California · Public charity
Myotonic Dystrophy Foundation Inc
To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
- $1.0M
- Granted FY2024(still arriving)
- 9
- Itemized grants FY2024
- 6
- Organizations funded FY2023
- 50%
- First-time grantees FY2023
- Itemized, FY2024
- $848k
- The rest is grants the schedule does not break out
- Median grant, FY2024
- $105,000
- Largest grant, FY2024
- $190,000
- Organizations funded a year
- 1 to 6
- FY2017 to FY2023
- States reached, FY2024
- 9
- Total assets, FY2024
- $5.8M
How open it is to new grantees
In FY2023, 50% of the organizations Myotonic Dystrophy Foundation Inc funded were first-time grantees, receiving 30% of its grant dollars.
New vs renewed · share of each year
In FY2023, 70% of grant dollars renewed an existing relationship; $155k went to new ones.
RenewedFirst-time
Where new relationships form · theme of each grantee’s first grant
EducationHealthOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2024still arriving | 9 | $848k | 56% |
| FY2023 | 6 | $510k | 50% |
| FY2022 | 6 | $1.0M | 50% |
| FY2021 | 6 | $563k | 67% |
| FY2020 | 3 | $117k | 100% |
| FY2019 | 3 | $168k | 33% |
| FY2018 | 3 | $369k | 100% |
| FY2017 | 1 | $102k | n/a |
100% classified
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Science & Tech$2.0MEducation$1.1MHealth$885k
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
ME
WA
IL
NY
MA
NV
CA
UT
MO
VA
NC
GA
TX
FL
Top grantees
Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| University of Rochester | $467,840 | 3 | 0% |
| State University of New York College at Purchase | $350,000 | 2 | n/a |
| The University of Florida Foundation Inc | $298,494 | 3 | 0% |
| Vcuvcu Health Campus | $295,000 | 4 | n/a |
| University of Florida | $222,500 | 3 | n/a |
| The Jackson Laboratory | $199,270 | 1 | 0% |
| Board of Regents Nevada System of Higher Education | $195,000 | 2 | n/a |
| University of Utah | $190,000 | 1 | n/a |
| Baylor College of Medicine | $160,000 | 2 | 0% |
| The Scripps Research Institute | $157,500 | 2 | 0% |
Show all 19 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| University of Rochester | $467,840 | 3 | 0% |
| State University of New York College at Purchase | $350,000 | 2 | n/a |
| The University of Florida Foundation Inc | $298,494 | 3 | 0% |
| Vcuvcu Health Campus | $295,000 | 4 | n/a |
| University of Florida | $222,500 | 3 | n/a |
| The Jackson Laboratory | $199,270 | 1 | 0% |
| Board of Regents Nevada System of Higher Education | $195,000 | 2 | n/a |
| University of Utah | $190,000 | 1 | n/a |
| Baylor College of Medicine | $160,000 | 2 | 0% |
| The Scripps Research Institute | $157,500 | 2 | 0% |
| Mass General Brigham Incorporated | $155,000 | 2 | n/a |
| The Board of Trustees of the University of Illinois | $105,000 | 1 | n/a |
| The Research Foundation for The State University of New York | $105,000 | 1 | 0% |
| Tmh Physician Organization | $102,000 | 1 | 0% |
| Wake Forest University Health Sciences | $55,000 | 1 | 0% |
| Regents of the University of California at San Diego | $55,000 | 1 | n/a |
| Emory University | $55,000 | 1 | 0% |
| Curators of the University of Missouri | $50,000 | 1 | n/a |
| University of Washington | $50,000 | 1 | n/a |
Plus 4 recipients with no EIN on record ($455k), not named here.
Where it is load-bearing
Each grantee by its size and the share of its budget Myotonic Dystrophy Foundation Inc supplied at peak.
Tap a dot to name the grantee.
How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 9.
About Myotonic Dystrophy Foundation Inc
- How much does Myotonic Dystrophy Foundation Inc give?
- Myotonic Dystrophy Foundation Inc reported 9 itemized grants totaling $847,600, out of $1,008,046 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 1 and 6 organizations a year over FY2017 to FY2023.
- What does Myotonic Dystrophy Foundation Inc fund?
- By grant dollars over FY2017 to FY2024, its largest causes are Science & Tech (50%), Education (27%), Health (23%).
- Who are Myotonic Dystrophy Foundation Inc's largest grantees?
- By total granted over FY2017 to FY2024: University of Rochester ($468k), State University of New York College at Purchase ($350k), The University of Florida Foundation Inc ($298k).
- Does Myotonic Dystrophy Foundation Inc fund new organizations?
- In FY2023, 50% of the organizations it funded were first-time grantees.
- Where is Myotonic Dystrophy Foundation Inc based?
- Myotonic Dystrophy Foundation Inc is based in CA.
Play a game based on Myotonic Dystrophy’s filings →
More from the funding graph
The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home