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FRAXA Research Foundation Inc at a glanceAlso receives grants: funding profile →

· Public charity

FRAXA Research Foundation Inc

FRAXAs mission is to find effective treatments and ultimately a cure for Fragile X syndrome.

$1.5M
Granted FY2025still arriving
14
Grants FY2025still arriving
8
States reached
$100k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$2.3MScience & Tech$2.1MEducation$547k
02FY2025 · 14 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 14 grants below total $1,036,425, the rows itemized in this filing. The $1,503,223 headline is the total grant expense on the return; the other $466,798 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.
$89,564
Median grant
8
States reached
$5.5M
Total assets
Largest grants
RecipientAmount
Umass medical$100,000
Massachusetts General Hospital$100,000
University of Illinois at Urbana-Champaign$100,000
Cincinnati Children's Hospital$100,000
Quiver Bioscience Inc$100,000
Harvard Medical School$96,861
Emory University$89,564
Children's Hospital of Philadelphia$50,000
UT Southwest Medical Center$50,000
Massachusetts Institute of Technology$50,000
University of Pennsylvania$50,000
University of Wisconsin-Madison$50,000
University of Texas$50,000
University of California at Irvine$50,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 13%, against an area that typically sits at 10%. 73% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%Mass General Hospital: $90k → 8%Harvard Medical School: $97k → 16%University of Pennsylvania: $50k → 22%Standford University School of Medicine: $45k → 7%University of California at Irvine: $100k → 10%University of California - Berkeley: $45k → 10%Salk Institue for Biological Studies: $45k → 11%University of Californiam Riverside: $95k → 11%University of California Los Angeles: $45k → 14%Cold Spring Harbor Laboratory: $50k → 7%University of Rochester: $45k → 14%UT Southwest Medical Center: $50k → 14%University of Texas: $50k → 16%Baylor University: $65k → 16%Board of Regents - Univ of WI System: $61k → 10%Yale School of Medicine: $100k → 12%Emory University: $90k → 14%Mercer University: $50k → 23%Cincinnati Children's Hospital: $100k → 16%Rush University Medical Center: $103k → 14%Rowan University: $74k → 8%National Institutes of health: $48k → 8%Massachusetts General Hospital: $50k → 8%Tufts University School of Medicine: $50k → 16%University of California at Irvine: $50k → 10%University of Californiam Riverside: $50k → 11%Cold Spring Harbor Laboratory: $50k → 7%University of Rochester: $50k → 14%New York University: $50k → 17%Yale School of Medicine: $100k → 12%Emory University: $50k → 14%Mercer University: $50k → 23%Cincinnati Children's Hospital: $90k → 16%Rush University Medical Center: $100k → 14%Mass Inst of Technology: $90k → 8%Tufts University School of Medicine: $50k → 16%University of California at Irvine: $50k → 10%Emory University: $50k → 14%Cincinnati Children's Hospital: $90k → 16%Rush University Medical Center: $65k → 14%Massachusetts Institute of Technology: $50k → 8%University of California at Irvine: $50k → 10%Children's Hospital Medical Center: $51k → 16%Massachusetts Institute of Technology: $50k → 8%Icahn School of Medicine: $50k → 17%Cincinnati Children's Hospital: $50k → 16%Icahn School of Medicine at Mount Sinai: $50k → 17%Quiver Bioscience Inc: $100k → 8%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
IL
WI
MI
NY
MA
OH
PA
NJ
CT
CA
CO
NE
MD
NC
GA
TX

Grants abroad, by region: $478k on the FY2025 return

Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$418k · 87% · 1 grant

Stated purpose: Research

South America$60k · 13% · 1 grant

Stated purpose: Research

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

92%of every dollar goes to organizations it has funded before.
$4.9M · 31 repeat orgs$449k to everyone else

31 repeat relationships: 10 still active in FY2025, 21 since wound down; 1 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

31
8

Total granted

$4.9M
$349k

Median revenue growth · since first grant

+35%
+53%

Still filing today

45%
63%

New vs renewed · share of each year

In FY2025, 88% of grant dollars renewed an existing relationship; $100k went to new ones.

