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Osteogenesis Imperfecta Foundation at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Osteogenesis Imperfecta Foundation

Our mission is to improve the quality of life for people affected by oi through research to find treatments and a cure, education, awareness, and mutual support.

$389k
Granted FY2025still arriving
3
Grants FY2025still arriving
3
States reached
$50k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2019 to 2025.

Health$1.1MEducation$345kScience & Tech$114k
02FY2025 · 3 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 3 grants below total $125,000, the rows itemized in this filing. The $388,702 headline is the total grant expense on the return; the other $263,702 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • $10k–50k1 grant · $25k
  • $50k–250k2 grants · $100k
$50,000
Median grant
3
States reached
$1.7M
Total assets
Largest grants
RecipientAmount
THE REGENTS OF THE UNIVERSITY CALIFORNIA LOS ANGELES$50,000
BOSTON CHILDREN'S HOSPITAL$50,000
UNIVERSITY OF SOUTH FLORIDA$25,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY19–25) land where the poverty rate runs at 14%, against an area that typically sits at 12%. 80% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 12%PHOENIX CHILDREN'S HOSPITAL: $25k → 11%ALFRED I DUPONT HOSPITAL FOR CHILDREN OF THE NEMOURS FND: $10k → 10%BOSTON CHILDREN'S HOSPITAL: $50k → 16%THE REGENTS OF THE UNIVERSITY CALIFORNIA LOS ANGELES: $50k → 14%HOSPITAL FOR SPECIAL SURGERY: $65k → 17%BRITTLE BONE DISORDERS CONSORTIUM: $88k → 16%UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES: $10k → 17%CHILDREN'S NATIONAL HEALTH SYSTEM: $110k → 14%UNIVERSITY OF SOUTH FLORIDA: $25k → 13%DUKE UNIVERSITY SCHOOL OF MEDICINE: $50k → 11%NICHD: $50k → 8%HUGO W MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER INC: $9k → 19%PHOENIX CHILDREN'S HOSPITAL FOUNDATION: $25k → 11%ALFRED DUPONT HOSPITAL FOR CHILDREN OF THE NEMOURS FOUNDATION: $10k → 10%BOSTON CHILDREN'S HOSPITAL: $50k → 16%UNIVERSITY OF CALIFORNIA - LOS ANGELES: $50k → 14%HOSPITAL FOR SPECIAL SURGERY: $25k → 17%BAYLOR COLLEGE OF MEDICINE: $50k → 16%CHILDREN'S NATIONAL HEALTH SYSTEM: $50k → 14%UNIVERSITY OF SOUTH FLORIDA: $14k → 13%DUKE UNIVERSITY SCHOOL OF MEDICINE: $80k → 11%PHOENIX CHILDREN'S HOSPITAL FOUNDATION: $25k → 11%BOSTON CHILDREN'S HOSPITAL: $50k → 16%UNIVERSITY OF CALIFORNIA - LOS ANGELES: $50k → 14%HOSPITAL FOR SPECIAL SURGERY: $25k → 17%BAYLOR COLLEGE OF MEDICINE: $50k → 16%CHILDREN'S NATIONAL HEALTH SYSTEM: $48k → 14%UNIVERSITY OF SOUTH FLORIDA: $70k → 13%DUKE UNIVERSITY SCHOOL OF MEDICINE: $19k → 11%BRITTLE BONE DISORDERS CONSORTIUM: $40k → 16%CHILDREN'S NATIONAL HEALTH SYSTEM: $42k → 14%UNIVERSITY OF SOUTH FLORIDA: $50k → 13%UNIVERSITY OF SOUTH FLORIDA: $45k → 13%UNIVERSITY OF SOUTH FLORIDA: $25k → 13%SHRINERS HOSPITALS FOR CHILDREN: $25k → 13%SHRINERS HOSPITAL FOR CHILDREN - TAMPA: $25k → 13%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

NY
MA
CA
NE
MD
DE
AZ
AR
NC
DC
TX
FL

Grants abroad, by region: $145k on the FY2025 return

Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

North America (Canada and Mexico)$95k · 66% · 2 grants

Stated purpose: FELLOWSHIP GRANT · RESEARCH GRANT

Europe (including Iceland and Greenland)$50k · 34% · 1 grant

Stated purpose: FELLOWSHIP GRANT

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

86%of every dollar goes to organizations it has funded before.
$1.3M · 10 repeat orgs$223k to everyone else

Grantees it renews have grown median revenue +47% since the first grant, against +33% for those funded once.

10 repeat relationships: 2 still active in FY2025, 8 since wound down; 1 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

10
6

Total granted

$1.3M
$173k

Median revenue growth · since first grant

+47%
+33%

Still filing today

80%
50%

New vs renewed · share of each year

In FY2025, 60% of grant dollars renewed an existing relationship; $50k went to new ones.

50%100%’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’19’20’21’22’23’24’25
HealthEducationScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • CN
    CHILDREN'S NATIONAL
    4× · 2019–2022 · $250k · revenue +328%
  • BC
    Baylor College of Medicine
    4× · 2020–2023 · $228k · revenue +47%
  • CH
    Children's Hospital Corporation
    3× · 2023–2025 · $150k · revenue +32%

Funded once

  • BO
    BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA
    one grant, 2019 · $60k
  • N
    NIHNIA
    one grant, 2019 · $50k
  • TH
    The Hospital for Special Surgery Fund Incgraduated
    one grant, 2019 · $25k · revenue +26%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
2
Children's Hospital & Research Center At Oakland

The mission of children's hospital & research center at oakland is to protect and advance the health and well-being of children through clinical care, teaching and research.

