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Eb Research Partnership Inc at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Eb Research Partnership Inc

Eb research partnership is the largest organizaion dedicated to funding research for treatments and a cure for epidermolysis bullosa, a group of devastating and life threatening genetic skin disorders that affect children from birth.

$3.7M
Granted FY2025still arriving
17
Grants FY2025still arriving
12
States reached
$785k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$23MScience & Tech$230kEducation$203k
02FY2025 · 17 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 17 grants below total $3,230,155, the rows itemized in this filing. The $3,728,866 headline is the total grant expense on the return; the other $498,711 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • Under $10k2 grants · $13k
  • $10k–50k6 grants · $115k
  • $50k–250k4 grants · $465k
  • $250k+5 grants · $2.6M
$51,814
Median grant
12
States reached
$24M
Total assets
Largest grants
RecipientAmount
UNIVERSITY OF COLORADO$784,837
STANFORD UNIVERSITY SCHOOL OF MEDICINE$528,661
UNIVERSITY OF CHICAGO$500,000
STANFORD UNIVERSITY$475,000
NORTHWESTERN UNIVERSITY$348,042
COLUMBIA UNIVERSITY$205,315
THOMAS JEFFERSON UNIVERSITY$145,428
CHILDREN'S HOSPITAL OF PHILADELPHIA$62,645
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER$51,814
EBLIFESTYLE INC$30,000
UNIVERSITY OF SOTH CAROLINA$27,808
MAYO CLINIC$22,075
PHOENIX CHILDREN'S HOSPITAL$12,500
UNIVERSITY OF FLORIDA$11,658
UNIVERSITY OF CALIFORNIA SAN DIEGO$11,062
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 11%, against an area that typically sits at 10%. 59% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%TUFTS MEDICAL CENTER: $168k → 16%UNIVERSITY OF MINNESOTA: $328k → 11%ELIKSA THERAPEUTICS: $250k → 6%CHILDREN'S HOSPITAL OF PHILADELPHIA: $385k → 22%STANFORD UNIVERSITY: $1.9M → 8%PROQR(WINGS THERAPEUTICS): $699k → 10%UNIVERSITY OF SOUTHERN CALIFORNIA: $127k → 14%TRUSTEES OF COLUMBIA UNIVERSITY: $276k → 17%UNIVERSITY OF WISCONSIN: $335k → 10%UNIVERSITY OF COLORADO: $1.0M → 10%CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER: $446k → 16%NORTHWESTERN UNIVERSITY: $948k → 14%TUFTS UNIVERSITY: $139k → 16%ONCONOVA THERAPEUTICS INC: $200k → 6%STANFORD UNIVERSITY: $1.7M → 8%COLUMBIA UNIVERSITY: $205k → 17%UNIVERSITY OF COLORADO: $951k → 10%CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER: $347k → 16%NORTHWESTERN UNIVERSITY: $488k → 14%STANFORD UNIVERSITY: $1.5M → 8%COLUMBIA UNIVERSITY: $169k → 17%UNIVERSITY OF COLORADO: $785k → 10%NORTHWESTERN UNIVERSITY: $348k → 14%STANFORD UNIVERSITY: $1.5M → 8%UNIVERSITY OF SOUTHERN CALIFORNIA: $266k → 14%UNIVERSITY OF COLORADO: $484k → 10%NORTHWESTERN UNIVERSITY: $236k → 14%STANFORD UNIVERSITY: $694k → 8%UNIVERSITY OF SOUTHERN CALIFORNIA: $244k → 14%UNIVERSITY OF COLORADO: $323k → 10%THOMAS JEFFERSON UNIVERSITY: $322k → 22%STANFORD UNIVERSITY: $627k → 8%UNIVERSITY OF SOUTHERN CALIFORNIA: $184k → 14%UNIVERSITY OF COLORADO: $265k → 10%THOMAS JEFFERSON UNIVERSITY: $416k → 22%STANFORD UNIVERSITY: $475k → 8%GATES BIOMANUFACTURING FACILITY SUPPORT FOUNDATION: $230k → 10%UNIVERSITY OF CHICAGO: $500k → 14%THOMAS JEFFERSON UNIVERSITY: $298k → 22%STANFORD UNIVERSITY: $274k → 8%UNIVERSITY OF COLORADO: $225k → 10%UNIVERSITY OF CHICAGO: $500k → 14%THOMAS JEFFERSON UNIVERSITY: $246k → 22%STANFORD UNIVERSITY: $149k → 8%THOMAS JEFFERSON UNIVERSITY: $245k → 22%STANFORD UNIVERSITY SCHOOL OF MEDICINE: $529k → 8%THOMAS JEFFERSON UNIVERSITY: $224k → 22%THOMAS JEFFERSON UNIVERSITY: $145k → 22%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
MN
IL
WI
MI
NY
MA
OH
PA
CA
CO
VA
AZ
TX

