· Public charity
Friends of Fsh Research
FRIENDS OF FSH RESEARCH a 501c3 organization is working to impact the lives of those affected by fsh muscular dystrophy by financially supporting fshd research
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2025.
Where the money goes
Your grants by size, and where they go.
The 15 grants below total $949,070 — the rows itemised in this filing. The $1,296,506 headline is the total grant expense reported on the return, so the remaining $347,436 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2025
- Under $10k2 grants · $10k
- $10k–50k6 grants · $199k
- $50k–250k7 grants · $740k
| Recipient | Amount |
|---|---|
| FRED HUTCHINSON CANCER RESEARCH | $164,000 |
| Individual grant recipient | $129,600 |
| RESEARCH INST AT NATIONWIDE CHILDRE | $108,013 |
| UNIVERSITY OF NEVADA | $99,670 |
| FRED HUTCHINSON CANCER RESEARCH | $87,935 |
| Individual grant recipient | $76,224 |
| Individual grant recipient | $75,000 |
| UNIVERSITY OF COLORADO | $45,267 |
| UNIVERSITY OF WASHINGTON | $44,973 |
| UNIVERSITY OF WASHINGTON | $44,973 |
| UW WELLSTONE FUND | $28,174 |
| Individual grant recipient | $20,000 |
| Individual grant recipient | $15,400 |
| Individual grant recipient | $5,841 |
| FSHD SOCIETY | $4,000 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY17–19) land where the poverty rate runs at 13%, against an area that typically sits at 10%. 76% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $393k on the FY2025 return
Schedule F, as filed: 1 region. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: RESEARCH STUDIES
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +81% since the first grant, against +32% for the ones you funded once.
20 repeat relationships — 5 still active in FY2025, 15 since wound down; 5 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 49% of grant dollars renewed an existing relationship; $483k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- CRCHILDREN'S RESEARCH INSTITUTE2× · 2018–2019 · $172k · revenue +75%
- NCNationwide Childrens Hospital Group Return2× · 2018–2019 · $75k · revenue +110%
UNIVERSITY OF ROCHESTER2× · 2017–2018 · $65k · revenue +81%
Funded once
- ROREGENTS OF THE UNIVERSITY OF COLORADOone grant, 2019 · $92k
- UOUNIVERSITY OF NEVADA RENO SCHOOLone grant, 2020 · $89k
- NCNATIONWIDE CHILDRENS HOSPITAL INCone grant, 2017 · $78k
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
6 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 6 of the 45 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
Government reliance of your grantees
Every dot is one organization Friends of Fsh Research funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.
- Trustees of Boston University — 12% of income from government
- Children's Hospital Corporation — 10% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.