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Immune Deficiency Foundation at a glanceAlso receives grants: funding profile →

· Public charity

Immune Deficiency Foundation

The IMMUNE DEFICIENCY FOUNDATION improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.

$564k
Granted FY2024still arriving
7
Grants FY2024still arriving
7
States reached
$50k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2022 to 2024.

Health$303kScience & Tech$200kEducation$74k
02FY2024 · 7 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 7 grants below total $223,661, the rows itemized in this filing. The $564,056 headline is the total grant expense on the return; the other $340,395 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2024

  • $10k–50k6 grants · $174k
  • $50k–250k1 grant · $50k
$25,000
Median grant
7
States reached
$19M
Total assets
Largest grants
RecipientAmount
THE REGENTS OF THE UNIVERSITY OF$50,000
CHILDREN'S NATIONAL MEDICAL CENTER$45,500
BOSTON CHILDREN'S HOSPITAL$39,000
SEATTLE CHILDREN'S RESEARCH$25,000
THE REGENTS OF THE UNIVERSITY OF$25,000
JOHNS HOPKINS UNIVERSITY$24,161
CLINICAL IMMUNOLOGY SOCIETY$15,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY22–24) land where the poverty rate runs at 14%, against an area that typically sits at 11%. 83% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%CHILDREN'S HOSPITAL CORPORATION: $41k → 16%THE REGENTS OF THE UNIVERSITY OF: $25k → 11%STANFORD UNIVERSITY: $45k → 8%THE REGENTS OF THE UNIVERSITY OF: $50k → 14%THE FEINSTEIN INSTITUTES: $25k → 6%ICAHN SCHOOL OF MEDICINE: $10k → 17%BAYLOR COLLEGE OF MEDICINE: $50k → 16%CHILDREN'S NATIONAL MEDICAL CENTER: $46k → 14%ALLERGY & IMMUNOLOGY CARE CENTER: $10k → 15%CLINICAL IMMUNOLOGY SOCIETY: $15k → 17%YALE UNIVERSITY: $30k → 12%JOHNS HOPKINS UNIVERSITY: $50k → 19%BOSTON CHILDREN'S HOSPITAL: $39k → 16%THE REGENTS OF THE UNIVERSITY OF: $50k → 14%BAYLOR COLLEGE OF MEDICINE: $10k → 16%CHILDREN'S NATIONAL MEDICAL CENTER: $18k → 14%CLINICAL IMMUNOLOGY SOCIETY: $15k → 17%JOHNS HOPKINS UNIVERSITY: $24k → 19%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
MN
WI
NY
MA
CT
CA
MD
DC
TX
FL
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

81%of every dollar goes to organizations it has funded before.
$407k · 6 repeat orgs$95k to everyone else

6 repeat relationships: 5 still active in FY2024, 1 since wound down; 2 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

6
3

Total granted

$407k
$45k

Median revenue growth · since first grant

+16%
+19%

Still filing today

83%
67%

New vs renewed · share of each year

In FY2024, 78% of grant dollars renewed an existing relationship; $50k went to new ones.

50%100%’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’22’23’24
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • CH
    Children's Hospital Corporation
    2× · 2022–2024 · $80k · revenue +44%
  • JOHNS HOPKINS UNIVERSITY
    2× · 2023–2024 · $74k · revenue +4%
  • CN
    CHILDREN'S NATIONAL
    2× · 2023–2024 · $63k · revenue +16%

Funded once

  • TF
    THE FEINSTEIN INSTITUTES FOR MEDICAL RESEARCH
    one grant, 2022 · $25k · revenue +19%
  • AI
    ALLERGY & IMMUNOLOGY CARE CENTER
    one grant, 2022 · $10k
  • ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
    one grant, 2022 · $10k · revenue +19%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
The Children's Hospital of Philadelphia

The children's hospital of philadelphia, the oldest hospital in the united states dedicated exclusively to pediatrics, strives to be the world leader in the advancement of health care for children by integrating excellent patient care,…

Health
2
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
3
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
4
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
5
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
6
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
7
Beth Israel Hospital & Children's Hospital Medical Care Corporation

Pediatric healthcare, education & research

—
8
Children's Research Institute

Children's research institute dba children's national research institute conducts and promotes translational and clinical medical research and education programs that lead to improved understanding, prevention, treatment, and care of…

Health
9
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
10
Massachusetts Institute of Technology

The mission of mit is to advance knowledge and educate students in science, technology, and other areas of scholarship that will best serve the nation and the world in the 21st century.

Education
11
Massachusetts Eye & Ear Infirmary

THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…

Health
12
Cornell University

Education, research, medical services and other public services.

Education
How this is measured
The grantee most central to the portfolio’s shape is Johns Hopkins University; the most unlike its peers is Children's Hospital Corporation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

10 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 10 of the 13 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
10/10
Grantees still filing
9/10
Grew since first funded

Where the money sits, by cause and then by grantee

JOHNS HOPKINS UNIVERSITY: $74,161 · EducationJOHNS HOPKINS UNIVERSITYBaylor College of Medicine: $60,000 · EducationBaylor College of MedicineTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $45,000 · EducationTHE BOARD OF TRUSTEES OF THE LELAND STANFOR…Yale University: $30,000 · EducationYale UniversityICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $10,000 · EducationChildren's Hospital Corporation: $79,763 · HealthChildren's Hospital CorporationCHILDREN'S NATIONAL: $63,000 · HealthCHILDREN'S NATIONALCLINICAL IMMUNOLOGY SOCIETY INC: $30,000 · HealthCLINICAL IMMUNOLOGY SOCIETY INCTHE FEINSTEIN INSTITUTES FOR MEDICAL RESEARCH: $25,000 · HealthTHE FEINSTEIN INSTITUTES FOR MEDICAL R…REGENTS UNIV OF CALIFORNIA: $100,000 · OtherREGENTS UNIV OF CALIFORNIASeattle Children's Foundation: $25,000 · OtherSeattle Children's FoundationUNIVERSITY OF MINNESOTA: $25,000 · OtherUNIVERSITY OF MINNESOTAALLERGY & IMMUNOLOGY CARE CENTER: $10,000 · OtherALLERGY & IMMUNOLOGY CARE CENTE…
Education$219,161Health$197,763Other$160,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetChildren's Hospital Corporation: $79,763 over 2y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $74,161 over 2y, 0.0% of budgetCHILDREN'S NATIONAL: $63,000 over 2y, 0.0% of budgetBaylor College of Medicine: $60,000 over 2y, 0.0% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $45,000 over 1y, 0.0% of budgetCLINICAL IMMUNOLOGY SOCIETY INC: $30,000 over 2y, 1.1% of budgetYale University: $30,000 over 1y, 0.0% of budgetSeattle Children's Foundation: $25,000 over 1y, 0.0% of budgetTHE FEINSTEIN INSTITUTES FOR MEDICAL RESEARCH: $25,000 over 1y, 0.0% of budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $10,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization Immune Deficiency Foundation funds: left to right is the share of its income from government, bottom to top the share from Immune Deficiency Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 12%
  • Johns Hopkins University: 12% of income from government
  • Yale University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 13 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home