantees still filing
7/9
Grew since first funded

Where the money sits, by cause and then by grantee

Children's Hospital Corporation: $216,392 · HealthChildren's Hospital CorporationChildren's Hospital Los Angeles: $100,000 · HealthChildren's Hospital Los Angeles+1 more: $10,000 · HealthICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $120,900 · EducationICAHN SCHOOL OF MEDICINE AT MOUNT SINAINORTHEASTERN UNIVERSITY: $55,000 · EducationNORTHEASTERN UNIVERSITYUniversity of Miami: $55,000 · EducationUniversity of MiamiCLEMSON UNIVERSITY FOUNDATION: $55,000 · EducationCLEMSON UNIVERSITY FOUNDATIONTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $27,000 · EducationTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUN…CARING VOICE COALITION INC: $40,000 · OtherCARING VOICE C…Univ of Texas SW Medical Cent: $27,000 · OtherUniv of Texas …Boston Childrens Hospital: $14,000 · OtherBoston Childre…KYLES ANGELS: $11,688 · OtherKYLES ANGELS
Health$326,392Education$312,900Other$92,688

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetChildren's Hospital Corporation: $216,392 over 2y, 0.0% of budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $120,900 over 2y, 0.0% of budgetChildren's Hospital Los Angeles: $100,000 over 1y, 0.0% of budgetNORTHEASTERN UNIVERSITY: $55,000 over 1y, 0.0% of budgetUniversity of Miami: $55,000 over 1y, 0.0% of budgetCLEMSON UNIVERSITY FOUNDATION: $55,000 over 1y, 0.1% of budgetCARING VOICE COALITION INC: $40,000 over 1y, 0.1% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $27,000 over 1y, 0.0% of budgetAUTISM SCIENCE FOUNDATION: $10,000 over 1y, 0.8% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization Phelan McDermid Syndrome Foundation funds: left to right is the share of its income from government, bottom to top the share from Phelan McDermid Syndrome Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%5%10%15%20%share of the org’s income from government →median 7%
  • Children's Hospital Corporation: 10% of income from government
  • Northeastern University: 7% of income from government
  • University of Miami: 5% of income from government
no gov moneyreceives it· size = income
0get no government money at all
1report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–20%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
04Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Phelan McDermid Syndrome Foundation?

Find your warmest path to Phelan McDermid Syndrome Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 12 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home