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Cystinosis Research Foundation at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Cystinosis Research Foundation

CRF is committed to finding a cure through an aggressively funded research agenda.

$2.2M
Granted FY2025still arriving
7
Grants FY2025still arriving
2
States reached
$466k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2018 to 2025.

Health$13MEducation$333k
02FY2025 · 7 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 7 grants below total $1,766,737, the rows itemized in this filing. The $2,203,637 headline is the total grant expense on the return; the other $436,900 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • $50k–250k4 grants · $588k
  • $250k+3 grants · $1.2M
$245,000
Median grant
2
States reached
$10M
Total assets
Largest grants
RecipientAmount
MASSACHUSETTS GENERAL HOSPITA$465,595
THE SCRIPPS INSTITUTE$450,000
UNIVERSITY OF CALIFORNIA SD$263,204
STANFORD UNIVERSITY$245,000
HARVARD UNIVERSITY CAMBRIDGE$150,000
UNIV OF CA-IRVINE$117,938
HARVARD MEDICAL SCHOOL$75,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY18–25) land where the poverty rate runs at 11%, against an area that typically sits at 9%. 91% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 9%HARVARD UNIVERSITY CAMBRIDGE: $150k → 8%HARVARD MEDICAL SCHOOL: $75k → 16%UNIVERSITY OF PITTSBURGH: $411k → 11%STANFORD UNIVERSITY: $310k → 8%UNIV OF MICHIGAN: $286k → 10%AMMA THERAPEUTICS INC: $304k → 10%THE SCRIPPS INSTITUTE: $450k → 11%ALBERT EINSTEIN COLLEGE OF ME: $333k → 28%UNIVERSITY OF CINCINNATI: $180k → 16%UNIVERSITY OF WASHINGTON: $438k → 9%TRUSTEES OF PRINCETON UNIVERS: $160k → 11%MA GENERAL HOSPITAL: $169k → 16%UNIVERSITY OF PITTSBURGH SCHO: $164k → 11%STANFORD UNIVERSITY: $245k → 8%UNIV OF MICHIGAN: $166k → 10%THE SCRIPPS INSTITUTE: $300k → 11%UNIVERSITY OF WASHINGTON: $392k → 9%MASSACHUSETTS GENERAL HOSPITA: $466k → 16%UNIVERSITY OF PITTSBURGH: $150k → 11%STANFORD UNIVERSITY: $245k → 8%UNIV OF CA-IRVINE: $357k → 10%THE SCRIPPS RESEARCH INSTITUT: $300k → 11%UNIVERSITY OF WASHINGTON: $283k → 9%MASSACHUSETTS GENERAL HOSPITA: $317k → 16%UNIVERSITY OF PITTSBURGH: $75k → 11%STANFORD UNIVERSITY: $150k → 8%UNIV OF CA-IRVINE: $118k → 10%THE SCRIPPS INSTITUTE: $300k → 11%MASSACHUSETTS GENERAL HOSPITA: $67k → 16%THE SCRIPPS INSTITUTE: $234k → 11%THE SCRIPPS INSTITUTE: $215k → 11%THE SCRIPPS INSTITUTE: $150k → 11%THE SCRIPPS INSTITUTE: $150k → 11%THIOGENICS THERAPEUTICS INC: $154k → 11%UNIVERSITY OF CALIFORNIA SD: $1.2M → 11%UNIVERSITY OF CALIFORNIA SD: $1.1M → 11%UNIVERSITY OF CALIFORNIA SD: $923k → 11%UNIVERSITY OF CALIFORNIA SD: $627k → 11%UNIVERSITY OF CALIFORNIA SD: $394k → 11%UNIVERSITY OF CALIFORNIA SD: $263k → 11%UNIVERSITY OF CALIFORNIA SD: $111k → 11%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

89%of every dollar goes to organizations it has funded before.
$11M · 7 repeat orgs$1.4M to everyone else

7 repeat relationships: 4 still active in FY2025, 3 since wound down.

How the two cohorts compare

Re-uppedFunded once

Organizations

7
6

Total granted

$11M
$1.4M

Median revenue growth · since first grant

+31%
+75%

Still filing today

43%
50%

New vs renewed · share of each year

In FY2025, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23’24’25
EducationHealthPhilanthropyOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • TS
    THE SCRIPPS RESEARCH INSTITUTE
    8× · 2018–2025 · $2.1M · revenue +69%
  • UO
    UNIVERSITY OF WASHINGTON FOUNDATION
    3× · 2019–2024 · $1.1M · revenue +28%
  • UO
    UNIVERSITY OF PITTSBURGH AND UPMC MEDICAL AND HEALTH SCIENCES FOUNDATION
    4× · 2018–2023 · $800k · revenue +31%

Funded once

  • AE
    Albert Einstein College of Medicinegraduated
    one grant, 2021 · $333k · revenue +297%
  • AT
    AMMA THERAPEUTICS INC
    one grant, 2021 · $304k
  • SC
    SEATTLE CHILDREN'S HOSPITALgraduated
    one grant, 2018 · $234k · revenue +75%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
2
Massachusetts Institute of Technology

The mission of mit is to advance knowledge and educate students in science, technology, and other areas of scholarship that will best serve the nation and the world in the 21st century.

