· Public charity
Cystinosis Research Foundation
CRF is committed to finding a cure through an aggressively funded research agenda.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2018–2025.
Where the money goes
Your grants by size, and where they go.
The 7 grants below total $1,766,737 — the rows itemised in this filing. The $2,203,637 headline is the total grant expense reported on the return, so the remaining $436,900 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2025
- $50k–250k4 grants · $588k
- $250k+3 grants · $1.2M
| Recipient | Amount |
|---|---|
| MASSACHUSETTS GENERAL HOSPITA | $465,595 |
| THE SCRIPPS INSTITUTE | $450,000 |
| UNIVERSITY OF CALIFORNIA SD | $263,204 |
| STANFORD UNIVERSITY | $245,000 |
| HARVARD UNIVERSITY CAMBRIDGE | $150,000 |
| UNIV OF CA-IRVINE | $117,938 |
| HARVARD MEDICAL SCHOOL | $75,000 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY18–25) land where the poverty rate runs at 11%, against an area that typically sits at 9%. 91% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
7 repeat relationships — 4 still active in FY2025, 3 since wound down.
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- TSTHE SCRIPPS RESEARCH INSTITUTE8× · 2018–2025 · $2.1M · revenue +69%
- UOUNIVERSITY OF WASHINGTON FOUNDATION3× · 2019–2024 · $1.1M · revenue +28%
- UOUNIVERSITY OF PITTSBURGH AND UPMC MEDICAL AND HEALTH SCIENCES FOUNDATION4× · 2018–2023 · $800k · revenue +31%
Funded once
- AEAlbert Einstein College of Medicinegraduatedone grant, 2021 · $333k · revenue +297%
- ATAMMA THERAPEUTICS INCone grant, 2021 · $304k
- SCSEATTLE CHILDREN'S HOSPITALgraduatedone grant, 2018 · $234k · revenue +51%
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
The mission of mit is to advance knowledge and educate students in science, technology, and other areas of scholarship that will best serve the nation and the world in the 21st century.
Research, education and general - princeton university is a private not-for-profit, non-sectarian institution of higher learning with approximately 5,700 undergraduate and 3,300 graduate students. 2,500 students graduated in the 2024-2025…
Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.
Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.
Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.
The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…
University of the sciences prepares students to become leaders, innovators, and skilled practitioners in the sciences, the health professions, and related disciplines. we deliver excellence in teaching, research, and service through a safe…
Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.
Seton hall university is a catholic institution of higher education
Education and Research
Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.
Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.
For reference, the grantee most central to the portfolio’s shape is Albert Einstein College of Medicine and the most unlike its peers is The Research Foundation for the State University of New York. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
8 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 8 of the 15 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds THE SCRIPPS RESEARCH INSTITUTE ↗
- Who funds UNIVERSITY OF WASHINGTON FOUNDATION ↗
- Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
- Who funds UNIVERSITY OF PITTSBURGH AND UPMC MEDICAL AND HEALTH SCIENCES FOUNDATION ↗
- Who funds Albert Einstein College of Medicine ↗
- Who funds SEATTLE CHILDREN'S HOSPITAL ↗
- Who funds President and Fellows of Harvard College ↗
- Who funds The Research Foundation for The State University of New York ↗
Government reliance of your grantees
Every dot is one organization Cystinosis Research Foundation funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- President and Fellows of Harvard College — 7% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.
Warm introductions · Powered by PlinthPlus
How do I get to Cystinosis Research Foundation?
Find your warmest path to Cystinosis Research Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.