California · Public charity
Cystinosis Research Foundation
CRF is committed to finding a cure through an aggressively funded research agenda. CRF awards research grants bi-annually to accelerate the research process and to ensure that there is never a gap in funding new, cutting-edge research projects. CRF is dedicated to improving the quality of life for cystinosis patients and to finding…
- $2.2M
- Granted FY2025(still arriving)
- 7
- Itemized grants FY2025
- 5
- Organizations funded FY2024
- 20%
- First-time grantees FY2024
- Itemized, FY2025
- $1.8M
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $245,000
- Largest grant, FY2025
- $465,595
- Organizations funded a year
- 2 to 7
- FY2018 to FY2024
- States reached, FY2025
- 2
- Total assets, FY2025
- $10M
How open it is to new grantees
In FY2024, 20% of the organizations Cystinosis Research Foundation funded were first-time grantees, receiving 24% of its grant dollars.
New vs renewed · share of each year
In FY2024, 76% of grant dollars renewed an existing relationship; $357k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 4 | $1.3M | 0% |
| FY2024 | 5 | $1.5M | 20% |
| FY2023 | 2 | $375k | 0% |
| FY2022 | 3 | $1.1M | 0% |
| FY2021 | 7 | $1.7M | 43% |
| FY2020 | 3 | $1.4M | 0% |
| FY2019 | 6 | $2.4M | 50% |
| FY2018 | 6 | $2.1M | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2018 to 2025.
Top grantees
Largest recipients by total granted, FY2018 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Regents of the University of California at San Diego | $4,633,425 | 7 | n/a |
| The Scripps Research Institute | $2,098,800 | 8 | 0% |
| University of Washington Foundation | $1,113,584 | 3 | 0% |
| Mass General Brigham Incorporated | $1,019,059 | 4 | n/a |
| University of Pittsburgh and Upmc Medical and Health Sciences Foundation | $799,774 | 4 | 3% |
| Regents of the University of California | $474,985 | 2 | n/a |
| Regents of the University of California at Irvine | $451,482 | 2 | n/a |
| Albert Einstein College of Medicine | $333,164 | 1 | 0% |
| Seattle Children's Hospital | $234,458 | 1 | 0% |
| The Research Foundation for The State University of New York | $179,834 | 1 | 0% |
Show all 11 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Regents of the University of California at San Diego | $4,633,425 | 7 | n/a |
| The Scripps Research Institute | $2,098,800 | 8 | 0% |
| University of Washington Foundation | $1,113,584 | 3 | 0% |
| Mass General Brigham Incorporated | $1,019,059 | 4 | n/a |
| University of Pittsburgh and Upmc Medical and Health Sciences Foundation | $799,774 | 4 | 3% |
| Regents of the University of California | $474,985 | 2 | n/a |
| Regents of the University of California at Irvine | $451,482 | 2 | n/a |
| Albert Einstein College of Medicine | $333,164 | 1 | 0% |
| Seattle Children's Hospital | $234,458 | 1 | 0% |
| The Research Foundation for The State University of New York | $179,834 | 1 | 0% |
| Thiogenics Therapeutics Inc | $153,900 | 1 | n/a |
Plus 2 recipients with no EIN on record ($464k), not named here.
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About Cystinosis Research Foundation
- How much does Cystinosis Research Foundation give?
- Cystinosis Research Foundation reported 7 itemized grants totaling $1,766,737, out of $2,203,637 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 2 and 7 organizations a year over FY2018 to FY2024.
- What does Cystinosis Research Foundation fund?
- By grant dollars over FY2018 to FY2025, its largest causes are Health (97%), Education (3%).
- Who are Cystinosis Research Foundation's largest grantees?
- By total granted over FY2018 to FY2025: Regents of the University of California at San Diego ($4.6M), The Scripps Research Institute ($2.1M), University of Washington Foundation ($1.1M).
- Does Cystinosis Research Foundation fund new organizations?
- In FY2024, 20% of the organizations it funded were first-time grantees.
- Where is Cystinosis Research Foundation based?
- Cystinosis Research Foundation is based in CA.
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