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California · Public charity

Pathways for Rare and Orphan Studies

Helping rare disease organizations pave the way for development of a new treatment, and bringing approved treatments to rare disease patients who cannot access treatments.

$7k
Granted FY2024(still arriving)
1
Grants FY2024
Read the full brief
Median grant, FY2024
$6,905
Largest grant, FY2024
$6,905
Total assets, FY2024
$448k

Top grantees

Largest grants in FY2024.

RARE DISEASE GHANA INITIATIVE$6,905

Compare Pathways for Rare and Orphan Studies with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to Pathways for Rare and Orphan Studies?

Find your warmest path to Pathways for Rare and Orphan Studies through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About Pathways for Rare and Orphan Studies

How much does Pathways for Rare and Orphan Studies give?
Pathways for Rare and Orphan Studies reported 1 grants totaling $6,905 in its FY2024 IRS filing.
What does Pathways for Rare and Orphan Studies fund?
By grant dollars over FY2024 to FY2024, its largest causes are Health (100%).
Where is Pathways for Rare and Orphan Studies based?
Pathways for Rare and Orphan Studies is based in CA.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 1 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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