· Public charity
Eb Research Partnership Inc
Eb research partnership is the largest organizaion dedicated to funding research for treatments and a cure for epidermolysis bullosa, a group of devastating and life threatening genetic skin disorders that affect children from birth.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2024.
Where the money goes
Your grants by size, and where they go.
The 14 grants below total $3,931,700 — the rows itemised in this filing. The $4,699,297 headline is the total grant expense reported on the return, so the remaining $767,597 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2024
- Under $10k2 grants · $14k
- $10k–50k2 grants · $59k
- $50k–250k3 grants · $413k
- $250k+7 grants · $3.4M
| Recipient | Amount |
|---|---|
| UNIVERSITY OF COLORADO | $951,243 |
| NORTHWESTERN UNIVERSITY | $948,217 |
| CHILDREN'S HOSPITAL OF PHILADELPHIA | $385,482 |
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER | $346,734 |
| THOMAS JEFFERSON UNIVERSITY | $298,449 |
| UNIVERSITY OF SOUTHERN CALIFORNIA | $265,650 |
| ELIKSA THERAPEUTICS | $250,000 |
| ONCONOVA THERAPEUTICS INC | $200,000 |
| STANFORD UNIVERSITY | $149,150 |
| AWS | $64,071 |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL | $46,340 |
| PHOENIX CHILDREN'S HOSPITAL | $12,500 |
| ASCENSION SETON MEDICAL CENTER | $7,035 |
| COLUMBIA UNIVERSITY | $6,829 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY17–24) land where the poverty rate runs at 11%, against an area that typically sits at 10%. 58% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $588k on the FY2024 return
Schedule F, as filed: 3 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: NONSENSE READTHROUGH USING GENTAMICIN OR ELX-02 IN COMBINATION WITH POTENTIATOR COMPOUNDS FOR THE TREATMENT OF RECESSIVE DYSTROPHIC EPIDERMOLYSIS BULLOSA AND JUNCTIONAL EPIDERMOLYSIS BULLOSA · VALIDATING NEW ANTI-CANCER TARGETS FOR DYSTROPHIC EPIDERMOLYSIS BULLOSA USING PATIENTS DERIVED SKIN ORGANOIDS
Stated purpose: TO FUND RESEARCH TO FIND A CURE FOR EB · DEVELOPMENT OF A REGISTRY FOR EPIDERMOLYSIS BULLOSA IN INDIA
Stated purpose: EPIDERMOLYSIS BULLOSA CLINICAL RESEARCH CONSORTIUM
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +53% since the first grant, against +21% for the ones you funded once.
14 repeat relationships — 9 still active in FY2024, 5 since wound down; 2 grantees were first funded in FY2024 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2024, 87% of grant dollars renewed an existing relationship; $450k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- TJTHOMAS JEFFERSON UNIVERSITY7× · 2017–2024 · $1.8M · revenue +164%
Northwestern University5× · 2017–2024 · $1.7M · revenue +41%- CHChildren's Hospital Colorado3× · 2017–2019 · $1.0M · revenue +86%
Funded once
- IGIndividual grant recipientone grant, 2018 · $699k
University of Chicagoone grant, 2023 · $500k · revenue +21%- UOUNIVERSITY OF WISCONSINone grant, 2023 · $335k
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
The mission of children's hospital & research center at oakland is to protect and advance the health and well-being of children through clinical care, teaching and research.
As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…
We champion the health needs of children and families. we are committed to improving children's health by providing the highest-quality, family centered care, advanced through research and education.
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…
University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.
The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
The mission of hospital for special surgery is to provide the highest quality patient care, improve mobility, and enhance the quality of life for all and to advance the science of orthopedic surgery, rheumatology, and their related…
For reference, the grantee most central to the portfolio’s shape is Children's Hospital Medical Center and the most unlike its peers is Gates Biomanufacturing Facility Sup Foundation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
17 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 17 of the 28 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
- Who funds THOMAS JEFFERSON UNIVERSITY ↗
- Who funds Northwestern University ↗
- Who funds UNIVERSITY OF SOUTHERN CALIFORNIA ↗
- Who funds Children's Hospital Colorado ↗
- Who funds CHILDREN'S HOSPITAL MEDICAL CENTER ↗
- Who funds University of Chicago ↗
- Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
- Who funds DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF AMERICA ↗
- Who funds GATES BIOMANUFACTURING FACILITY SUP FOUNDATION ↗
- Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
- Who funds Trustees of Tufts College ↗
- Who funds CENTER FOR HUMAN GENETICS INC ↗
- Who funds Phoenix Children's Hospital ↗
- Who funds ASCENSION SETON ↗
- Who funds EB Lifestyle Inc ↗
- Who funds SOCIETY FOR PEDIATRIC DERMATOLOGY ↗
Government reliance of your grantees
Every dot is one organization Eb Research Partnership Inc funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- Trustees of Tufts College — 13% of income from government
- Center for Human Genetics Inc — 0% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.