How much does Phelan McDermid Syndrome Foundation give?

Phelan McDermid Syndrome Foundation reported 1 itemized grants totaling $100,000, out of $105,000 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 1 and 4 organizations a year over FY2017 to FY2024.

What does Phelan McDermid Syndrome Foundation fund?

By grant dollars over FY2017 to FY2025, its largest causes are Health (96%), Education (4%).

Who are Phelan McDermid Syndrome Foundation's largest grantees?

By total granted over FY2017 to FY2025: Children's Hospital Corporation ($216k), Icahn School of Medicine at Mount Sinai ($121k), Children's Hospital Los Angeles ($100k).

Does Phelan McDermid Syndrome Foundation fund new organizations?

In FY2024, 33% of the organizations it funded were first-time grantees.

Where is Phelan McDermid Syndrome Foundation based?

Phelan McDermid Syndrome Foundation is based in FL.

Foundation Dossiers Mostly funded, not a grantmaker: see who funds it →

Florida · Public charity

Phelan McDermid Syndrome Foundation

The mission of the Phelan-McDermid Syndrome Foundation is to make today better and the future brighter for everyone living with Phelan-McDermid syndrome - from the moment of diagnosis to the delivery of treatments and cures.

$105k
Granted FY2025(still arriving): 1
Itemized grants FY2025: 3
Organizations funded FY2024: 33%
First-time grantees FY2024

Read the full brief

Itemized, FY2025: $100k; The rest is grants the schedule does not break out
Median grant, FY2025: $100,000
Largest grant, FY2025: $100,000
Organizations funded a year: 1 to 4; FY2017 to FY2024
States reached, FY2025: 1
Total assets, FY2025: $2.2M

How open it is to new grantees

In FY2024, 33% of the organizations Phelan McDermid Syndrome Foundation funded were first-time grantees, receiving 20% of its grant dollars.

New vs renewed · share of each year

In FY2024, 80% of grant dollars renewed an existing relationship; $55k went to new ones.

RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

EducationHealthOther

How this is measured

First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

The numbers by year

Fiscal year	Organizations funded	To those organizations	First-time grantees
FY2025still arriving	1	$100k	100%
FY2024	3	$271k	33%
FY2023	4	$220k	100%
FY2022	1	$21k	100%
FY2021	1	$12k	100%
FY2017	3	$81k	n/a

100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$705kEducation$27k

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

Top grantees

Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.

Grantee	Total granted	Years	Share of their budget
Children's Hospital Corporation	$216,392	2	0%
Icahn School of Medicine at Mount Sinai	$120,900	2	0%
Children's Hospital Los Angeles	$100,000	1	0%
Northeastern University	$55,000	1	0%
University of Miami	$55,000	1	0%
Clemson University Foundation	$55,000	1	0%
Caring Voice Coalition Inc	$40,000	1	0%
Kyles Angels	$11,688	1	n/a
Autism Science Foundation	$10,000	1	1%

Plus 2 recipients with no EIN on record ($41k), not named here.

Each grantee by its size and the share of its budget Phelan McDermid Syndrome Foundation supplied at peak.

Tap a dot to name the grantee.

How this is measured

Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 8.

Compare Phelan McDermid Syndrome Foundation with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to Phelan McDermid Syndrome Foundation?

Find your warmest path to Phelan McDermid Syndrome Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About Phelan McDermid Syndrome Foundation

How much does Phelan McDermid Syndrome Foundation give?: Phelan McDermid Syndrome Foundation reported 1 itemized grants totaling $100,000, out of $105,000 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 1 and 4 organizations a year over FY2017 to FY2024.
What does Phelan McDermid Syndrome Foundation fund?: By grant dollars over FY2017 to FY2025, its largest causes are Health (96%), Education (4%).
Who are Phelan McDermid Syndrome Foundation's largest grantees?: By total granted over FY2017 to FY2025: Children's Hospital Corporation ($216k), Icahn School of Medicine at Mount Sinai ($121k), Children's Hospital Los Angeles ($100k).
Does Phelan McDermid Syndrome Foundation fund new organizations?: In FY2024, 33% of the organizations it funded were first-time grantees.
Where is Phelan McDermid Syndrome Foundation based?: Phelan McDermid Syndrome Foundation is based in FL.