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Washington · Public charity

Friends of Fsh Research

FRIENDS OF FSH RESEARCH a 501c3 organization is working to impact the lives of those affected by fsh muscular dystrophy by financially supporting fshd research

$1.3M
Granted FY2025(still arriving)
15
Itemized grants FY2025
6
Organizations funded FY2024
67%
First-time grantees FY2024
Read the full brief
Itemized, FY2025
$949k
The rest is grants the schedule does not break out
Median grant, FY2025
$45,267
Largest grant, FY2025
$164,000
Organizations funded a year
6 to 10
FY2018 to FY2024
Total assets, FY2025
$450k

How open it is to new grantees

In FY2024, 67% of the organizations Friends of Fsh Research funded were first-time grantees, receiving 48% of its grant dollars.

New vs renewed · share of each year

In FY2024, 52% of grant dollars renewed an existing relationship; $251k went to new ones.

50%100%’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23’24
HealthOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2025still arriving10$949k50%
FY20246$525k67%
FY20237$548k29%
FY20229$381k56%
FY202110$645k70%
FY202010$546k100%
FY20198$473k50%
FY20186$359k33%
99% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$2.5MScience & Tech$2.1MEducation$223kOther$0

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

WA
MN
NY
MA
OH
CO
MD
DC

Top grantees

Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Children's Research Institute$171,64620%
University of Washington$165,5742n/a
University of Maryland College Park$150,0003n/a
University of Minnesota$120,4013n/a
Regents of the University of Colorado$92,3411n/a
Nationwide Childrens Hospital Inc$77,6041n/a
Fred Hutchinson Cancer Research Center$77,24610%
Nationwide Childrens Hospital Group Return$75,13620%
Trustees of Boston University$69,45310%
University of Rochester$64,91620%
Show all 12 grantees
All grantees of Friends of Fsh Research by total granted
GranteeTotal grantedYearsShare of their budget
Children's Research Institute$171,64620%
University of Washington$165,5742n/a
University of Maryland College Park$150,0003n/a
University of Minnesota$120,4013n/a
Regents of the University of Colorado$92,3411n/a
Nationwide Childrens Hospital Inc$77,6041n/a
Fred Hutchinson Cancer Research Center$77,24610%
Nationwide Childrens Hospital Group Return$75,13620%
Trustees of Boston University$69,45310%
University of Rochester$64,91620%
Children's Hospital Corporation$47,50010%
University of Massachusetts$32,0901n/a

Plus 33 recipients with no EIN on record ($3.6M), not named here.

Compare Friends of Fsh Research with peer funders

About Friends of Fsh Research

How much does Friends of Fsh Research give?
Friends of Fsh Research reported 15 itemized grants totaling $949,070, out of $1,296,506 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 6 and 10 organizations a year over FY2018 to FY2024.
What does Friends of Fsh Research fund?
By grant dollars over FY2017 to FY2025, its largest causes are Health (52%), Science & Tech (43%), Education (5%).
Who are Friends of Fsh Research's largest grantees?
By total granted over FY2017 to FY2025: Children's Research Institute ($172k), University of Washington ($166k), University of Maryland College Park ($150k).
Does Friends of Fsh Research fund new organizations?
In FY2024, 67% of the organizations it funded were first-time grantees.
Where is Friends of Fsh Research based?
Friends of Fsh Research is based in WA.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 45 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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