50%100%’17’18’19’20’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’22’23’24’25
EducationHealthScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • CH
    CHILDREN'S HOSPITAL MEDICAL CENTER
    5× · 2017–2025 · $381k · revenue +53%
  • EU
    Emory University
    7× · 2018–2025 · $325k · revenue +61%
  • UM
    UMass Memorial Health Care Inc (Parent)
    5× · 2019–2023 · $271k · revenue +98%

Funded once

  • BAYLOR UNIVERSITYgraduated
    one grant, 2018 · $65k · revenue +53%
  • NY
    New York Universitygraduated
    one grant, 2017 · $50k · revenue +76%
  • TS
    The Salk Institute for Biological Studies
    2× · 2021–2022 · $45k · revenue -14%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
2
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
3
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
4
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
5
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
6
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
7
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
8
Cornell University

Education, research, medical services and other public services.

Education
9
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
10
Case Western Reserve University

Case Western Reserve University is an independent, research-oriented university with broadly based strengths in health, including medicine, nursing and dentistry; in engineering; in the arts and sciences; and in law, management and social…

Education
11
Washington University

The washington university is a co-educational, nondenominational university with a long and distinguished history of teaching, research and (cont'd on schedule o)

Education
12
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
How this is measured
The grantee most central to the portfolio’s shape is Trustees of Tufts College; the most unlike its peers is Albert Einstein College of Medicine Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

25 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 25 of the 45 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
24/25
Grantees still filing
21/25
Grew since first funded

