Maryland · Public charity
Osteogenesis Imperfecta Foundation
Our mission is to improve the quality of life for people affected by oi through research to find treatments and a cure, education, awareness, and mutual support. There are at least four distinct forms of osteogenesis imperfecta representing extreme variations in severity and affecting 20,000 to 40,000 people in the united states.
- $389k
- Granted FY2025(still arriving)
- 3
- Itemized grants FY2025
- 4
- Organizations funded FY2024
- 0%
- First-time grantees FY2024
- Itemized, FY2025
- $125k
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $50,000
- Largest grant, FY2025
- $50,000
- Organizations funded a year
- 3 to 10
- FY2019 to FY2024
- States reached, FY2025
- 3
- Total assets, FY2025
- $1.7M
How open it is to new grantees
In FY2024, 0% of the organizations Osteogenesis Imperfecta Foundation funded were first-time grantees, receiving 0% of its grant dollars.
New vs renewed · share of each year
In FY2024, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 3 | $125k | 33% |
| FY2024 | 4 | $150k | 0% |
| FY2023 | 5 | $245k | 20% |
| FY2022 | 10 | $470k | 40% |
| FY2021 | 4 | $180k | 25% |
| FY2020 | 3 | $96k | 67% |
| FY2019 | 8 | $278k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2019 to 2025.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2019 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Children's National | $249,537 | 4 | 15% |
| University of South Florida | $228,880 | 6 | n/a |
| Baylor College of Medicine | $227,500 | 4 | 0% |
| Children's Hospital Corporation | $150,000 | 3 | 0% |
| Duke University | $130,454 | 2 | 0% |
| Regents Univ of California | $100,000 | 2 | n/a |
| New York Society for the Relief of the Ruptured and Crippled Maintaining The | $90,000 | 2 | 0% |
| Phoenix Children's Hospital Foundation | $75,000 | 3 | 0% |
| Board of Regents of the University of Nebraska | $59,815 | 1 | n/a |
| Shriners Hospitals for Children | $50,000 | 2 | 0% |
Show all 17 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Children's National | $249,537 | 4 | 15% |
| University of South Florida | $228,880 | 6 | n/a |
| Baylor College of Medicine | $227,500 | 4 | 0% |
| Children's Hospital Corporation | $150,000 | 3 | 0% |
| Duke University | $130,454 | 2 | 0% |
| Regents Univ of California | $100,000 | 2 | n/a |
| New York Society for the Relief of the Ruptured and Crippled Maintaining The | $90,000 | 2 | 0% |
| Phoenix Children's Hospital Foundation | $75,000 | 3 | 0% |
| Board of Regents of the University of Nebraska | $59,815 | 1 | n/a |
| Shriners Hospitals for Children | $50,000 | 2 | 0% |
| Regents of the University of California | $50,000 | 1 | n/a |
| Nihnia | $50,000 | 1 | n/a |
| The Hospital for Special Surgery Fund Inc | $25,000 | 1 | 0% |
| The Nemours Foundation | $20,000 | 2 | 0% |
| Duke University Health System Inc | $19,334 | 1 | 0% |
| University of Arkansas for Medical Sciences | $10,000 | 1 | n/a |
| Hugo W Moser Research Institute at Kennedy Krieger Inc | $8,500 | 1 | 0% |
Where it is load-bearing
Each grantee by its size and the share of its budget Osteogenesis Imperfecta Foundation supplied at peak.
Tap a dot to name the grantee.
How this is measured
Compare Osteogenesis Imperfecta Foundation with peer funders
Warm introductions · Powered by PlinthPlus
How do I get to Osteogenesis Imperfecta Foundation?
Find your warmest path to Osteogenesis Imperfecta Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
About Osteogenesis Imperfecta Foundation
- How much does Osteogenesis Imperfecta Foundation give?
- Osteogenesis Imperfecta Foundation reported 3 itemized grants totaling $125,000, out of $388,702 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 3 and 10 organizations a year over FY2019 to FY2024.
- What does Osteogenesis Imperfecta Foundation fund?
- By grant dollars over FY2019 to FY2025, its largest causes are Health (70%), Education (22%), Science & Tech (7%).
- Who are Osteogenesis Imperfecta Foundation's largest grantees?
- By total granted over FY2019 to FY2025: Children's National ($250k), University of South Florida ($229k), Baylor College of Medicine ($228k).
- Does Osteogenesis Imperfecta Foundation fund new organizations?
- In FY2024, 0% of the organizations it funded were first-time grantees.
- Where is Osteogenesis Imperfecta Foundation based?
- Osteogenesis Imperfecta Foundation is based in MD.
Play a game based on Osteogenesis Imperfecta’s filings →