· Public charity
Fore Batten Foundation
To fund pioneering research and compassionately support the batten community.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2018–2024.
Where the money goes
Your grants by size, and where they go.
The 2 grants below total $234,579 — the rows itemised in this filing. The $284,579 headline is the total grant expense reported on the return, so the remaining $50,000 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2024
- Under $10k1 grant · $9k
- $50k–250k1 grant · $226k
| Recipient | Amount |
|---|---|
| SANFORD RESEARCH | $225,666 |
| BDSRA | $8,913 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY19–24) land where the poverty rate runs at 12%, against an area that typically sits at 9%. 79% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $40k on the FY2024 return
Schedule F, as filed: 1 region. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: TO SUPPORT INSTITUT NATIONAL DE LA RECHERCHE SCIENTIFIQUE'S RESEARCH FOR THE PURPOSE OF DISCOVERING AND MAKING AVAILABLE TO THE PUBLIC NEW AND IMPROVED MEDICAL PROCEDURES AND INFORMATION.
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +29% since the first grant, against +24% for the ones you funded once.
7 repeat relationships — 2 still active in FY2024, 5 since wound down.
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2024, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- RFRosalind Franklin University of Medicine and Science4× · 2019–2022 · $669k · revenue +29%
WASHINGTON UNIVERSITY4× · 2020–2023 · $413k · revenue +16%
UNIVERSITY OF ROCHESTER3× · 2021–2023 · $337k · revenue +35%
Funded once
- TRTHE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITALone grant, 2018 · $200k
- UOUNIVERSITY OF ARIZONAone grant, 2021 · $97k
UNC HEALTH FOUNDATION INCone grant, 2023 · $76k · revenue +24%
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other life-threatening neurological disorders. families in this community have been pivotal in raising the necessary funds and awareness. together,…
Please see schedule o
The hugo w. moser research institute at kennedy krieger, inc. (the "research institute") is an internationally recognized research facility finding answers to problems and injuries that affect a child's developing brain. researchers have…
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
Operate a state-of-the-art, world-class genomic research center that creates and uses advanced genomics to understand the genetic basis of disease. for more information, see schedule o.
We educate the next generation of leaders to improve the health of our society.
The mission of the foundation is to support and fund the development of life-saving treatment for patients that are deficient in the n-glycanese enzyme and those suffering from related genetic diseases. the activities of the foundation…
Our mission is to break down barriers to als research to find effective treatments. by uniting academia, the pharma and biotech industry, government, venture capital, related nonprofits, and the als community, we aim to overcome the…
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
The purposes of the laboratory are scientific, medical, charitable, and educational. our mission is to discover precise genomic solutions for disease and empower the biomedical community.
For reference, the grantee most central to the portfolio’s shape is Rosalind Franklin University of Medicine and Science and the most unlike its peers is Grayhawk Elementary School Pto Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
9 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 9 of the 13 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds Rosalind Franklin University of Medicine and Science ↗
- Who funds WASHINGTON UNIVERSITY ↗
- Who funds UNIVERSITY OF ROCHESTER ↗
- Who funds BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION ↗
- Who funds RARE SISTERS BATTEN FOUNDATION INC ↗
- Who funds UNC HEALTH FOUNDATION INC ↗
- Who funds OUR PROMISE TO NICHOLAS FOUNDATION ↗
- Who funds GRAYHAWK ELEMENTARY SCHOOL PTO INC ↗
- Who funds GLOBAL GENES ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a set of overlaps that mostly run through you, not between each other.
Open a dossier: Amazonsmile Foundation
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization Fore Batten Foundation funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.
Warm introductions · Powered by PlinthPlus
How do I get to Fore Batten Foundation?
Find your warmest path to Fore Batten Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.