North Carolina · Public charity
Chordoma Foundation
The mission of the CHORDOMA FOUNDATION is to improve the lives of those affected by chordoma and lead the search for a cure.
- $1.9M
- Granted FY2025(still arriving)
- 6
- Itemized grants FY2025
- 13
- Organizations funded FY2024
- 46%
- First-time grantees FY2024
- Itemized, FY2025
- $1.3M
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $299,615
- Largest grant, FY2025
- $443,162
- Organizations funded a year
- 5 to 13
- FY2018 to FY2024
- States reached, FY2025
- 6
- Total assets, FY2025
- $18M
How open it is to new grantees
In FY2024, 46% of the organizations Chordoma Foundation funded were first-time grantees, receiving 41% of its grant dollars.
New vs renewed · share of each year
In FY2024, 59% of grant dollars renewed an existing relationship; $986k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 6 | $1.3M | 33% |
| FY2024 | 13 | $2.4M | 46% |
| FY2023 | 8 | $1.4M | 25% |
| FY2022 | 6 | $823k | 17% |
| FY2021 | 11 | $1.2M | 55% |
| FY2020 | 5 | $715k | 20% |
| FY2019 | 8 | $2.3M | 38% |
| FY2018 | 8 | $383k | 50% |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Start | $2,372,302 | 8 | n/a |
| University of North Carolina at Chapel Hill | $1,589,098 | 5 | n/a |
| Utmd Anderson | $1,322,613 | 4 | n/a |
| The Broad Institute Inc | $970,544 | 4 | 0% |
| Cancer Research Institute Inc | $900,000 | 6 | 1% |
| Saint John's Cancer Institute | $591,809 | 1 | 3% |
| The Children's Hospital of Philadelphia | $417,612 | 7 | 0% |
| Greek Childrens Fund of Memorial Sloan - Kettering Cancer Center Inc | $407,935 | 1 | n/a |
| Northwestern University | $349,803 | 1 | n/a |
| Mass General Brigham Incorporated | $331,931 | 4 | n/a |
Show all 31 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Start | $2,372,302 | 8 | n/a |
| University of North Carolina at Chapel Hill | $1,589,098 | 5 | n/a |
| Utmd Anderson | $1,322,613 | 4 | n/a |
| The Broad Institute Inc | $970,544 | 4 | 0% |
| Cancer Research Institute Inc | $900,000 | 6 | 1% |
| Saint John's Cancer Institute | $591,809 | 1 | 3% |
| The Children's Hospital of Philadelphia | $417,612 | 7 | 0% |
| Greek Childrens Fund of Memorial Sloan - Kettering Cancer Center Inc | $407,935 | 1 | n/a |
| Northwestern University | $349,803 | 1 | n/a |
| Mass General Brigham Incorporated | $331,931 | 4 | n/a |
| New York University School of Medicine | $325,000 | 1 | n/a |
| Chordoma Foundation | $302,500 | 1 | 15% |
| The Jackson Laboratory | $261,489 | 5 | 0% |
| University of Minnesota | $250,000 | 1 | n/a |
| Upmc | $150,000 | 2 | n/a |
| John Wayne Cancer Institute Auxiliary | $140,000 | 1 | 47% |
| American Association for Cancer Research Foundation | $138,060 | 1 | 0% |
| Genecentric Therapeutics Inc | $87,500 | 1 | n/a |
| Dana-Farber Cancer Institute Inc | $80,000 | 1 | 0% |
| Regents of the University of Michigan | $75,000 | 3 | n/a |
| Cedars-Sinai Medical Center | $50,000 | 1 | 0% |
| The Medical College of Wisconsin Inc | $50,000 | 1 | 0% |
| Vala Sciences | $41,550 | 3 | n/a |
| Johns Hopkins University | $30,000 | 1 | 0% |
| American Type Culture Collection | $28,682 | 1 | 0% |
| University of Miami | $25,000 | 1 | 0% |
| Regents of the University of California | $25,000 | 1 | n/a |
| Clinical Research Sequencing Platform | $18,750 | 1 | n/a |
| Redesign Science Inc | $15,000 | 1 | n/a |
| University of California San Francisco Foundation | $10,000 | 1 | 0% |
| Wake Forest University | $10,000 | 1 | 0% |
Plus 1 recipient with no EIN on record ($10k), not named here.
Where it is load-bearing
Chordoma Foundation supplied at least a quarter of the budget for 1 of its grantees at some point. The chart plots its 16 largest grantees; load-bearing ones sit top left.
Tap a dot to name the grantee.
How this is measured
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a set of overlaps that mostly run through this funder rather than between each other.
Open a dossier: Fidelity Investments Charitable Gift Fund
How this is measured
About Chordoma Foundation
- How much does Chordoma Foundation give?
- Chordoma Foundation reported 6 itemized grants totaling $1,292,580, out of $1,933,755 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 5 and 13 organizations a year over FY2018 to FY2024.
- What does Chordoma Foundation fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Health (53%), Science & Tech (47%), Education (0%).
- Who are Chordoma Foundation's largest grantees?
- By total granted over FY2017 to FY2025: Start ($2.4M), University of North Carolina at Chapel Hill ($1.6M), Utmd Anderson ($1.3M).
- Does Chordoma Foundation fund new organizations?
- In FY2024, 46% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as Chordoma Foundation?
- Its strongest co-funders, measured against what their size predicts, include Fidelity Investments Charitable Gift Fund.
- Where is Chordoma Foundation based?
- Chordoma Foundation is based in NC.
Play a game based on Chordoma’s filings →