Grants abroad, by region: $461k on the FY2025 return

Schedule F, as filed: 3 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$371k · 81% · 2 grants

Stated purpose: MULTI-OMICS OF RECESSIVE DYSTROPHIC EB-ASSOCIATED SQUAMOUS CELL CARCINOMA FOR TARGETED ANTI-TUMOR THERAPY; DEVELOPING E-VIVO AND IN-VIVO BASE AND PRIME EDITING STRATEGIES TO TREAT RECESSIVE DYSTROPHIC EB; AND STRATEGIES FOR EFFICIENT AND LONG-TERM ENGRAFTMENT OF MESENCHYMAL STROMAL CELLS FOR THE TREATMENT OF RECESSIVE DYSTROPHIC EB. · REPOSITIONNING IN EPIDERMOLYSIS BULLOSA

East Asia and the Pacific$67k · 14% · 1 grant

Stated purpose: RESEARCH GRANT

North America (Canada and Mexico)$23k · 5% · 2 grants

Stated purpose: EPIDERMOLYSIS BULLOSA CLINICAL RESEARCH CONSORTIUM

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

86%of every dollar goes to organizations it has funded before.
$14M · 16 repeat orgs$2.2M to everyone else

Grantees it renews have grown median revenue +53% since the first grant, against -26% for those funded once.

16 repeat relationships: 10 still active in FY2025, 6 since wound down; 4 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

16
9

Total granted

$14M
$2.1M

Median revenue growth · since first grant

+53%
-26%

Still filing today

69%
33%

New vs renewed · share of each year

In FY2025, 96% of grant dollars renewed an existing relationship; $73k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationRecreation & SportsScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • Northwestern University
    6× · 2017–2025 · $2.0M · revenue +41%
  • TJ
    THOMAS JEFFERSON UNIVERSITY
    8× · 2017–2025 · $2.0M · revenue +164%
  • CH
    Children's Hospital Colorado
    3× · 2017–2019 · $1.0M · revenue +86%

Funded once

  • IG
    Individual grant recipient
    one grant, 2018 · $699k
  • UO
    UNIVERSITY OF WISCONSIN
    one grant, 2023 · $335k
  • DE
    DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF AMERICA
    one grant, 2024 · $250k · revenue -23%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
Cedars-Sinai Medical Center

As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…

Health
3
Southern California University of Health Sciences

The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…

Education
4
Children's Hospital & Research Center At Oakland

The mission of children's hospital & research center at oakland is to protect and advance the health and well-being of children through clinical care, teaching and research.

Health
5
Texas Children's Hospital

Texas children's hospital, headquartered in houston, texas, is a not-for-profit organization whose mission is to create a healthier future for children and women throughout our global community by leading in patient care, education and…

Health
6
Texas Scottish Rite Hospital for Crippled Children

To provide the highest quality care to improve the lives of children with orthopedic and related conditions and specific learning disabilities. texas scottish rite hospital for children focuses on patient care, research and education.

Health
7
Children's Hospital Corporation

Provider of pediatric healthcare, education, research & community service

Health
8
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
9
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
10
University of Chicago Medical Center

Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…

Health
11
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
12
Truman Medical Center Incorporated

University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.