Where the money sits, by cause and then by grantee

University of Wisconsin Madison: $341,006 · OtherUniversity of Wisconsin MadisonMASS GENERAL BRIGHAM INCORPORATED: $290,000 · OtherMASS GENERAL BRIGHAM INCORPORATEDREGENTS OF THE UNIVERSITY OF CALIFORNIA AT RIVERSIDE: $248,000 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT RIVERSIDEUNIVERSITY OF MASSACHUSETTS: $200,000 · OtherUNIVERSITY OF MASSACHUSETTSTHE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS: $200,000 · OtherTHE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOISUniversity of California at Irvine: $150,000 · OtherTHE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE: $140,000 · OtherCarnegie Mellon University: $103,000 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE: $100,000 · OtherBOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA: $100,000 · OtherQuiver Bioscience Inc: $100,000 · OtherUNIVERSITY OF TEXAS: $95,000 · OtherROWAN UNIVERSITY: $95,000 · Other+9 more: $678,200 · Other+9 moreEmory University: $324,564 · EducationEmory UniversityYale University: $256,668 · EducationYale UniversityMassachusetts Institute of Technology: $235,000 · EducationMassachusetts Institute of Technol…THE CORPORATION OF MERCER UNIVERSITY: $190,000 · EducationTHE CORPORATION OF MERCER UNIVERSI…Trustees of Tufts College: $190,000 · EducationTrustees of Tufts CollegeICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $100,000 · EducationICAHN SCHOOL OF MEDICINE AT MOUNT …President and Fellows of Harvard College: $96,861 · EducationUNIVERSITY OF ROCHESTER: $95,000 · EducationResearch Foundation of the City University of New York: $90,000 · EducationBAYLOR UNIVERSITY: $65,000 · Education+4 more: $189,950 · Education+4 moreCHILDREN'S HOSPITAL MEDICAL CENTER: $381,000 · HealthCHILDREN'S HOSPITAL ME…UMass Memorial Health Care Inc (Parent): $271,401 · HealthUMass Memorial Health …Rush University Medical Center: $268,745 · HealthRush University Medica…SEATTLE CHILDREN'S HOSPITAL: $100,000 · HealthSEATTLE CHILDREN'S HOS…THE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $100,000 · HealthTHE CHILDREN'S HOSPITA…Children's Hospital Corporation: $90,000 · HealthChildren's Hospital Co…+1 more: $8,883 · HealthCOLD SPRING HARBOR LABORATORY: $100,000 · Science & TechThe Salk Institute for Biological Studies: $45,000 · Science & Tech
Other$2,840,206Education$1,833,043Health$1,220,029Science & Tech$145,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%grantee revenue →↑ funder's share of their budgetCHILDREN'S HOSPITAL MEDICAL CENTER: $381,000 over 5y, 0.0% of budgetEmory University: $324,564 over 7y, 0.0% of budgetUMass Memorial Health Care Inc (Parent): $271,401 over 5y, 0.0% of budgetRush University Medical Center: $268,745 over 4y, 0.0% of budgetYale University: $256,668 over 3y, 0.0% of budgetMassachusetts Institute of Technology: $235,000 over 4y, 0.0% of budgetTHE CORPORATION OF MERCER UNIVERSITY: $190,000 over 4y, 0.0% of budgetTrustees of Tufts College: $190,000 over 4y, 0.0% of budgetCarnegie Mellon University: $103,000 over 2y, 0.0% of budgetSEATTLE CHILDREN'S HOSPITAL: $100,000 over 2y, 0.0% of budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $100,000 over 2y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $100,000 over 2y, 0.0% of budgetCOLD SPRING HARBOR LABORATORY: $100,000 over 2y, 0.0% of budgetPresident and Fellows of Harvard College: $96,861 over 1y, 0.0% of budgetUNIVERSITY OF ROCHESTER: $95,000 over 3y, 0.0% of budgetResearch Foundation of the City University of New York: $90,000 over 2y, 0.0% of budgetChildren's Hospital Corporation: $90,000 over 2y, 0.0% of budgetALBERT EINSTEIN COLLEGE OF MEDICINE INC: $90,000 over 2y, 0.0% of budgetBAYLOR UNIVERSITY: $65,000 over 1y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $50,000 over 1y, 0.0% of budgetNew York University: $49,950 over 1y, 0.0% of budgetThe Salk Institute for Biological Studies: $45,000 over 2y, 0.0% of budgetWAKE FOREST UNIVERSITY HEALTH SCIENCES: $45,000 over 2y, 0.0% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $45,000 over 2y, 0.0% of budgetTHE SCRIPPS RESEARCH INSTITUTE: $8,883 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds CHILDREN'S HOSPITAL MEDICAL CENTER ↗
  • Who funds Emory University ↗
  • Who funds UMass Memorial Health Care Inc (Parent) ↗
  • Who funds Rush University Medical Center ↗
  • Who funds Yale University ↗
  • Who funds Massachusetts Institute of Technology ↗
  • Who funds THE CORPORATION OF MERCER UNIVERSITY ↗
  • Who funds Trustees of Tufts College ↗
  • Who funds Carnegie Mellon University ↗
  • Who funds SEATTLE CHILDREN'S HOSPITAL ↗
  • Who funds ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ↗
  • Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION ↗
  • Who funds COLD SPRING HARBOR LABORATORY ↗
  • Who funds President and Fellows of Harvard College ↗
  • Who funds UNIVERSITY OF ROCHESTER ↗
  • Who funds Research Foundation of the City University of New York ↗
  • Who funds Children's Hospital Corporation ↗
  • Who funds ALBERT EINSTEIN COLLEGE OF MEDICINE INC ↗
  • Who funds BAYLOR UNIVERSITY ↗
  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
  • Who funds New York University ↗
  • Who funds The Salk Institute for Biological Studies ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Washington UniversityDonor Advised Charita…Fidelity Investments …
Washington UniversityMO13.7× affinity4 shared granteesties to 2 of 2Hover any node to trace its alignments.Compare side by side →

Open a dossier: Washington University · Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization FRAXA Research Foundation Inc funds: left to right is the share of its income from government, bottom to top the share from FRAXA Research Foundation Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%15%30%45%60%share of the org’s income from government →median 13%
  • Massachusetts Institute of Technology: 35% of income from government
  • Trustees of Tufts College: 13% of income from government
  • Yale University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
no gov moneyreceives it· size = income
0get no government money at all
1report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–60%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to FRAXA Research Foundation Inc?

Find your warmest path to FRAXA Research Foundation Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 45 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on FRAXA Research’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home