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Cystic Fibrosis Research Institute at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Cystic Fibrosis Research Institute

To fund cystic fibrosis research, provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

$529k
Granted FY2024still arriving
8
Grants FY2024still arriving
4
States reached
$70k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
0198% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Education$1.7MScience & Tech$1.3MHealth$539kPublic Benefit$70kEmployment$70kOther$0
02FY2024 · 8 grants

Where the money goes

Grants by size, and the largest recipients.

$70,000
Median grant
4
States reached
$4.2M
Total assets
Largest grants
RecipientAmount
UNIVERSITY OF IOWA$70,000
UNIVERSITY OF CALIFORNIA IRVINE$70,000
UNIVERSITY OF PITTSBURGH$70,000
YALE UNIVERSITY SCHOOL OF MEDICINE$70,000
YALE UNIVERSITY SCHOOL OF MEDICINE$70,000
THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY$65,000
THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY$65,000
UNIVERSITY OF CALIFORNIA LOS ANGELES$65,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY19–24) land where the poverty rate runs at 11%, against an area that typically sits at 9%. 61% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 9%ARIZONA BOARD OF REGENTS: $60k → 16%UNIVERSITY OF PITTSBURGH: $70k → 11%THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY: $210k → 8%UNIVERSITY OF CALIFORNIA IRVINE: $70k → 10%UNIVERSITY OF CALIFORNIA BERKELEY: $65k → 10%SAN DIEGO STATE UNIVERSITY RESEARCH: $130k → 11%UC LOS ANGELES: $70k → 14%UNIVERSITY OF IOWA: $70k → 15%MICHIGAN STATE UNIVERSITY: $70k → 16%UNIVERSITY OF NORTH CAROLINA: $140k → 13%CINCINNATI CHILDREN'S HOSPITAL: $69k → 16%UNIVERSITY OF WASHINGTON: $70k → 9%ARIZONA BOARD OF REGENTS: $60k → 16%THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY: $70k → 8%UNIVERSITY OF CALIFORNIA IRVINE: $70k → 10%UNIVERSITY OF CALIFORNIA: $65k → 10%SAN DIEGO STATE UNIVERSITY RESEARCH: $70k → 11%UNIVERSITY OF CALIFORNIA: $70k → 14%MICHIGAN STATE UNIVERSITY: $70k → 16%UNIVERSITY OF NORTH CAROLINA: $70k → 13%THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY: $70k → 8%UNIVERSITY OF CALIFORNIA LOS ANGELES: $65k → 14%LELAND STANFORD JR UNIVERSITY: $70k → 8%THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY: $65k → 8%THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY: $65k → 8%THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY: $65k → 8%THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY: $65k → 8%THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY: $65k → 8%THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY: $40k → 8%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
MI
IA
OH
PA
CT
CA
AZ
NC
AL
GA
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
04

Where the work is directed

The same grants placed two ways: where each recipient sits, and where its stated purpose sends the money.

About 41% of Cystic Fibrosis Research Institute’s grant dollars are earmarked for a different county than the recipient’s own address. By recipient address, 42% of the giving stays in CA; by stated purpose, 30%.

Cystic Fibrosis Research Institutelessmore of its giving
Placed by recipient address
How this is measured
Recipient view: each grant at its grantee’s ZIP, mapped to a county. Directed view: each grant at the county its stated purpose names, falling back to the recipient’s county when the purpose names no place; US grants only. A county shows only if it carries the top 95% of that view’s dollars. Purposes are read from the funder’s own 990 grant descriptions.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

45%of every dollar goes to organizations it has funded before.
$1.2M · 7 repeat orgs$1.4M to everyone else

7 repeat relationships: 1 still active in FY2024, 6 since wound down; 3 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

7
19

Total granted

$1.2M
$1.2M

Median revenue growth · since first grant

+35%
+221%

Still filing today

14%
11%

New vs renewed · share of each year

In FY2024, 25% of grant dollars renewed an existing relationship; $205k went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • RO
    REGENTS OF THE UNIVERSITY OF CALIFORNIA
    2× · 2021–2022 · $270k
  • SAN DIEGO STATE UNIVERSITY FOUNDATION SDSU RESEARCH FOUNDATION
    2× · 2019–2020 · $200k · revenue +35%
  • IG
    Individual grant recipient
    2× · 2017–2018 · $175k

Funded once

  • UO
    UNIVERSITY OF NORTH CAROLINA
    one grant, 2019 · $140k
  • UO
    UNIVERSITY OF WASHINGTON
    one grant, 2019 · $70k
  • UO
    UNIVERSITY OF WASHINGTON
    one grant, 2018 · $70k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field
05the grantee network

6 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 6 of the 31 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
6/6
Grantees still filing
6/6
Grew since first funded

Where the money sits, by cause and then by grantee

REGENTS OF THE UNIVERSITY OF CALIFORNIA: $270,000 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIAIndividual grant recipient: $175,000 · OtherIndividual grant recipientUNIVERSITY OF NORTH CAROLINA: $140,000 · OtherUNIVERSITY OF NORTH CAROLINAUNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL: $140,000 · OtherUNIVERSITY OF NORTH CAROLINA AT CHAPEL HILLBOARD OF THE UNIVERSITY OF ALABAMA: $140,000 · OtherBOARD OF THE UNIVERSITY OF ALABAMAREGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE: $140,000 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINEIndividual grant recipient: $110,961 · Other+18 more: $1,118,058 · Other+18 moreTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $785,000 · EducationTHE BOARD OF TRUSTEES OF THE LELAND STANFORD…Yale University: $280,000 · EducationYale UniversitySAN DIEGO STATE UNIVERSITY FOUNDATION SDSU RESEARCH FOUNDATION: $199,611 · EducationSAN DIEGO STATE UNIVERSITY FOUNDATION SDSU R…UNIVERSITY OF PITTSBURGH: $70,000 · EducationNORTHERN ARIZONA UNIVERSITY FOUNDATION: $60,000 · Education+1 more: $30,000 · Education
Other$2,234,019Education$1,424,611

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $785,000 over 4y, 0.0% of budgetYale University: $280,000 over 2y, 0.0% of budgetSAN DIEGO STATE UNIVERSITY FOUNDATION SDSU RESEARCH FOUNDATION: $199,611 over 2y, 0.1% of budgetUNIVERSITY OF PITTSBURGH: $70,000 over 1y, 0.0% of budgetNORTHERN ARIZONA UNIVERSITY FOUNDATION: $60,000 over 1y, 0.2% of budgetUniversity of San Francisco: $30,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
  • Who funds Yale University ↗
  • Who funds SAN DIEGO STATE UNIVERSITY FOUNDATION SDSU RESEARCH FOUNDATION ↗
  • Who funds UNIVERSITY OF PITTSBURGH ↗
  • Who funds NORTHERN ARIZONA UNIVERSITY FOUNDATION ↗
  • Who funds University of San Francisco ↗

How much its grantees rely on government

Each dot is one organization Cystic Fibrosis Research Institute funds: left to right is the share of its income from government, bottom to top the share from Cystic Fibrosis Research Institute. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%13%25%38%50%share of the org’s income from government →median 12%
  • Yale University: 12% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–50%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Cystic Fibrosis Research Institute?

Find your warmest path to Cystic Fibrosis Research Institute through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 31 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Cystic Fibrosis Research Institute’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home