· Public charity
Ehlers-Danlos Society
The EHLERS-DANLOS SOCIETY is a global organization dedicated to advancing and accelerating research and education in ehlers-danlos syndromes (eds) and hypermobility spectrum disorders (hsd).
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2020–2025.
Where the money goes
Your grants by size, and where they go.
The 7 grants below total $2,796,144 — the rows itemised in this filing. The $6,974,640 headline is the total grant expense reported on the return, so the remaining $4,178,496 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2025
- $50k–250k1 grant · $60k
- $250k+6 grants · $2.7M
| Recipient | Amount |
|---|---|
| UNIVERSITY OF COLORADO | $847,953 |
| STANFORD UNIVERSITY | $603,897 |
| CHILDREN'S HOSPITAL CORPORATION | $382,692 |
| CARLE FOUNDATION HOSPITAL | $316,727 |
| RHODE ISLAND HOSPITAL | $296,286 |
| INDIANA UNIVERSITY HEALTH FOUNDATION | $288,476 |
| THE PENNSYLVANIA STATE UNIVERSITY | $60,113 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY20–25) land where the poverty rate runs at 12%, against an area that typically sits at 9%. 66% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $4.2M on the FY2025 return
Schedule F, as filed: 5 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: RESEARCH GRANT · OPERATING EXPENSES
Stated purpose: RESEARCH GRANT
Stated purpose: RESEARCH GRANT
Stated purpose: RESEARCH GRANT
Stated purpose: RESEARCH GRANT
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +27% since the first grant, against +26% for the ones you funded once.
4 repeat relationships — 3 still active in FY2025, 1 since wound down; 3 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 35% of grant dollars renewed an existing relationship; $1.4M went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- CHChildren's Hospital Corporation3× · 2022–2025 · $675k · revenue +27%
- TCTHE CARLE FOUNDATION HOSPITAL4× · 2022–2025 · $478k · revenue +22%
- MUMEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATION3× · 2021–2023 · $350k · revenue +133%
Funded once
- TBThe Broad Institute Incone grant, 2022 · $767k · revenue -19%
- TCThe Children's Mercy Hospitalgraduatedone grant, 2021 · $200k · revenue +34%
- JHJOHNS HOPKINS UNIVERSITYone grant, 2021 · $150k
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…
As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…
The children's hospital of philadelphia, the oldest hospital in the united states dedicated exclusively to pediatrics, strives to be the world leader in the advancement of health care for children by integrating excellent patient care,…
Methodist le bonheur healthcare, in partnership with its medical staffs, will collaborate with patients and their families to be the leader in providing high quality, cost-effective patient-and family-centered care. services will be…
University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.
Vanderbilt University Medical Center (VUMC) is one of the nation's longest serving and most prestigious academic medical centers. Through its historic bond with Vanderbilt University, VUMC cultivates distinguished research and educational…
The mission of children's hospital & research center at oakland is to protect and advance the health and well-being of children through clinical care, teaching and research.
For reference, the grantee most central to the portfolio’s shape is Medical University of South Carolina Foundation and the most unlike its peers is Rhode Island Hospital. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
10 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 10 of the 14 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
- Who funds The Broad Institute Inc ↗
- Who funds Children's Hospital Corporation ↗
- Who funds THE CARLE FOUNDATION HOSPITAL ↗
- Who funds MEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATION ↗
- Who funds Rhode Island Hospital ↗
- Who funds Indiana University Health Foundation Inc ↗
- Who funds The Children's Mercy Hospital ↗
- Who funds JOHNS HOPKINS UNIVERSITY ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a set of overlaps that mostly run through you, not between each other.
Open a dossier: American Cancer Society Inc
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization Ehlers-Danlos Society funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.
- The Broad Institute Inc — 19% of income from government
- Johns Hopkins University — 12% of income from government
- Children's Hospital Corporation — 10% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.
Warm introductions · Powered by PlinthPlus
How do I get to Ehlers-Danlos Society?
Find your warmest path to Ehlers-Danlos Society through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.