· Public charity
Friends of Fsh Research
FRIENDS OF FSH RESEARCH a 501c3 organization is working to impact the lives of those affected by fsh muscular dystrophy by financially supporting fshd research
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.
Where the money goes
Grants by size, and the largest recipients.
How this is measured
By grant size · FY2025
- Under $10k2 grants · $10k
- $10k–50k6 grants · $199k
- $50k–250k7 grants · $740k
| Recipient | Amount |
|---|---|
| FRED HUTCHINSON CANCER RESEARCH | $164,000 |
| Individual grant recipient | $129,600 |
| RESEARCH INST AT NATIONWIDE CHILDRE | $108,013 |
| UNIVERSITY OF NEVADA | $99,670 |
| FRED HUTCHINSON CANCER RESEARCH | $87,935 |
| Individual grant recipient | $76,224 |
| Individual grant recipient | $75,000 |
| UNIVERSITY OF COLORADO | $45,267 |
| UNIVERSITY OF WASHINGTON | $44,973 |
| UNIVERSITY OF WASHINGTON | $44,973 |
| UW WELLSTONE FUND | $28,174 |
| Individual grant recipient | $20,000 |
| Individual grant recipient | $15,400 |
| Individual grant recipient | $5,841 |
| FSHD SOCIETY | $4,000 |
Does the money reach high-need areas?
Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.
Dollar for dollar, its grants (FY17–19) land where the poverty rate runs at 13%, against an area that typically sits at 10%. 76% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.
How this is measured
Which US states its grants reach
Grants abroad, by region: $393k on the FY2025 return
Schedule F, as filed: 1 region. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: RESEARCH STUDIES
How this is measured
Who it funds again
Organizations funded in more than one year, against those funded once.
Grantees it renews have grown median revenue +81% since the first grant, against +32% for those funded once.
20 repeat relationships: 5 still active in FY2025, 15 since wound down; 5 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 49% of grant dollars renewed an existing relationship; $483k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
Backed again, and grew
- CRCHILDREN'S RESEARCH INSTITUTE2× · 2018–2019 · $172k · revenue +75%
- NCNationwide Childrens Hospital Group Return2× · 2018–2019 · $75k · revenue +110%
UNIVERSITY OF ROCHESTER2× · 2017–2018 · $65k · revenue +81%
Funded once
- ROREGENTS OF THE UNIVERSITY OF COLORADOone grant, 2019 · $92k
- UOUNIVERSITY OF NEVADA RENO SCHOOLone grant, 2020 · $89k
- NCNATIONWIDE CHILDRENS HOSPITAL INCone grant, 2017 · $78k
How this is measured
Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.
6 grantees tracked through their own filings, 2017–2025.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 6 of the 45 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Where the money sits, by cause and then by grantee
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
How much its grantees rely on government
Each dot is one organization Friends of Fsh Research funds: left to right is the share of its income from government, bottom to top the share from Friends of Fsh Research. Bigger dots raise more.
- Trustees of Boston University: 12% of income from government
- Children's Hospital Corporation: 10% of income from government
How this is measured
Play a game based on Friends of Fsh Research’s filings →