New York · Public charity
Ehlers-Danlos Society
The EHLERS-DANLOS SOCIETY is a global organization dedicated to advancing and accelerating research and education in ehlers-danlos syndromes (eds) and hypermobility spectrum disorders (hsd). We support the development of effective and equitable eds and hsd therapies and work collaboratively to improve the lives of individuals affected by…
- $7.0M
- Granted FY2025(still arriving)
- 7
- Itemized grants FY2025
- 2
- Organizations funded FY2024
- 0%
- First-time grantees FY2024
- Itemized, FY2025
- $2.8M
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $316,727
- Largest grant, FY2025
- $847,953
- Organizations funded a year
- 1 to 7
- FY2020 to FY2024
- States reached, FY2025
- 7
- Total assets, FY2025
- $9.6M
How open it is to new grantees
In FY2024, 0% of the organizations Ehlers-Danlos Society funded were first-time grantees, receiving 0% of its grant dollars.
New vs renewed · share of each year
In FY2024, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 6 | $2.2M | 50% |
| FY2024 | 2 | $209k | 0% |
| FY2022 | 7 | $1.4M | 71% |
| FY2021 | 4 | $613k | 100% |
| FY2020 | 1 | $19k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2020 to 2025.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2020 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Regents of the University of Colorado | $847,953 | 1 | n/a |
| The Broad Institute Inc | $766,545 | 1 | 0% |
| Children's Hospital Corporation | $674,830 | 3 | 0% |
| The Carle Foundation Hospital | $477,561 | 4 | 0% |
| Medical University of South Carolina Foundation | $350,000 | 3 | 0% |
| Rhode Island Hospital | $296,286 | 1 | 0% |
| Indiana University Health Foundation Inc | $288,476 | 1 | n/a |
| The Children's Mercy Hospital | $200,000 | 1 | 0% |
| Johns Hopkins University | $150,000 | 1 | n/a |
| Johns Hopkins University | $150,000 | 1 | 0% |
Show all 13 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Regents of the University of Colorado | $847,953 | 1 | n/a |
| The Broad Institute Inc | $766,545 | 1 | 0% |
| Children's Hospital Corporation | $674,830 | 3 | 0% |
| The Carle Foundation Hospital | $477,561 | 4 | 0% |
| Medical University of South Carolina Foundation | $350,000 | 3 | 0% |
| Rhode Island Hospital | $296,286 | 1 | 0% |
| Indiana University Health Foundation Inc | $288,476 | 1 | n/a |
| The Children's Mercy Hospital | $200,000 | 1 | 0% |
| Johns Hopkins University | $150,000 | 1 | n/a |
| Johns Hopkins University | $150,000 | 1 | 0% |
| Pennsylvania State University | $109,541 | 3 | n/a |
| The University of North Carolina at Chapel Hill | $63,000 | 1 | n/a |
| Reprocell USA Inc | $12,275 | 1 | n/a |
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a set of overlaps that mostly run through this funder rather than between each other.
Open a dossier: American Cancer Society Inc
How this is measured
Warm introductions · Powered by PlinthPlus
How do I get to Ehlers-Danlos Society?
Find your warmest path to Ehlers-Danlos Society through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
About Ehlers-Danlos Society
- How much does Ehlers-Danlos Society give?
- Ehlers-Danlos Society reported 7 itemized grants totaling $2,796,144, out of $6,974,640 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 1 and 7 organizations a year over FY2020 to FY2024.
- What does Ehlers-Danlos Society fund?
- By grant dollars over FY2020 to FY2025, its largest causes are Health (58%), Science & Tech (38%), Education (4%).
- Who are Ehlers-Danlos Society's largest grantees?
- By total granted over FY2020 to FY2025: Regents of the University of Colorado ($848k), The Broad Institute Inc ($767k), Children's Hospital Corporation ($675k).
- Does Ehlers-Danlos Society fund new organizations?
- In FY2024, 0% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as Ehlers-Danlos Society?
- Its strongest co-funders, measured against what their size predicts, include American Cancer Society Inc.
- Where is Ehlers-Danlos Society based?
- Ehlers-Danlos Society is based in NY.
Play a game based on Ehlers-Danlos Society’s filings →