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Ehlers-Danlos Society at a glanceAlso receives grants: funding profile →

· Public charity

Ehlers-Danlos Society

The EHLERS-DANLOS SOCIETY is a global organization dedicated to advancing and accelerating research and education in ehlers-danlos syndromes (eds) and hypermobility spectrum disorders (hsd).

$7.0M
Granted FY2025still arriving
7
Grants FY2025still arriving
7
States reached
$848k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2020 to 2025.

Health$3.2MScience & Tech$2.1MEducation$199k
02FY2025 · 7 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 7 grants below total $2,796,144, the rows itemized in this filing. The $6,974,640 headline is the total grant expense on the return; the other $4,178,496 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • $50k–250k1 grant · $60k
  • $250k+6 grants · $2.7M
$316,727
Median grant
7
States reached
$9.6M
Total assets
Largest grants
RecipientAmount
UNIVERSITY OF COLORADO$847,953
STANFORD UNIVERSITY$603,897
CHILDREN'S HOSPITAL CORPORATION$382,692
CARLE FOUNDATION HOSPITAL$316,727
RHODE ISLAND HOSPITAL$296,286
INDIANA UNIVERSITY HEALTH FOUNDATION$288,476
THE PENNSYLVANIA STATE UNIVERSITY$60,113
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY20–25) land where the poverty rate runs at 12%, against an area that typically sits at 9%. 66% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 9%THE BROAD INSTITUTE: $767k → 8%CHILDREN'S HOSPITAL CORPORATION: $383k → 16%THE PENNSYLVANIA STATE UNIVERSITY: $19k → 12%THE PENNSYLVANIA STATE UNIVERSITY: $60k → 16%STANFORD UNIVERSITY: $604k → 7%STANFORD UNIVERSITY: $332k → 8%MEDICAL UNIVERSITY OF SOUTH CAROLINA: $200k → 12%CHILDREN'S MERCY HOSPITAL: $200k → 15%UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL: $63k → 13%RHODE ISLAND HOSPITAL: $296k → 14%UNIVERSITY OF COLORADO: $848k → 12%INDIANA UNIVERSITY HEALTH FOUNDATION: $288k → 16%CARLE FOUNDATION HOSPITAL: $317k → 19%REPROCELL USA INC: $12k → 11%JOHN HOPKINS UNIVERSITY: $150k → 19%CHILDREN'S HOSPITAL CORPORATION: $159k → 16%THE PENNSYLVANIA STATE UNIVERSITY: $30k → 16%STANFORD UNIVERSITY: $200k → 7%MEDICAL UNIVERSITY OF SOUTH CAROLINA: $150k → 12%CARLE FOUNDATION HOSPITAL: $85k → 19%JOHN HOPKINS UNIVERSITY: $150k → 19%CHILDREN'S HOSPITAL CORPORATION: $134k → 16%CARLE FOUNDATION HOSPITAL: $76k → 19%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

IL
MA
IN
PA
RI
CA
CO
MO
MD
NC
SC

Grants abroad, by region: $4.2M on the FY2025 return

Schedule F, as filed: 5 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

United Kindgom$3.0M · 72% · 2 grants

Stated purpose: RESEARCH GRANT · OPERATING EXPENSES

Switzerland$300k · 7% · 1 grant

Stated purpose: RESEARCH GRANT

North America (Canada and Mexico)$300k · 7% · 1 grant

Stated purpose: RESEARCH GRANT

Netherlands$297k · 7% · 1 grant

Stated purpose: RESEARCH GRANT

France$270k · 6% · 2 grants

Stated purpose: RESEARCH GRANT

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

37%of every dollar goes to organizations it has funded before.
$1.6M · 4 repeat orgs$2.8M to everyone else

Grantees it renews have grown median revenue +44% since the first grant, against +26% for those funded once.

4 repeat relationships: 3 still active in FY2025, 1 since wound down; 3 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

4
6

Total granted

$1.6M
$1.3M

Median revenue growth · since first grant

+44%
+26%

Still filing today

75%
50%

New vs renewed · share of each year

In FY2025, 35% of grant dollars renewed an existing relationship; $1.4M went to new ones.

