Ohio · Public charity
International Foundation For CDKL5 Research
To fund research aimed at finding a cure for CDKL5, a rare genetic disorder. A family conference is funded by the Organization every two years to provide support to families whose loved ones suffer from CDKL5.
- $121k
- Granted FY2024(still arriving)
- 4
- Grants FY2024
- 4
- Organizations funded FY2023
- 75%
- First-time grantees FY2023
- Median grant, FY2024
- $50,000
- Largest grant, FY2024
- $55,874
- Organizations funded a year
- 2 to 7
- FY2017 to FY2023
- States reached, FY2024
- 3
- Total assets, FY2024
- $977k
How open it is to new grantees
In FY2023, 75% of the organizations International Foundation For CDKL5 Research funded were first-time grantees, receiving 60% of its grant dollars.
New vs renewed · share of each year
In FY2023, 40% of grant dollars renewed an existing relationship; $110k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2024still arriving | 3 | $136k | 33% |
| FY2023 | 4 | $183k | 75% |
| FY2022 | 6 | $514k | 17% |
| FY2021 | 5 | $184k | 0% |
| FY2020 | 5 | $440k | 20% |
| FY2019 | 7 | $445k | 43% |
| FY2018 | 6 | $294k | 83% |
| FY2017 | 2 | $50k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Regents of the University of Colorado | $558,640 | 5 | n/a |
| Children's Hospital | $440,768 | 5 | 0% |
| The Children's Hospital of Philadelphia Foundation | $232,800 | 3 | 0% |
| Baylor College of Medicine | $176,714 | 3 | 0% |
| Washington University | $140,000 | 4 | 0% |
| Regents of the University of California | $127,465 | 4 | n/a |
| The Children's Hospital of Philadelphia | $100,000 | 2 | 0% |
| Children's Hospital Colorado Foundation | $98,314 | 1 | 0% |
| Children's Hospital Colorado | $77,585 | 2 | 0% |
| Board of Regents of the University of Nebraska | $75,200 | 3 | n/a |
Show all 16 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Regents of the University of Colorado | $558,640 | 5 | n/a |
| Children's Hospital | $440,768 | 5 | 0% |
| The Children's Hospital of Philadelphia Foundation | $232,800 | 3 | 0% |
| Baylor College of Medicine | $176,714 | 3 | 0% |
| Washington University | $140,000 | 4 | 0% |
| Regents of the University of California | $127,465 | 4 | n/a |
| The Children's Hospital of Philadelphia | $100,000 | 2 | 0% |
| Children's Hospital Colorado Foundation | $98,314 | 1 | 0% |
| Children's Hospital Colorado | $77,585 | 2 | 0% |
| Board of Regents of the University of Nebraska | $75,200 | 3 | n/a |
| Nyu Langone Health System | $60,000 | 1 | 1% |
| University of Oregon Foundation | $55,874 | 1 | 0% |
| Vanderbilt University Medical Center | $35,000 | 1 | 0% |
| The Cleveland Clinic Foundation | $25,000 | 1 | 0% |
| Nyu Langone Hospitals | $25,000 | 1 | 0% |
| Kennedy Krieger Foundation Inc | $18,000 | 1 | 0% |
Where it is load-bearing
Each grantee by its size and the share of its budget International Foundation For CDKL5 Research supplied at peak.
Tap a dot to name the grantee.
How this is measured
Compare International Foundation For CDKL5 Research with peer funders
Warm introductions · Powered by PlinthPlus
How do I get to International Foundation For CDKL5 Research?
Find your warmest path to International Foundation For CDKL5 Research through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
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About International Foundation For CDKL5 Research
- How much does International Foundation For CDKL5 Research give?
- International Foundation For CDKL5 Research reported 4 grants totaling $120,515 in its FY2024 IRS filing. It funded between 2 and 7 organizations a year over FY2017 to FY2023.
- What does International Foundation For CDKL5 Research fund?
- By grant dollars over FY2017 to FY2024, its largest causes are Health (65%), Education (27%), Science & Tech (8%).
- Who are International Foundation For CDKL5 Research's largest grantees?
- By total granted over FY2017 to FY2024: Regents of the University of Colorado ($559k), Children's Hospital ($441k), The Children's Hospital of Philadelphia Foundation ($233k).
- Does International Foundation For CDKL5 Research fund new organizations?
- In FY2023, 75% of the organizations it funded were first-time grantees.
- Where is International Foundation For CDKL5 Research based?
- International Foundation For CDKL5 Research is based in OH.
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