Skip to content
Foundation DossiersMostly funded, not a grantmaker: see who funds it →

Illinois · Public charity

Neurofibromatosis Network

To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.

$38k
Granted FY2023
1
Grants FY2023
1
Organizations funded FY2023
0%
First-time grantees FY2023
Read the full brief
Median grant, FY2023
$38,000
Largest grant, FY2023
$38,000
Organizations funded a year
1 to 1
FY2022 to FY2023
States reached, FY2023
1
Total assets, FY2023
$1.3M

How open it is to new grantees

In FY2023, 0% of the organizations Neurofibromatosis Network funded were first-time grantees, receiving 0% of its grant dollars.

The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY20231$38k0%
FY20221$45kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2022 to 2023.

Science & Tech$83k

Top grantees

Largest grants in FY2023.

UNIVERSITY OF WISCONSIN$38,000

Compare Neurofibromatosis Network with peer funders

About Neurofibromatosis Network

How much does Neurofibromatosis Network give?
Neurofibromatosis Network reported 1 grants totaling $38,000 in its FY2023 IRS filing. It funded between 1 and 1 organizations a year over FY2022 to FY2023.
What does Neurofibromatosis Network fund?
By grant dollars over FY2022 to FY2023, its largest causes are Science & Tech (100%).
Does Neurofibromatosis Network fund new organizations?
In FY2023, 0% of the organizations it funded were first-time grantees.
Where is Neurofibromatosis Network based?
Neurofibromatosis Network is based in IL.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 1 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2023, released 2023. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Possibly out of date. A more recent filing (FY2025) is on record and reports no grant expense, so the figures above are from FY2023, the most recent year this funder made grants.

Source object · view filing

Play a game based on Neurofibromatosis Network’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home