50%100%’20’21’22’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’20’21’22’24’25
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • CH
    Children's Hospital Corporation
    3× · 2022–2025 · $675k · revenue +44%
  • TC
    THE CARLE FOUNDATION HOSPITAL
    4× · 2022–2025 · $478k · revenue +22%
  • MU
    MEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATION
    3× · 2021–2023 · $350k · revenue +133%

Funded once

  • TB
    The Broad Institute Inc
    one grant, 2022 · $767k · revenue -19%
  • TC
    The Children's Mercy Hospitalgraduated
    one grant, 2021 · $200k · revenue +34%
  • JH
    JOHNS HOPKINS UNIVERSITY
    one grant, 2021 · $150k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
2
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
3
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
4
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
5
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
6
Truman Medical Center Incorporated

University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.

Health
7
Cedars-Sinai Medical Center

As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…

Health
8
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
9
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
10
Texas Children's Hospital

Texas children's hospital, headquartered in houston, texas, is a not-for-profit organization whose mission is to create a healthier future for children and women throughout our global community by leading in patient care, education and…

Health
11
New York Society for the Relief of the Ruptured and Crippled Maintaining the

The mission of hospital for special surgery is to provide the highest quality patient care, improve mobility, and enhance the quality of life for all and to advance the science of orthopedic surgery, rheumatology, and their related…

Health
12
Methodist Healthcare-Memphis Hospitals

Methodist le bonheur healthcare, in partnership with its medical staffs, will collaborate with patients and their families to be the leader in providing high quality, cost-effective patient-and family-centered care. services will be…

Health
How this is measured
The grantee most central to the portfolio’s shape is Medical University of South Carolina Foundation; the most unlike its peers is Indiana University Health Foundation Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

10 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 10 of the 14 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
10/10
Grantees still filing
8/10
Grew since first funded

Where the money sits, by cause and then by grantee

The Broad Institute Inc: $766,545 · HealthThe Broad Institute IncChildren's Hospital Corporation: $674,830 · HealthChildren's Hospital CorporationTHE CARLE FOUNDATION HOSPITAL: $477,561 · HealthTHE CARLE FOUNDATION HOSPITALMEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATION: $350,000 · HealthMEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATIONRhode Island Hospital: $296,286 · HealthRhode Island HospitalIndiana University Health Foundation Inc: $288,476 · HealthIndiana University Health Foundation IncThe Children's Mercy Hospital: $200,000 · HealthThe Children's Mercy HospitalTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $1,135,964 · EducationTHE BOARD OF TRUSTEES OF T…JOHNS HOPKINS UNIVERSITY: $150,000 · EducationJOHNS HOPKINS UNIVERSITYREGENTS OF THE UNIVERSITY OF COLORADO: $847,953 · OtherREGENTS OF THE UNIVERSIT…JOHNS HOPKINS UNIVERSITY: $150,000 · OtherJOHNS HOPKINS UNIVERSITYPENNSYLVANIA STATE UNIVERSITY: $109,541 · OtherPENNSYLVANIA STATE UNIVE…The University of North Carolina at Chapel Hill: $63,000 · Other+1 more: $12,275 · Other
Health$3,053,698Education$1,285,964Other$1,182,769

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%grantee revenue →↑ funder's share of their budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $1,135,964 over 3y, 0.0% of budgetThe Broad Institute Inc: $766,545 over 1y, 0.1% of budgetChildren's Hospital Corporation: $674,830 over 3y, 0.0% of budgetTHE CARLE FOUNDATION HOSPITAL: $477,561 over 4y, 0.0% of budgetMEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATION: $350,000 over 3y, 0.3% of budgetRhode Island Hospital: $296,286 over 1y, 0.0% of budgetThe Children's Mercy Hospital: $200,000 over 1y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $150,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a set of overlaps that mostly run through this funder rather than between each other.

American Cancer Socie…
American Cancer Society IncGA13.4× affinity4 shared granteesties to 0 of 0Hover any node to trace its alignments.Compare side by side →

Open a dossier: American Cancer Society Inc

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Ehlers-Danlos Society funds: left to right is the share of its income from government, bottom to top the share from Ehlers-Danlos Society. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%10%20%30%40%share of the org’s income from government →median 12%
  • The Broad Institute Inc: 19% of income from government
  • Johns Hopkins University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–40%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Ehlers-Danlos Society?

Find your warmest path to Ehlers-Danlos Society through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 14 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Ehlers-Danlos Society’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home