Education
3
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
4
Southern California University of Health Sciences

The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…

Education
5
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
6
Seton Hall University

Seton hall university is a catholic institution of higher education

—
7
Cornell University

Education, research, medical services and other public services.

Education
8
Lehigh University

The university's goal in the coming decade is to advance learning through the integration of teaching, research and service to others. the core of this goal is to prepare graduates to engage with the world and lead lives of meaning. to do…

Education
9
The Graduate School of the Stowers Institute for Medical Research

The graduate school of the stowers institute for medical research ("gssimr") exempt purpose is to provide graduate education that will prepare scholars for scientific research in the biological sciences.

Education
10
Trustees of the University of Pennsylvania

The trustees of the university of pennsylvania (the "university") sees itself as having a public service mission. in such regard, the university aims to provide a rich and diverse educational environment for its students; to pioneer…

Education
11
The Trustees of Princeton University

Research, education and general - princeton university is a private not-for-profit, non-sectarian institution of higher learning with approximately 5,700 undergraduate and 3,300 graduate students. 2,500 students graduated in the 2024-2025…

Education
12
Washington University

The washington university is a co-educational, nondenominational university with a long and distinguished history of teaching, research and (cont'd on schedule o)

Education
How this is measured
The grantee most central to the portfolio’s shape is Albert Einstein College of Medicine; the most unlike its peers is Seattle Children's Hospital. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

8 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 8 of the 15 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
8/8
Grantees still filing
7/8
Grew since first funded

Where the money sits, by cause and then by grantee

REGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO: $4,633,425 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGOMASS GENERAL BRIGHAM INCORPORATED: $1,019,059 · OtherMASS GENERAL BRIGHAM INCORPORATEDREGENTS OF THE UNIVERSITY OF CALIFORNIA: $474,985 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIAREGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE: $451,482 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINEAMMA THERAPEUTICS INC: $304,064 · Other+2 more: $314,144 · OtherUNIVERSITY OF WASHINGTON FOUNDATION: $1,113,584 · EducationUNIVERSITY OF WASHINGTON…THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $949,680 · EducationTHE BOARD OF TRUSTEES OF…Albert Einstein College of Medicine: $333,164 · EducationAlbert Einstein College …President and Fellows of Harvard College: $225,000 · EducationPresident and Fellows of…The Research Foundation for The State University of New York: $179,834 · EducationThe Research Foundation …THE SCRIPPS RESEARCH INSTITUTE: $2,098,800 · HealthTHE SCRIPPS RESEARCH…SEATTLE CHILDREN'S HOSPITAL: $234,458 · HealthSEATTLE CHILDREN'S H…UNIVERSITY OF PITTSBURGH AND UPMC MEDICAL AND HEALTH SCIENCES FOUNDATION: $799,774 · Philanthropy
Other$7,197,159Education$2,801,262Health$2,333,258Philanthropy$799,774

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetTHE SCRIPPS RESEARCH INSTITUTE: $2,098,800 over 8y, 0.1% of budgetUNIVERSITY OF WASHINGTON FOUNDATION: $1,113,584 over 3y, 0.3% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $949,680 over 4y, 0.0% of budgetUNIVERSITY OF PITTSBURGH AND UPMC MEDICAL AND HEALTH SCIENCES FOUNDATION: $799,774 over 4y, 3.2% of budgetAlbert Einstein College of Medicine: $333,164 over 1y, 0.1% of budgetSEATTLE CHILDREN'S HOSPITAL: $234,458 over 1y, 0.0% of budgetPresident and Fellows of Harvard College: $225,000 over 1y, 0.0% of budgetThe Research Foundation for The State University of New York: $179,834 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds THE SCRIPPS RESEARCH INSTITUTE ↗
  • Who funds UNIVERSITY OF WASHINGTON FOUNDATION ↗
  • Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
  • Who funds UNIVERSITY OF PITTSBURGH AND UPMC MEDICAL AND HEALTH SCIENCES FOUNDATION ↗
  • Who funds Albert Einstein College of Medicine ↗
  • Who funds SEATTLE CHILDREN'S HOSPITAL ↗
  • Who funds President and Fellows of Harvard College ↗
  • Who funds The Research Foundation for The State University of New York ↗

How much its grantees rely on government

Each dot is one organization Cystinosis Research Foundation funds: left to right is the share of its income from government, bottom to top the share from Cystinosis Research Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%15%30%45%60%share of the org’s income from government →median 7%
  • President and Fellows of Harvard College: 7% of income from government
no gov moneyreceives it· size = income
0get no government money at all
1report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–60%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Cystinosis Research Foundation?

Find your warmest path to Cystinosis Research Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 15 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Cystinosis Research’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home