· Public charity
Pathways for Rare and Orphan Studies
Helping rare disease organizations pave the way for development of a new treatment, and bringing approved treatments to rare disease patients who cannot access treatments.
Where the money goes
Grants by size, and the largest recipients.
| Recipient | Amount |
|---|---|
| RARE DISEASE GHANA INITIATIVE | $6,905 |
Where the grant dollars land
Across the US and around the world.
US giving: 0% of grant dollars ($0). The 100% that went abroad ($7k) is mapped below.
Beyond the US: 100% of all-years giving ($7k)
1 country, by the recipient’s country on the filing.
How this is measured
0 grantees tracked through their own filings, 2024–2024.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2024 to 2024, not grant rows in a single year, so this will not match the grant count on the cover. 0 of the 1 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
Warm introductions · Powered by PlinthPlus
How do I get to Pathways for Rare and Orphan Studies?
Find your warmest path to Pathways for Rare and Orphan Studies through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
Play a game based on Pathways for Rare and Orphan Studies’ filings →