Health
How this is measured
The grantee most central to the portfolio’s shape is University of Chicago; the most unlike its peers is Gates Biomanufacturing Facility Sup Foundation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

18 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 18 of the 32 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

2
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
18/18
Grantees still filing
14/18
Grew since first funded

Where the money sits, by cause and then by grantee

THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $9,398,717 · EducationTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERS…THOMAS JEFFERSON UNIVERSITY: $1,976,483 · EducationTHOMAS JEFFERSON UNIVERSITYUNIVERSITY OF SOUTHERN CALIFORNIA: $1,036,450 · EducationUNIVERSITY OF SOUTHERN CALIFORNIAUniversity of Chicago: $1,000,000 · EducationUniversity of Chicago+2 more: $566,059 · EducationREGENTS OF THE UNIVERSITY OF COLORADO: $3,045,624 · OtherREGENTS OF THE UNIVERSITY OF COL…UNIVERSITY OF MINNESOTA: $1,805,184 · OtherUNIVERSITY OF MINNESOTAIndividual grant recipient: $699,000 · OtherIndividual grant recipientTRUSTEES OF COLUMBIA UNIVERSITY: $414,538 · OtherTRUSTEES OF COLUMBIA UNIVERSITYUNIVERSITY OF WISCONSIN: $335,144 · OtherAWS: $294,433 · Other+11 more: $1,003,803 · Other+11 moreChildren's Hospital Colorado: $1,031,328 · HealthChildren's …CHILDREN'S HOSPITAL MEDICAL CENTER: $1,014,423 · HealthCHILDREN'S …THE CHILDREN'S HOSPITAL OF PHILADELPHIA: $561,646 · HealthTHE CHILDRE…+4 more: $169,590 · Health+4 moreNorthwestern University: $2,032,617 · Recreation & SportsGATES BIOMANUFACTURING FACILITY SUP FOUNDATION: $230,000 · Science & Tech
Education$13,977,709Other$7,597,726Health$2,776,987Recreation & Sports$2,032,617Science & Tech$230,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $9,398,717 over 9y, 0.0% of budgetNorthwestern University: $2,032,617 over 6y, 0.0% of budgetTHOMAS JEFFERSON UNIVERSITY: $1,976,483 over 8y, 0.1% of budgetUNIVERSITY OF SOUTHERN CALIFORNIA: $1,036,450 over 6y, 0.0% of budgetChildren's Hospital Colorado: $1,031,328 over 3y, 0.0% of budgetCHILDREN'S HOSPITAL MEDICAL CENTER: $1,014,423 over 8y, 0.0% of budgetUniversity of Chicago: $1,000,000 over 2y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $561,646 over 6y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $408,126 over 5y, 0.0% of budgetDYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF AMERICA: $250,000 over 1y, 7.9% of budgetGATES BIOMANUFACTURING FACILITY SUP FOUNDATION: $230,000 over 1y, 31% of budgetTrustees of Tufts College: $157,933 over 2y, 0.0% of budgetCENTER FOR HUMAN GENETICS INC: $58,640 over 2y, 1.3% of budgetEB Lifestyle Inc: $55,000 over 2y, 91% of budgetPhoenix Children's Hospital: $50,950 over 5y, 0.0% of budgetASCENSION SETON: $39,873 over 4y, 0.0% of budgetUNIVERSITY OF SAN DIEGO: $11,062 over 1y, 0.0% of budgetSOCIETY FOR PEDIATRIC DERMATOLOGY: $5,000 over 1y, 0.2% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
  • Who funds Northwestern University ↗
  • Who funds THOMAS JEFFERSON UNIVERSITY ↗
  • Who funds UNIVERSITY OF SOUTHERN CALIFORNIA ↗
  • Who funds Children's Hospital Colorado ↗
  • Who funds CHILDREN'S HOSPITAL MEDICAL CENTER ↗
  • Who funds University of Chicago ↗
  • Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
  • Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
  • Who funds DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF AMERICA ↗
  • Who funds GATES BIOMANUFACTURING FACILITY SUP FOUNDATION ↗
  • Who funds Trustees of Tufts College ↗
  • Who funds CENTER FOR HUMAN GENETICS INC ↗
  • Who funds EB Lifestyle Inc ↗
  • Who funds Phoenix Children's Hospital ↗
  • Who funds ASCENSION SETON ↗
  • Who funds UNIVERSITY OF SAN DIEGO ↗
  • Who funds SOCIETY FOR PEDIATRIC DERMATOLOGY ↗

How much its grantees rely on government

Each dot is one organization Eb Research Partnership Inc funds: left to right is the share of its income from government, bottom to top the share from Eb Research Partnership Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%6%25%56%100%funder's share of their income ↑0%5%10%15%20%share of the org’s income from government →median 13%
  • Trustees of Tufts College: 13% of income from government
  • Center for Human Genetics Inc: 0% of income from government
no gov moneyreceives it· size = income
0get no government money at all
2report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–20%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 32 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Eb Research Partnership’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home