Health
3
Texas Scottish Rite Hospital for Crippled Children

To provide the highest quality care to improve the lives of children with orthopedic and related conditions and specific learning disabilities. texas scottish rite hospital for children focuses on patient care, research and education.

Health
4
Children's Health Care

We champion the health needs of children and families. we are committed to improving children's health by providing the highest-quality, family centered care, advanced through research and education.

Health
5
Texas Children's Hospital

Texas children's hospital, headquartered in houston, texas, is a not-for-profit organization whose mission is to create a healthier future for children and women throughout our global community by leading in patient care, education and…

Health
6
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
7
Beth Israel Hospital & Children's Hospital Medical Care Corporation

Pediatric healthcare, education & research

—
8
Memorial Sloan-Kettering Cancer Center

Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.

Health
9
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
10
Johns Hopkins Health System Corporation

Johns hopkins health system corporation provides centralized management of a multi-hospital healthcare system. it is a key component of johns hopkins medicine, a collaboration with the johns hopkins university school of medicine.

Health
11
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
12
Children's Research Institute

Children's research institute dba children's national research institute conducts and promotes translational and clinical medical research and education programs that lead to improved understanding, prevention, treatment, and care of…

Health
How this is measured
The grantee most central to the portfolio’s shape is Shriners Hospitals for Children; the most unlike its peers is Hugo W Moser Research Institute At Kennedy Krieger Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

11 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 11 of the 17 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
11/11
Grantees still filing
11/11
Grew since first funded

Where the money sits, by cause and then by grantee

CHILDREN'S NATIONAL: $249,537 · HealthCHILDREN'S NATIONALChildren's Hospital Corporation: $150,000 · HealthChildren's Hospital CorporationNEW YORK SOCIETY FOR THE RELIEF OF THE RUPTURED AND CRIPPLED MAINTAINING THE: $90,000 · HealthNEW YORK SOCIETY FOR THE RELIEF OF THE RUPTURED A…Phoenix Children's Hospital Foundation: $75,000 · HealthPhoenix Children's Hospital FoundationSHRINERS HOSPITALS FOR CHILDREN: $50,000 · HealthSHRINERS HOSPITALS FOR CHILDRENThe Hospital for Special Surgery Fund Inc: $25,000 · Health+2 more: $39,334 · Health+2 moreUNIVERSITY OF SOUTH FLORIDA: $228,880 · OtherUNIVERSITY OF SOUTH FLORIDAREGENTS UNIV OF CALIFORNIA: $100,000 · OtherREGENTS UNIV OF CALIFORNIABOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA: $59,815 · OtherBOARD OF REGENTS OF THE UNIVERSITY O…REGENTS OF THE UNIVERSITY OF CALIFORNIA: $50,000 · OtherREGENTS OF THE UNIVERSITY OF CALIFOR…NIHNIA: $50,000 · OtherNIHNIA+1 more: $10,000 · OtherBaylor College of Medicine: $227,500 · EducationBaylor College of MedicineDUKE UNIVERSITY: $130,454 · EducationDUKE UNIVERSITYHUGO W MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER INC: $8,500 · Science & Tech
Health$678,871Other$498,695Education$357,954Science & Tech$8,500

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetCHILDREN'S NATIONAL: $249,537 over 4y, 15% of budgetBaylor College of Medicine: $227,500 over 4y, 0.0% of budgetChildren's Hospital Corporation: $150,000 over 3y, 0.0% of budgetDUKE UNIVERSITY: $130,454 over 2y, 0.0% of budgetNEW YORK SOCIETY FOR THE RELIEF OF THE RUPTURED AND CRIPPLED MAINTAINING THE: $90,000 over 2y, 0.0% of budgetPhoenix Children's Hospital Foundation: $75,000 over 3y, 0.1% of budgetSHRINERS HOSPITALS FOR CHILDREN: $50,000 over 2y, 0.0% of budgetThe Hospital for Special Surgery Fund Inc: $25,000 over 1y, 0.1% of budgetTHE NEMOURS FOUNDATION: $20,000 over 2y, 0.0% of budgetDUKE UNIVERSITY HEALTH SYSTEM INC: $19,334 over 1y, 0.0% of budgetHUGO W MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER INC: $8,500 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization Osteogenesis Imperfecta Foundation funds: left to right is the share of its income from government, bottom to top the share from Osteogenesis Imperfecta Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%1%5%11%20%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 10%
  • Hugo W Moser Research Institute at Kennedy Krieger Inc: 39% of income from government
  • Children's Hospital Corporation: 10% of income from government
  • The Nemours Foundation: 0% of income from government
  • Shriners Hospitals for Children: 0% of income from government
no gov moneyreceives it· size = income
0get no government money at all
1report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Osteogenesis Imperfecta Foundation?

Find your warmest path to Osteogenesis Imperfecta Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 17 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Osteogenesis Imperfecta’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home