New York · Public charity
Eb Research Partnership Inc
Eb research partnership is the largest organizaion dedicated to funding research for treatments and a cure for epidermolysis bullosa, a group of devastating and life threatening genetic skin disorders that affect children from birth.
- $3.7M
- Granted FY2025(still arriving)
- 17
- Itemized grants FY2025
- 11
- Organizations funded FY2024
- 18%
- First-time grantees FY2024
- Itemized, FY2025
- $3.2M
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $51,814
- Largest grant, FY2025
- $784,837
- Organizations funded a year
- 3 to 11
- FY2018 to FY2024
- States reached, FY2025
- 12
- Total assets, FY2025
- $24M
How open it is to new grantees
In FY2024, 18% of the organizations Eb Research Partnership Inc funded were first-time grantees, receiving 13% of its grant dollars.
New vs renewed · share of each year
In FY2024, 87% of grant dollars renewed an existing relationship; $450k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 14 | $2.0M | 29% |
| FY2024 | 11 | $3.5M | 18% |
| FY2023 | 10 | $1.6M | 30% |
| FY2022 | 11 | $3.0M | 27% |
| FY2021 | 6 | $452k | 33% |
| FY2020 | 3 | $747k | 33% |
| FY2019 | 5 | $1.6M | 0% |
| FY2018 | 10 | $1.7M | 40% |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Regents of the University of Colorado | $3,045,624 | 4 | n/a |
| Northwestern University | $2,032,617 | 6 | 0% |
| Thomas Jefferson University | $1,976,483 | 8 | 0% |
| University of Minnesota | $1,805,184 | 6 | n/a |
| Children's Hospital Colorado | $1,031,328 | 3 | 0% |
| Children's Hospital Medical Center | $1,014,423 | 8 | 0% |
| University of Chicago | $1,000,000 | 2 | 0% |
| The Children's Hospital of Philadelphia | $561,646 | 6 | 0% |
| Trustees of Columbia University | $414,538 | 3 | n/a |
| University of Wisconsin | $335,144 | 1 | n/a |
Show all 27 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Regents of the University of Colorado | $3,045,624 | 4 | n/a |
| Northwestern University | $2,032,617 | 6 | 0% |
| Thomas Jefferson University | $1,976,483 | 8 | 0% |
| University of Minnesota | $1,805,184 | 6 | n/a |
| Children's Hospital Colorado | $1,031,328 | 3 | 0% |
| Children's Hospital Medical Center | $1,014,423 | 8 | 0% |
| University of Chicago | $1,000,000 | 2 | 0% |
| The Children's Hospital of Philadelphia | $561,646 | 6 | 0% |
| Trustees of Columbia University | $414,538 | 3 | n/a |
| University of Wisconsin | $335,144 | 1 | n/a |
| Aws | $294,433 | 3 | n/a |
| Dystrophic Epidermolysis Bullosa Research Association of America | $250,000 | 1 | 8% |
| Gates Biomanufacturing Facility Sup Foundation | $230,000 | 1 | 31% |
| Onconova Therapeutics Inc | $200,000 | 1 | n/a |
| Tufts Medical Center Parent Inc | $168,158 | 1 | n/a |
| Trustees of Tufts College | $157,933 | 2 | 0% |
| University of California San Francisco | $100,000 | 1 | n/a |
| University of Massachusetts | $74,669 | 3 | n/a |
| Center for Human Genetics Inc | $58,640 | 2 | 1% |
| EB Lifestyle Inc | $55,000 | 2 | 91% |
| Phoenix Children's Hospital | $50,950 | 5 | 0% |
| Ascension Seton | $39,873 | 4 | 0% |
| USC School of Medicine Greenville | $27,808 | 1 | n/a |
| Mayo Clinic | $22,075 | 1 | n/a |
| University of Florida | $11,658 | 1 | n/a |
| University of San Diego | $11,062 | 1 | 0% |
| Society for Pediatric Dermatology | $5,000 | 1 | 0% |
Plus 2 recipients with no EIN on record ($798k), not named here.
Where it is load-bearing
Eb Research Partnership Inc supplied at least a quarter of the budget for 2 of its grantees at some point. The chart plots its 15 largest grantees; load-bearing ones sit top left.
Tap a dot to name the grantee.
How this is measured
About Eb Research Partnership Inc
- How much does Eb Research Partnership Inc give?
- Eb Research Partnership Inc reported 17 itemized grants totaling $3,230,155, out of $3,728,866 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 3 and 11 organizations a year over FY2018 to FY2024.
- What does Eb Research Partnership Inc fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Health (98%), Science & Tech (1%), Education (1%).
- Who are Eb Research Partnership Inc's largest grantees?
- By total granted over FY2017 to FY2025: Regents of the University of Colorado ($3.0M), Northwestern University ($2.0M), Thomas Jefferson University ($2.0M).
- Does Eb Research Partnership Inc fund new organizations?
- In FY2024, 18% of the organizations it funded were first-time grantees.
- Where is Eb Research Partnership Inc based?
- Eb Research Partnership Inc is based in NY.
Play a game based on Eb Research Partnership’s filings →